Special needs and nappies: campaign WIN!

[RowanMumsnet]

We're delighted to announce that we have received a letter from David Cameron in which he agrees with us (and our partnering organisation Every Disabled Child Matters) that the rationing of nappies for children with special needs is 'inappropriate'. He says:

'I know, from my own experience, how important such supplies are, and how difficult it can be to rectify the situation if parents are not getting what they need. I also remember how strongly many parents feel about this issue following my earlier online chat...

The best practice guidance... states: 'Pads should be provided in quantities appropriate to the individual's continence needs. Arbitrary ceilings are inappropriate.' Riven, and a number of your members, have helped to highlight the fact that arbitrary ceilings are nonetheless being used in some areas. That is why the Secretary of State has asked the Chief Executive of the NHS to remind PCTs' Chief Executives of the content of the 2000 guidance.

I hope the action that we have taken will make a difference.'


You can read more about this on EDCM's website here. Please keep us posted on this; we will be seeking to ensure that the PCTs follow through on this advice, but we'll need you to help us do that.

[Tee2072]

WHOOO WTG Mumsnet and EDCM! And, of course, Riven.

[SagacityNell]

yay!

So how many is that that we have battled and defeated this year?

Asda
Dr Pepper
Coca cola?(did i imagine that one?)
who was it that took some clothing off sale as part of the let girls be girls thing?

[booyhoo]

wahey, MN at it's best!!

that's really great. i hope it does make a real difference and all those MNers get the benefit of it.

[ilovemydogandMrObama]

Would love to see Riven's face when she reads this.....

[Valpollicella]

Hurrah!

Well done all!

at letting DD widdle on him

[Glitterknickaz]

Good oh!

[edam]

well done! riven, I'd get a copy of the letter from DC to MN if I were you and send it to your PCT chief exec.

[ilovemydogandMrObama]

Am not going to make cheap remarks at his expense as to why he didn't contact Riven...

[RowanMumsnet]

Riven, if you email me your address ([email protected]) I'll print you one off!

[Heartsease]

[tabouleh]

Well done Riven!

[Ineedsomesleep]

Well done MN and of course Riven Hope you and your DD are feeling much happier. Did you ever have to chain yourself to the railings?

[Jamieandhismagictorch]

Well done. All concerned should be very proud. Good old MN

[5inthebed]

Well done MN, EDCM and of course the front woman herself, Riven

[WreckOfTheHesperus]

Excellent news, well done all

[Madascheese]

Riven you're a total star, now, since you've got so much free time now can you come and sort out this problem I've got with slow service at my local DVD rental place?

Seriously my hat is firmly tipped at all of you Excellent job.

[ilovemydogandMrObama]

shall I call the local paper, or would this embarrass you?

[saintlydamemrsturnip]

Oh I had no idea there should be no arbitary ceilings. My pct has one. I think I will contact then to ensure they stop.

[BrokenBananaTantrum]

this is brilliant news

[BelleDameSansMerci]

This is bloody brilliant - well done...

Can MN Towers contact the press about this? Get it really well publicised?