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Blood test results back for recurrent miscarriage - I have anticardiolipin antibodies in blood - antiphophopilid syndrome- anyone else have this diagnoses and conceived with treatment?

(8 Posts)
Jojowash Tue 24-Dec-19 19:29:09

So after having the blood tests Thrombophilia, it came back I have anticardiolipin antibodies and need to retest in 3 months. On googling it’s called antiphospholipid syndrome. The most common cause for miscarriages.

Sticky blood basically and an immune system that attacks growing baby.

Has anyone been diagnosed with this?

Has anyone gone on to have healthy babies ?

They give heparin injections everyday, aspirin and I did see they can give predisalone when you get pregnant x

OP’s posts: |
Guest1233 Sun 29-Dec-19 22:10:03

Sorry I have no answers for you. I have just had a little read up on this and it is very interesting. May I ask how long you waited for testing?

Good luck and I hope you find the answers your looking for

Jojowash Wed 01-Jan-20 16:22:45

Hi,

I waited and begged after having one miscarriage, got tested after having two. If you mean the results ? It took three weeks

OP’s posts: |
Guest1233 Wed 01-Jan-20 21:10:08

Yes sorry I wasnt clear. I ment how long from your last miscarriage, was you sent for testing.

I am on my 3rd miscarriage now and asked to be tested the hospital doctor said they dont do he will have to write to my doctor who will do the referral.

Guest1233 Wed 01-Jan-20 21:20:54

www.mumsnet.com/Talk/pregnancy/3050954-6-weeks-pregnant-with-antiphospholipid-syndrome-APS-any-advice I found this i haven't read over it. But thought it might help

GnomeDePlume Wed 01-Jan-20 21:21:30

I have APLS diagnosed after my family was complete. I have done a bit of googling and it would seem that low dose aspirin and heparin are the normal treatment and, more importantly, work. Giving yourself daily injections may sound a bit daunting but is in fact fine. It is worse in the anticipation than the fact.

IME APLS is often not well understood by GPs so it is worth becoming well read on the subject. Are you being seen by a hematologist?

leghairdontcare Wed 01-Jan-20 21:40:23

I discovered I had APS after developing a DVT after the birth of my first child. When I had my second I had to have daily clexane injections and was consultant led. My hospital had a joint haematology/obstetrics team so when I saw the consultant I would also see the haematologist at the same time.

ColoExpat Wed 01-Jan-20 22:10:21

I was diagnosed with APS after my developing HELLP and eclampsia at 29 weeks. Resulted in an emergency c-section, week long hospital stay for me, and 8 weeks in the NICU for her. My daughter and I were a bit touch-and-go but we both pulled through and she's now a lovely 11.5 year old. When I got pregnant with her brother I was immediately started on daily Lovenox injections which is a longer acting drug (low molecular weight heparin). It burns and makes you bruise! I continued with my low dose aspirin during the pregnancy (was instructed to take it for the rest of my life). I switched to twice daily injections of heparin towards the end of the pregnancy. I developed PIH and went on bedrest for 10 days, but otherwise healthy. I was cared for by a high risk OB/Gyn and had a planned cesarian at 39 weeks. He was a big healthy boy who will be 9 soon. Long story longer, yes, the anticoagulant therapy worked for this sticky blooded lady!

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