Hi
Long story short, through failings of a terrible scanner and consultant OBS at Chelsea and Westminster we missed our chance to save our miracle identical twin girl, and are just left with her sister. The odds for Brain damage without laser surgery are 35%, if we'd had laser 5%.
So anyone been through this, we are continuing, I've had a scan last week, where the amazing PRof Kypros Nicolaides, who is the best person anyone experiencing TTTS can ever see, anyway, he has said he can't see any brain damage as yet, but I have read that it is never 100% and that things could manifest themselves even after the baby is born, I am worried about Cerabal Palsy, and brain function.
Are there any survivors of TTTS out there that didn't have laser, and your surviving twin has faired ok? I am hoping we will have a normal kid, and I totally trust Kypros, which is one of the only reasons we are still continuing with the pregnancy, but I would just dearly love to hear that someones baby has really been ok, beaten the odds, and got to toddler years with normal development and no issues. Or not I suppose, if you had normal scans, normal MRI and the baby still had problems that would be useful to know. I read the statistics, but its not the same as going through it or making the decisions.
Not sure if anyone will answer this, because I imagine if you have had a healthy survivor your probably not talking about it on forums and you've just got on with life.
Many thanks for your time in advance.
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TTTS no laser treatment, one dead, one survived, anyone been through this?
5 replies
Taplow75 · 07/07/2013 23:34
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