Myotonic Dystrophy and pregnancy(1 Post)
Just feeling kind of alone I have a healthy DD but I have MD (was told any baby I had which was affected would be born with it) and would really like a sibling for my DD- we got pregnant last October we weren't actually trying but had planned to start TTC in November- we found out at 12 weeks from CVS that our little boy was affected and that it would be in his best interests as well as our own to have a TFMR (I have seen the devastating effects in children born with this condition). So that was the week before Xmas fast forward 3 months to March and I start haemorrhaging after two weeks went to the hospital was told to go home as I was not a priority it was just a period! It was bright red blood and just had 1 huge bleed a day and nothing in between! Two more weeks of this I started passing out went to A&E waited 9 hours before I saw anybody there was not even a triage nurse! It was the same junior Dr who sent me home - told me again there was nothing wrong but got my blood results and realised I had half the amount of Oxygen in my blood than I should have, He conceded that I must have been bleeding a lot and had to have 3 emergency blood transfusions and then an op to temporarily block the artery to my uterus. Now I have had two lighter but fairly normal periods following a few heavier ones in a 35 day cycle but am unsure if I am ovulating I also have PCOS- we've not managed to get pregnant yet - just wandering if anyone has any experience of MD and pregnancy or AVM (the condition which caused the excessive bleeding unrelated to MD)?
Join the discussion
Registering is free, easy, and means you can join in the discussion, watch threads, get discounts, win prizes and lots more.Register now »
Already registered? Log in with:
Please login first.