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Are you or your child affected by Recurrent Respiratory Papillomatosis (RRP)?(1 Post)
Are you or your child affected by Recurrent Respiratory Papillomatosis (RRP)?
What are we researching and why?
RRP is a rare condition causing wart-like growths in the airway making it difficult to speak and breathe. There is no known cure for RRP. Patients typically require multiple surgical procedures to remove the growths, which can grow back quickly. To help us to understand which of the available treatments for RRP are the safest and most effective we have developed the national AIR RRP database, allowing us to collect information from patients across the UK. If you or your child is affected by RRP and receiving treatment from an NHS hospital you can ask your consultant to enter procedure data to the AIR RRP database. This will not alter the care that you receive, and it will help to guide and improve treatment for all RRP patients.
Can you take part?
You or your child can ask for your data to be included if:
•You or your child have a diagnosis of RRP
•You or your child are receiving treatment from an NHS hospital
How do you take part?
If you would like your data or your child’s data to be included in the AIR RRP database, please discuss participating in the study with your consultant. For more information and updates on our study please visit www.rrp.org.uk. If you have any questions for the study team, contact Kim or Emma: nuth.NMPCE.Air@nhs.net