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Help me, please.

(46 Posts)
stargirl1701 Thu 07-Feb-13 16:08:24

I am not coping at all. I'm sitting outside the house in the car crying.

DD has silent reflux. She screams. All day. Naps for 10 minutes every couple of hours. Feeds every 2 hours. Screams. All day.

Been to GP 5 times in the last 8 days. Saw the HV on Tuesday. I don't know how to cope with this screaming.

She used to sleep through the night so at least I got a rest then. Now up 2/3 times a night.

When does this get easier? Yesterday she had a nap in the morning for 45 minutes - for the first time ever in her entire life.

I find my self driving aimlessly because she'll sleep in the car seat. Wandering round with the pram. If she's moving she'll sleep. When do I get a rest?

I just want a cup of tea. A hot cup of tea without screaming in the background.

I go out every day to groups. She has a meltdown and everyone is so worried. What's wrong? What's wrong? Why's she screaming? Why's she being sick? And, I'm like this is what she is always like.

GP just won't listen. She's gaining weight so she's fine. She's smiling at me now so she's fine. I video one of her meltdowns. Yes, yes, that's what refluxy babies are like.

She is 5 months old today.

stargirl1701 Thu 07-Feb-13 16:27:14


ExBrightonBell Thu 07-Feb-13 16:28:51

Hi Stargirl. I just wrote a longer post but my 6mo swiped at my phone and I lost it. Hang on in there and I will try again.

JoandMax Thu 07-Feb-13 16:31:52

Has the GP given you any meds?? She sounds like she needs Ranitadine, Domperidone and Gaviscon to try.

Will she go in a sling??

Can't do a long reply but my DS2 had horrific reflux, I thought I was going mad at one point.... It's shit but it does get better I promise

stargirl1701 Thu 07-Feb-13 16:34:40

Yup. Ranitidine - put up to 0.9ml x3 daily last week. Now on SMA Staydown for Reflux formula. Now on Lactulose for the constipation from the new formula.

GP doesn't see any point in a referral to a paediatric gastroenterologist as she is gaining weight on her centile.

ExBrightonBell Thu 07-Feb-13 16:34:48

You sound at the end of your tether, which is not a surprise given what you have described.

Do you have a DH or DP who can give you some respite? Or another family member or a friend? If so, they could take the baby for a few hours and let you have that cup of tea.

There is an organisation (whose name escapes me at the mo - i'll look it up and get back to you) who have volunteers who can come into your home to help out too. Maybe that would also give you a break?

You are doing all you can, and it's very impressive what you are coping with. Keep posting on here to vent if you need to.

stargirl1701 Thu 07-Feb-13 16:35:52

Yes, she will sleep in her sling if I am walking. She will sleep if she is moving. But, I am exhausted.

I had blood poisoning which I am still recovering from.

JoandMax Thu 07-Feb-13 16:37:20

Have they mentioned trying a CMP free formula? Lots of cases of reflux can be CMPI, plus cows milk can really exaggerate reflux.

Can you ask your HV about home start?? A few hours a week for you to get some respite.

Hang on in there and keep talking about it xxx

stargirl1701 Thu 07-Feb-13 16:37:22

In-laws are coming to stay for the weekend. Thank god! My Dad is useless. He keeps saying he doesn't know what my problem is. Just leave her scream and she'll stop eventually. My Mum is dead.

DoctorAnge Thu 07-Feb-13 16:39:00

You poor love sad

I have no advice but you sound so desperate. I just didn't want to read and run.

JoandMax Thu 07-Feb-13 16:39:01

Take a look at Little Refluxers, online group. Loads of tips and tricks an support

stargirl1701 Thu 07-Feb-13 16:39:06

DH is great but he has been away with work down in England the last 3 weeks. I've either had someone round or gone somewhere every evening he has been away because I know I couldn't cope on my own for a whole day and a whole night.

stargirl1701 Thu 07-Feb-13 16:39:37

HV thinks it's CMPI but the GPs do not.

stargirl1701 Thu 07-Feb-13 16:40:17

Been on Little Refluxers, thank you. I got some good advice there for dealing with the GP.

JoandMax Thu 07-Feb-13 16:40:57

You can buy Nutramigen or Neocate, they're expensive though. Maye if you tried it for a couple of weeks and it helped they'd listen and prescribe it for you?

stargirl1701 Thu 07-Feb-13 16:41:12

What is Home Start? Is it a UK wide thing? We are in Scotland.

ExBrightonBell Thu 07-Feb-13 16:41:18

Homestart is who I meant, thanks JoandMax. Do make full use of your in laws - get them to take the baby out for a while so you can rest.

Is there any possibility that your DH/DP can take some time off work in order to help you?

stargirl1701 Thu 07-Feb-13 16:42:36

Where do you buy those specialist formulas? I've never seen them in the shops.

stargirl1701 Thu 07-Feb-13 16:43:54

He took time off 16th Dec - 8th Jan and then another 2 days when I had tonsillitis a fortnight ago. I don't think he'll have much time left to take.

backinaminute Thu 07-Feb-13 16:44:15

My ds2 is only 10 weeks but sounds similar, screams and is sick a lot. No one will actually say it's reflux and I have had the same response as you from the dr about weight gain and 'he will grow out of it'. We took him to an osteopath 2 weeks ago and it's made him so much more comfortable and happy - she said his diaphragm wasn't working properly and bent him about a bit and by the end of the session he was beaming and just laid on the bed cooing - he'd never really done that before. We've actually seen his eyes for the first time because he was always so scrunched up from the crying. There's no guarantees but it's made things so much better for us - I was at breaking point and you've been doing it longer than me. If nothing else, I understand how you feel.

When it gets really bad I had to shut myself in the bathroom or stand in the garden for a few minutes, just to clear my own head. My ear used to hurt from having him on my shoulder and him screaming in it all day long. Hope you find something to help soon.

JoandMax Thu 07-Feb-13 16:44:43

You will need to get pharmacist to order them in for you, it's not something they regularly stock as most people, rightly, get them on prescription.

I wish I could give you a magic solution xx

stargirl1701 Thu 07-Feb-13 16:45:00

He's come back from work now and taken DD out of the car and into the house. I'm still in the car. I should go in.

stargirl1701 Thu 07-Feb-13 16:46:29

I know it's only time that will really help. Just having a crappy week.

ExBrightonBell Thu 07-Feb-13 16:47:01

Homestart is a charity and is available in Scotland. They provide volunteers who come to you and provide support and practical help - whatever you need really.

It's difficult if your DH had already had a lot of time off and is away for periods of time. Is your MIL near enough to come over more frequently? Assuming you get on of course!

stargirl1701 Thu 07-Feb-13 16:47:25

DD sees a chiropractor for both the reflux and asymmetry to the skull/face. It has a medical name starting with a 'pl'.

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