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Identical twins and identical medical problems! Any experience and advice?

(4 Posts)
jen80 Mon 20-May-13 19:24:43

Hi my identical twin boys have both suffered with illness relating to blood sugar.
Following, what I considered minor, sickness and/or questionable poo shock we have discovered them both (6 months apart) almost unconscious due to blood sugar being too low. In one twin he quickly became completely unresponsive when we went to get them up in the morning. These have been horrendous experiences, one was only on Friday.
The hospital cannot provide any answers as to why their bodies have not been able to regulate their blood sugar following what we are told is gastroenteritis (for any medically mums on fri the paramedics found his level on fri to be 1.8). And tests have all been normal so far....but surely this is not normal?!
Has anybody experienced any unusual illnesses that have presented in identical twins? Should I be pushing for further investigation now its happened to both or is this no more worrying than something happening to one singleton?? They do after all have the same genes!

I'm really interested to know if this often happens with ID twins.

ClairesTravellingCircus Mon 20-May-13 20:30:18

It sounds very scary. I don't have any direct experience but made me think of this:

(Ignore if not relevant!)

Hope the link works.

jen80 Mon 20-May-13 20:56:02

Thank you so much! That is very relevant, their hospital discharge letters stated they had a 'hypoglycaemic episode'. And there were ketones in their urine. The problem is that these things happen and shock you so much that you don't think clearly and ask the right questions -which you think of when you've gone home!
Thanks smile

ClairesTravellingCircus Mon 20-May-13 21:50:33

Glad I could helpsmile I'd heard about it and your post just rang a bell.

I'm like you with questions: they always come to me when it's too late!
Hope it doesn't happen again!

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