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To ask you to show your support for those with chronic illness and sign this petition!

(23 Posts)
hiddenaway34 Sat 08-Oct-16 01:37:48

This is a campaign of a friend of my DC.
It's about how people with Ehlers Danlos (a chronic illness) are excluded from the Paralympics and are often told they can't compete in the Olympics. For most Ehlers Danlos is dibilitating and can leave people having to sometime use whell chairs or walking aids. Yet if they had EDS named as a condition (other conditions like hyper mobility (on its own) chronic pain) are automatically not classified. Please help shed love 100 signatures thank you!
www.change.org/p/international-paralympic-committee-to-allow-those-with-ehlers-danlos-syndrome-to-compete-in-the-paralympics?recruiter=47025370&utm_source=share_petition&utm_medium=copylink

MiscellaneousAssortment Sat 08-Oct-16 02:41:43

Signed.

boo2410 Sat 08-Oct-16 03:10:20

Signed.

RhodaBorrocks Sat 08-Oct-16 05:09:15

Signed. I have EDS too, a rarer type that might out me so I won't say which.

hiddenaway34 Sat 08-Oct-16 10:28:13

thank you!

hiddenaway34 Sat 08-Oct-16 11:07:56

Oh Rhoda we know so many people with diffrent types of EDS. I dont see why its outted

crashdoll Sat 08-Oct-16 11:29:10

I have signed but can I just comment on the wording. Firstly, it's too long. You'll get more people to sign if it's short and snappy. Secondly, the aspiring Paralympian is not "confined to his wheelchair". Sorry but it's a pet peeve of mine as it's disabling language.

hiddenaway34 Sat 08-Oct-16 12:21:32

Thanks crashdoll.ut you do have to rember it was done by a 16 year old!

hiddenaway34 Sat 08-Oct-16 20:21:11

bump!

alwaysconfused43 Sat 08-Oct-16 22:51:17

signed

noeuf Sat 08-Oct-16 22:52:49

Why are they excluded from the Paralympics?

hiddenaway34 Sat 08-Oct-16 23:09:32

i think i read somewhere its because it varies but im not sure!

noeuf Sat 08-Oct-16 23:15:12

Oh okay, thank you

hiddenaway34 Sat 08-Oct-16 23:16:56

Have you signed! May i ask

BigDamnHero Sat 08-Oct-16 23:26:53

Also signed. I know three people with EDS. One has just got a wheelchair and has had to accept she's almost certainly not going to have the life she had planned for herself. It really can be debilitating.

hiddenaway34 Sat 08-Oct-16 23:27:39

Thank you!

user1471506380 Sun 09-Oct-16 00:49:58

Signed. My DCs have EDS.

NoMudNoLotus Sun 09-Oct-16 01:21:36

Absolutely totally agree.

Thankyou for starting this thread flowers

Will sign. I have EDS as do the rest of my family.

GreatFuckability Sun 09-Oct-16 02:10:42

i've also signed. what an odd set up. My dd1 has hypermobility and is a promising gymnast. is it because the hypermobility aspect can actually be a benefit or something?

kali110 Sun 09-Oct-16 02:13:48

Signed

planbatman Sun 09-Oct-16 03:54:48

Fair few of us with EDS. Signed!

hiddenaway34 Sun 09-Oct-16 08:35:04

Yes i believe ive read that somewhere but its hardly helpful if you knee dislocates as well! Shes tring to get the petition shared on twitter by people at the moment anything you can do to help is gratefully received Thank you all so much!!

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