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To think the amount of members on this site we should be able to help hit the 100000 target

(54 Posts)
gemand3 Thu 13-Nov-14 02:43:18

Put here for traffic is also in chat.
A gorgeous little boy in my area was diagnosed with krabbe's disease at 6 months old, he's now 11 months old and two days ago went into a hospice.
A petition has been set up and to make a difference 100000 signitures are needed.
Krabbes disease could be screened for during the heel prick test and treated if caught before the symptoms appear. It is currently not screened for in the UK. Neither are over 50 other disorders that could be screened for.

The UK currently screen for 9 disorders. Other European countries screen for up to 29 and American States screen for 31 to 60. The UK is so far behind and our children have and will continue to suffer because of it.
So please please please could you sign the petition so hopefully another family don't have to go through this thanks.

gemand3 Thu 13-Nov-14 02:44:21

MollyHooper Thu 13-Nov-14 03:58:54

Signed and shared.

Eastpoint Thu 13-Nov-14 07:05:10

Signed & posted here to bump it up

antimatter Thu 13-Nov-14 07:07:31

signed and shared

londonrach Thu 13-Nov-14 07:20:10


Ujjayi Thu 13-Nov-14 07:25:32

Signed & shared.

fluffyraggies Thu 13-Nov-14 07:33:07


Shocked actually.

stephanielittl7 Thu 13-Nov-14 07:38:46

Signed it.

QuietNinjaTardis Thu 13-Nov-14 07:39:45


gemand3 Thu 13-Nov-14 08:15:45


HonoraryOctonaut Thu 13-Nov-14 08:29:21

I'm really sorry to hear that your son is so poorly. Signed.

gemand3 Thu 13-Nov-14 08:36:07

It's not my son, it's a little boy in my area and his parents set the petition up to try and stop other family's going through similar

KnackeredMuchly Thu 13-Nov-14 08:40:04


PrettyPictures92 Thu 13-Nov-14 09:22:51

Signed and bumped

CorporateRockWhore Thu 13-Nov-14 09:25:00

Signed and bumped. Poor little boy, how awful.

Thehedgehogsong Thu 13-Nov-14 09:30:03


TestingTestingWonTooFree Thu 13-Nov-14 09:41:12


APlaceInTheWinter Thu 13-Nov-14 09:44:00

Signed and shared. So sorry to hear about the little boy in your area flowers

APlaceInTheWinter Thu 13-Nov-14 09:55:39

gemand3 have you contacted the local media (only with the consent of the family of course!)? They would help to publicise the petition for you and you'd have greater chance of it being picked up by the national media then too.

gemand3 Thu 13-Nov-14 10:08:30

Hi aplaceinthewinter I know the local radio station has picked it up not to sure if any press have been contacted I know a certain morning tv programme had been contacted but they weren't interested hmm
Everyone local are tweeting and Facebook and getting everyone to share im just trying to help a little by putting it on here

Cannotbelieveit Thu 13-Nov-14 10:11:41

Signed and shared

APlaceInTheWinter Thu 13-Nov-14 10:19:19

gemand3 I've PMed you.


bumpiesonamission Thu 13-Nov-14 10:24:15

Signed, shared on fb. Happy to help

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