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Fund more research into DIPG brain tumours, which are almost universally fatal.

(31 Posts)
bluejedi8888 Tue 27-Sep-16 14:02:11

Calling all mums and dads!

I urgently need your help - in April 2016 my best friend's 6-year-old daughter was diagnosed with a rare brain tumour called DIPG. DIFFUSE INTRINSIC PONTINE GLIOMA (DIPG) is an aggressive cancerous tumour that is located at the base of the brain, it has a very poor average prognosis of 9 months from diagnosis and is inoperable with currently no known cure. It predominantly affects children between 4 and 10 years of age. So basically it's a 9 month death sentence for an innocent child!

This campaign has already attracted the interest of local press and many supporters including national MPs and well known tv and Olympic sports celebrities.

Hopefully with your help and support we can reach the requisite 100,000 signatures by the 3rd December 2016, to persuade the UK Government to increase funding for more research into DIPG brain tumours with a hope to one day finding a cure so that no parents in the future need suffer the same fate.

PLEASE SIGN AND SHARE THE FOLLOWING PETITION

Link to petition: petition.parliament.uk/petitions/131556

Story behind the petition: kaleigh.ethanet.co.uk/

Thank you for your support!

bluejedi8888 Tue 04-Oct-16 07:32:47

DIPG a fatal paediatric brain tumour that currently has NO CURE, predominately found in children between the ages of 4 & 10 years. To urgently help raise awareness and to show support here is your challenge:

*Please sign the petition, “Fund more research into DIPG brain tumours, which are almost universally fatal.” petition.parliament.uk/petitions/131556
(Urgent deadline to reach 100,000 signatures by 3 Dec 2016)*

Then film yourself doing the following challenge, copy and paste all this text along with your video and don't forget to nominate 5 of your friends to do the challenge;

1) 40 x Squats
2) 9 x Sit Ups
3) 1 x Diamond Push Up (not a normal one, use both hands to make a diamond shape whilst doing the push up.)

There is a relevance to the above chosen quantities, as follows;

- 40 is the approximate number of children diagnosed in the UK every year.
- 9 is the number of months they typically have to live from diagnosis.
- Finally it has less than 1% survival rate.

We all need to change these tragic statistics, please remember to sign the petition and help make a difference in the lives of the children of our future.

You have 48 hours to complete the challenge but if you fail for good reasons, please make a generous donation to one of the main DIPG charities who fund more research into this evil illness, (in alphabetical order) Abbie's Army, Brain Tumour Charity, Brain Tumour Research or Funding Neuro.

Thank you and I'm grateful for your support!

The story behind this petition - kaleigh.ethanet.co.uk/

bluejedi8888 Tue 04-Oct-16 10:36:20

Additional info: After you've tackled the challenge please post it on Facebook with this hashtag #theDIPGnominationchallenge and I will get to see your success! Thanks again x

sawboboy Tue 04-Oct-16 16:02:49

I've signed and also asked my children to sign.

I will ask Friends, Familys, Schools and local Clubs and Shops.

Will help spread the awareness of this awful condition.

Lets fight DIPG together.

giggles79 Tue 04-Oct-16 16:36:01

Sorry to hear about your daughter. With a little girl of my own, I will back you up 100%, as I can only imagine it must be heartbreaking.

petition signed and challenge accepted. let's raise awareness to support DIPG.

cutiepie00 Tue 04-Oct-16 19:59:33

i'm sorry to hear that.. that's very sad.. can't imagine what the family r going through...

i've signed petition!

good luck with the whole & hope the government will do something about it!!!

MamaLuMk Wed 05-Oct-16 04:47:53

That's the worst nightmare that no mum nor family should ever need to face :-(

I've signed the petition for government support and will be asking other mum's and friends to sign too.

Be strong dear, prayers with you all...

Other mum's on this website please spare a few minutes signing the government petition too, this could happen to any poor baby.

bluejedi8888 Wed 05-Oct-16 10:35:26

Thank you all sawboboy, giggles79, cutiepie00, MamaLuMK, let's spread the word out! smile

bluejedi8888 Mon 17-Oct-16 14:18:53

Bump

bluejedi8888 Mon 17-Oct-16 14:57:02

A plea to all parents,
Time's running out, our petition must end on 3rd December 2016!
We need to hit that magic number 100,000 signatures to push the UK Government to reconsider their approach to the funding of research for DIPG brain tumours in children.

Many people have already backed this campaign, including numerous MPs, web bloggers, famous celebrities like Olly Murs (X-Factor, TV, chart-topping artist), Mo Farah (double double gold Olympian), Jonas Blue (chart-topping DJ artist), Lego's Red Fire Ninja, James Guy (double silver Olympian), Robert Llewellyn (Red Dwarf/Kryten), Huw Edwards (BBC News anchorman), Louisa Preston (BBC news), Alex Jones and Matt Baker (BBC The One Show) to name a few!

petition.parliament.uk/petitions/131556

But we still need your help, please sign our petiton and share amongst your social friends and family. Thank you!

bluejedi8888 Thu 27-Oct-16 15:17:13

Bump

bluejedi8888 Thu 27-Oct-16 15:22:04

Parents.....please please help this worthy campaign! There's no commitment or cost and it only takes one minute of your time to potentially save a child's life in the future! Thank you smile

bluejedi8888 Thu 03-Nov-16 17:05:11

Bump

bluejedi8888 Thu 03-Nov-16 17:07:59

Look who's supporting! Please please join them and help us hit the target to force this campaign into a Parliament debate! Thanks

Bummymummy77 Thu 03-Nov-16 17:31:51

My friend's wonderful 2 year old daughter died from this just 3 months after diagnoses.

Please sign people.

bluejedi8888 Mon 07-Nov-16 16:14:00

Thank you Bummymummy77 for your support!

bluejedi8888 Mon 07-Nov-16 16:14:15

Bump

bluejedi8888 Mon 07-Nov-16 16:27:07

Teamkaleigh had a surprise supporter giving her support to this worthy cause......the one and only J.K. Rowling! Amazing and thank you!

We only have about 30 days to deadline, please sign and share our petition now, help us to help others!

petition.parliament.uk/petitions/131556

bluejedi8888 Mon 07-Nov-16 16:28:21

One of our latest supporters.......

DashboardLightParadise Mon 07-Nov-16 16:31:01

Done and bump. One of the girls in dd's school died of it last year. Horrendous disease.

bluejedi8888 Fri 11-Nov-16 07:00:31

DashboardLightParadise So sorry to hear that awful news, RIP lil' angel our thoughts are with your family and friends.
Thank you for your support, please continue to share this.

bluejedi8888 Mon 21-Nov-16 05:17:12

Bump

Collymollypuff Mon 21-Nov-16 05:28:54

I've signed. Loads more signatures are needed - come on, MNers, we're usually good at this sort of thing.

bluejedi8888 Mon 21-Nov-16 05:54:04

Kaleigh Update: "What a fantastic day at the X Factor, Thank you to "The Brain Tumour Charity" for the invite. Everybody was truly wonderful, Matt Terry gave Kaleigh a lucky charm bracelet, Emily & Ryan spent a lot of time with K and carrying her around the place, 5 After Midnight made a huge effort to talk to us and even invited us back tomorrow, Honey G with a special Rap.....It brought a huge smile to Kaleigh and Carson's face......also meeting all the judges as well wow wow wow! If there was a dream Kaleigh ever wanted, this would have been high up on her list."

*PLEASE SIGN AND SHARE THE PETITION, TIME'S RUNNING OUT! THANK YOU*star

petition.parliament.uk/petitions/131556

Collymollypuff Mon 21-Nov-16 05:56:50

smile star

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