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Recurrent Miscarriage Support Thread 24 - tests, treatment, trying again.

(1000 Posts)
Brummiegirl15 Sat 23-May-15 20:42:01

New thread for us if it's worked on phone! Will paste stats

Brummiegirl15 Sat 23-May-15 20:43:00

Buckle up, the threads move like lightening! Tea, sympathy, information, support and combined wisdom to guide you through the maze of testing and treatment for recurrent miscarriage. Newbies always most welcome.

Please start with the traditional recap of your stats.

Brummiegirl15 Sat 23-May-15 20:47:14

Allthereis: 29. 1DC, 2MC
barkingtreefrog: 35. TTC#1 since Dec 11, 2MC
bettybutterchops: 40. DS, 3MC, pg
bootles: 41. DS, 5MC
boozle80: 34. 3MC, pg
brummiegirl: 38. TTC#1 since Apr 14, 3MC
bythesea: 32. TTC#1 since Dec 12, 3MC, pg
catlover: 34. TTC#1 since 09, 3MC, pg
cheesymash: 29. DS, 2MC
cloudjumper: 43. DS, 4MC, pg
enlightenedbunny: 34. TTC#1 since '10, 1TFMR, 3MC, pg
erica21: 32. DS, 2MC, pg
extrablessings: 33. DS, 6MC
flen: 36. TTC#1, 3MC
floweroct: 34. TTC#1 since 11, 3MC
frecklefire: 40. DS, 3MC
girliesaints: 37. DD, 3MC, pg
Ifinishedthebiscuits: 37. 2DS, 4MC
jady77: 37. TTC#1 since Sep 14, 2MC, pg
longestlurkerever: 34. DD, 3MC, pg
loopyaboutmyboys: 38. 2DS, 4MC
marchgirl: 37. DD, 4MC
maverick79: 35. TTC#1, 2MC, pg
me2me2: 2DC, 2MC
mimidoddrioni: 35. TTC#1, 2MC
minnie74: 40. DS, 3MC
monten: 37. TTC#1 since Apr 13, 1TFMR, 1MC
mrsconfusion: 35. DD, 3MC
mrsdiddlydoo: 34. DS, 2MC, pg
notspartacus: 39. 2DD, 2 ectopic, 3MC
sashakerr: 37. DS, 3MC
sebsmummy: 40. DS, 3MC
sizethree: 35, TTC#1, 3MC, pg
strubidooo: 34. TTC#1 since Sep 12, 3MC, 1 ectopic
sunandrainbow: 38, TTC#1, 4MC, pg
thepopandcry: 38, DS, 4MC
twilightstruggle: TTC#1 since Nov '12. 5MC
wadsy: 36. DS, 1 ectopic, 4 MC

lovemylittlebear
belleende
ourdaywillcome
daisybell

Thread babies
bakingtins: 40. 2DS, 4mcs. DD born May 14
tannyloo: 42, 2DS, 5mcs. DS born Mar 15
tinytear: 41. DD, 5mcs. DD born Mar 15
Justonemoretime, 39, TTC 1 3 mc's 1 DS born May 15
PurpleFrogshoes 38, 2mcs, 1 CMP, 1 DS born May 15

Marchgirl Sat 23-May-15 20:52:54

Thanks for the new thread brummie

Updated stats:
allthereis: 29. 1DC, 2MC
barkingtreefrog: 35. TTC#1 since Dec 11, 2MC
bettybutterchops: 40. DS, 3MC, pg
bootles: 41. DS, 5MC, pg
boozle80: 34. 3MC, pg
brummiegirl: 38. TTC#1 since Apr 14, 3MC
bubblybubbles80: 34. TTC#1, 3MC
bythesea: 32. TTC#1 since Dec 12, 3MC, pg
catlover: 34. TTC#1 since 09, 3MC, pg
cheesymash: 29. DS, 2MC
cloudjumper: 43. DS, 4MC, pg
confu3ed: 39. DS, DD, 5MC, pg
enlightenedbunny: 34. TTC#1 since '10, 1TFMR, 3MC, pg
erica21: 32. DS, 2MC, pg
extrablessings: 33. DS, 6MC
flen: 36. TTC#1, 3MC
floweroct: 34. TTC#1 since 11, 3MC
frecklefire: 40. DS, 3MC
girliesaints: 37. DD, 3MC, pg
Ifinishedthebiscuits: 37. 2DS, 4MC
jady77: 37. TTC#1 since Sep 14, 2MC, pg
longestlurkerever: 34. DD, 3MC, pg
loopyaboutmyboys: 38. 2DS, 4MC
marchgirl: 37. DD, 4MC
maverick79: 35. TTC#1, 2MC, pg
me2me2: 2DC, 2MC
mimidoddrioni: 35. TTC#1, 2MC
minnie74: 40. DS, 3MC
monten: 37. TTC#1 since Apr 13, 1TFMR, 1MC
mrsconfusion: 35. DD, 3MC
mrsdiddlydoo: 34. DS, 2MC, pg
notspartacus: 39. 2DD, 2 ectopic, 3MC
sashakerr: 37. DS, 3MC
sebsmummy: 40. DS, 3MC
sizethree: 35, TTC#1, 3MC, pg
snoopysimaginaryfriend: 29. TTC#1 since Sep 14, 3MC
strubidooo: 34. TTC#1 since Sep 12, 3MC, 1 ectopic
sunandrainbow: 38, TTC#1, 4MC, pg
texta: 32. TTC#1, 3MC
thepopandcry: 38, DS, 4MC
twilightstruggle: TTC#1 since Nov '12, 5MC
wadsy: 36. DS, 1 ectopic, 4 MC, pg

lovemylittlebear
belleende
ourdaywillcome
daisybell
portmoon

Thread babies
bakingtins: 40. 2DS, 4MC. Faith born May 14
tannyloo: 42, 2DS, 5MC. Bertie born Mar 15
tinytear: 41. DD, 5MC. Alice born Mar 15
justonemoretime: 39. 3MC. Scott, born May 15
purplefrogshoes: 38. 2MC, 1CMP. John born May 15

Marchgirl Sat 23-May-15 20:55:35

And can I just say, 17 pg at the moment. Woohoo. And I'm full of hope for the rest of us.

Brummiegirl15 Sat 23-May-15 20:59:41

17!!! That's bloody fantastic, an inspiration to us all

Marchgirl Sat 23-May-15 21:03:46

Me 37. Dh 44. Dd born Aug 12. Normal pg
Jan 14 to Feb 15 - 4 mc:
Mmc@12 wks (measured 6) med man x2
Natural mc@ 8 wks
Mmc@8 wks after hb at 7. Failed med man
Natural mc at 5 wks.
No result on testing for Foetus 3.
All nhs rmc testing clear, including karyotyping
Coventry showed high uNK result (7.9%)
Next pg will be on progesterone, pred and heparin.
2nd cycle post Coventry cd4. Yawn.

Snoopysimaginaryfriend Sat 23-May-15 21:17:04

Those are hopeful statistics. I hope people come back to give us good news.

Dr s' plan for me is 25 mg of pred from ovulation and to continue on that dosage and add intralipids from Bfp. With this pregnancy I didn't start the steroids until nearly five weeks so let's hope it makes a difference.

I'm a bit worried about having to use opks etc did you all use them or did any of you just estimate when you would ovulate from typical cycle length ( for me that's cd19 hmm)

Also just doing some research. I'm apparently heterozygous mthfr, which Dr s wasn't worried about but I've picked up some methylfolate instead of folic acid just in case. I've also come across a supplement called wobenzyme which gets very good reviews with regards to helping people suffering from recurrent miscarriage due to immunological problems. I wonder if it's worth trying them?

Sunandrainbow Sat 23-May-15 21:23:53

Thanks for he new thread brummie. Stats:

Me 38, dh 37 ttc #1 since jan 14:
Apr 14 Mmc1 at 11 weeks, fetus 7, erpc
July 14 Mmc2 8 weeks, bo, erpc
Jan 15 Mmc3 8 weeks despite hb at 7, fetus 7, erpc - trisomy 22
Apr 15 Mc4 5 weeks, natural

Currently 7 weeks pg and fetus measuring 6. Scan again next week to see if ovulated late or if this one is struggling too. In pretty dark place at the moment as all seems too familiar.

Wadsy Sat 23-May-15 21:27:14

Thanks for the new thread/stats Brummie and March

Me:36 DH:38

Ectopic 7 weeks 2010
Chemical 4w3 2011
DS born 2013
Miscarriage 5w2 March 2014
Chemical 4w3 November 2014
Chemical 4w3 April 2015
Currently 5 weeks pregnant

Factor V Leiden blood clotting problem, low progesterone, low AMH

Bubblybubbles80 Sat 23-May-15 21:29:36

Sunandrainbow try not to worry too much hopefully you just ovulated late.

Justonemoretime Sat 23-May-15 21:30:36

Thanks for the new thread, and for compiling the stats lists. 17 pg, eh? Impressive!

More on my stats: I think I fall into a category of women who have implantation problems. I don't think I can get a decent placenta going. The only two pgs that got past 7 weeks were on baby aspirin (pre conception - not recommended - that pg mc'd at 13 weeks, baby died at 10 and was turner's syndrome) and my most recent pg for which I took heparin from 5.5 to 13 weeks, along with 200mg progesterone twice daily from bfp to 6 weeks, then 400mg from then to 15 weeks (weaning off towards the end).
Scott was born prematurely at 33.6 after repeated bleeds from 26.6, and, after my c-section, the surgeon said that the placenta was oddly shaped and coming away. My theory is that the heparin and progesterone helped me to get so far, but that the problem has always been in my ability to grow and maintain a heathy placenta. Scott is doing well in the neonatal unit, and we hope to be able to bring him home next week.

Bubblybubbles80 Sat 23-May-15 21:47:50

does anyone know whether there are any issues if the mother is o positive i have read some mixed things about blood group o and m/cs

Bubblybubbles80 Sat 23-May-15 21:50:48

www.dailymail.co.uk/health/article-1323793/How-blood-group-affects-chances-baby.html

mrsdiddlydoo Sat 23-May-15 21:54:34

Thanks for the new thread brummie and the updated stats march

Me:

34, dh 33, 1ds 27 months. Ttc#2 since Oct 2013. Natural mc end April 14 @ 10 wks. Eprc end Nov 14 at 11+5. Currently 10 wks pregnant. On Coventry protocol for normal unk cells, i.e. progesterone and heparin.

Totally fed up of shoving things in places I shouldn't have to and daily injections. I'm super grateful for the benefits they may be offering, but really. Then on the other hand I'm panicking about stopping taking them. Just realised I'm due some more cyclogest. yay I'm getting over a bad cold and currently trying to avoid googling flu, fever, sickness and mc. Oh and stop start symptoms. Sorry bit of a pity me post.

brummie I'm sure you can overcome things with trying eod or few days (I'm staying positive). We've had some tricky months. It's hard. The pressure is immense. I always avoid telling dh when I think ov is due. After bad months we've talked about things and then come up with a plan of action like when we'll be dtd so I'm not putting extra pressure on by being a mardy cow when dh says he's too tired.

bubbly sorry about the baby bomb from your friend. Its always hardest with friends and families. After my mcs I always find the night times the hardest. Alone with all my worries and heartbreak. Even now I'm pregnant I can't sleep a wink worrying. Starting a journal sounds like a really good idea. Be kind to yourself. Have you thought about counselling? Echo march sod the family. They don't matter. You do.

girliesaints Sat 23-May-15 21:57:44

Thanks Brummie for the new thread.

Here's my stats;

Me & DH 37. One Dd born Jan 11. Straight forward pregnancy.

Ttc since Jan 14. feb 14 cmc, May 14 Mmc 9 wks, sept 14 Natural
MC at 11 was after hb seen at 6 was

Currently 8 wks pg with twins (!) but following poor scans over past two weeks expecting confirmed 4th MC next week. Still praying for miracle in meantime ��

Bubblybubbles80 Sat 23-May-15 21:57:54

i was thinking about counselling I'm just trying to sort my self out physically first. there are some miscarriage groups at the epgu they gave me the details. i find this forum really helpful too.

MorganLeFey Sat 23-May-15 22:15:20

I think it's time for me to de-lurk now there's a new thread & we're definitely "recurrent"... Embarrassingly feel like I know you all already but to introduce myself:

29 (not for much longer), DD, 3MC

The longer story is straightforward first pregnancy then 3 miscarriages in under a year. Seem to conceive quickly (?hyperfertile), the 2nd miscarriage was probably a blighted ovum as only ever saw a gestation sac & it all happened naturally starting around 6/40 but the other two were missed miscarriages after seeing a heartbeat on early scans & getting to 8-9 weeks growth. I needed MVAs under local anaesthetics for those. So I'm thinking perhaps an acquired auto-immune clotting or NK type issue. I'm also probably fairly PCOS-y (& the weight gain since the MCs won't be helping!) so could be hormone imbalance too. Last foetus was tested & genetically normal 46XY - is it wrong to feel more heartbroken when it's the sex you haven't had? sad

I've been seen at Mr S's NHS clinic - waiting on results from that. & also turns out DH's work insurance will cover some investigations privately as a gynae issue so private appointment lined up too.

Currently on their baby aspirin, vit d, extra omega 3 & preg vitamin cocktail while waiting for results & whether to try pred from ovulation & others from BFP. AF took forever after the last MVA but hoping I'll have a plan/prescriptions lined up to start TTC-ing again this cycle - though Sod's Law it'll take ages for another BFP now!

Feeling quite anxious about TTC now so have a session lined up with a counsellor for the first time next week... & pinning hopes on that or I'm going to be a wreck.

SashaKerr Sat 23-May-15 22:15:30

Hello! Stats are quite an eyeful. But I take hope at the number of babies yey and pregnancies yey yey and also the fact that the MC numbers although horrible aren't in double figures or anything - they are bad but we will cope. Tonight I feel like I could just about take 1 more. Is that a really f*,¥{•d up thing to say?

A nice thing today - I got nominated as best baby blog at the mad awards. No hope in hell of winning, but I must have been nominated through someone liking what I wrote about miscarrige which means something. If it means a few more people read about it - and I want the world to hear us - then it's a good thing.

Otherwise march I think it was you said something about needing to love yourself more? I totally feel that. Have lost all confidence and love in myself - my looks, my body, my strength, my value. It's hard as miscarriage makes you feel like a failure. I want to believe in myself again.

Anyway. Love you ladies xxx

SashaKerr Sat 23-May-15 22:26:24

Oh my stats.

Me 37, DH 38
1 DS born March 2013
Trying for a year now
MMC1 @ 12 weeks August 2014 (stopped 9 weeks) - erpc
Mmc2 @ 9 weeks December 2014 - merry Christmas (stopped 6 weeks) - Erpc
Mmc3 @ 8 weeks April 2015 (stopped 5.5 weeks) - Erpc

Waiting for af so I can try again.

Seen private consultant on Bupa who had done clotting (clear) and will do hormone tests. Has prescribed chlomid but I'm not going to take. Will give me extra progesterone if I'm low around CD21.

Seeing NHS RMC at start of june.

Seen consultant at the lister for nk cells testing and genetic karotying. Waiting results. He has agreed to follow Coventry protocol - ie progesterone from 7dpo plus heparin and aspirin from bfp. Will make me feel like I'm doing something.

I worry though this won't help with my hormonal imbalance which just feels out of whack.

I am also worrying that I'm worrying and that I'm being obsessive.

I'm also seeing a homeopathic consultant, doing reflexology and raiki, doing Bowen technique, and seeing a counsellor once a week.

I'm taking agnus cactus, pregnacare, evening primrose oil til ovulation and valerian extract for the stress.

tannyLoo Sat 23-May-15 22:44:50

Absolutely we need to love ourselves! Keeping going takes so much emotional stamina!

My short stats are below, and I'm on my phone, but basically five early MCs in just over a year after two successful pgs 12 years apart. After a break, acupuncture and Coventry (pompoms are getting a bit tired looking!) I had a successful pg on their protocol and have a beautiful baby Bertie to show for it grin

The help, advice and support from everyone here past and present has got me through so much.

Snoopysimaginaryfriend Sat 23-May-15 22:54:22

sasha do you think the valerian has helped at all? My mum bought me some after I broke down after the second mc but I haven't tried it yet.

According to my gp I'm not depressed I'm just grieving and need to take care of myself hmm let's see her try and take care of herself when she's working shifts with half the staff we had two years ago and dealing with violent, aggressive people who either want to hurt you or hurt themselves. I spent more than an hour last week trying to talk a woman out of cutting herself and the whole time I was thinking 'how come you can think of all these hopeful things to say to a stranger but you can't change the script in your own head'.

I so need a new job.

Minnie74 Sat 23-May-15 23:01:41

Thanks for the new thread brummie/march 17 pg and 5 babies- that has to give hope doesn't it!

Anyhoo stats as always
Me 40 Dh 42
MC1 2010 @6 weeks
DS born 2011 (few small bleeds early on but fine)
MC2 Aug 2014 @6 weeks
MC3 Mar 2015 @12 weeks hb seen @7 and 10 wks. Baby tested and was sadly abnormal.

Waiting for Coventry results and been prescribed high folic acid and aspirin by local RMC. Not taking aspirin though as bad reading with regards to causing MC and Prof Q at Cov said def don't take it.

Af today so first cycle of ttc starts now! Nervous, worried and trying to be optimistic!

SashaKerr Sat 23-May-15 23:03:39

Hey snoopy well I am a stress head generally (with a stressful job too) and I remembered this morning that with my successful pregnancy id been getting stressed about not getting pregnant so had taken Quiet Life (valerian) which id taken during my wedding as I'd got quite anxious. I got pregnant that month. It just made me feel more relaxed. I started taking it again today but want to keep doing it. Cortisol can't help with hormonal imbalance.

You know what? Your job is amazing - you are brilliant to do it. I can't imagine how stressful it is with the cuts. But.

I spent an hour this evening counselling a friend and I actually felt really relieved not to be talking about bloody babies and my testing.

I spent the morning at a class for 2-3.5 year olds and everyone with a kid in class had a baby or was pregnant. It was horrific and I couldn't stop calculating baby bumps and kids ages and thinking 'if only...' 'I would be...'. Sometimes a stressful job can be good to take your mind off. IF you also enjoy it. Do you? and can you take it easy if you need to? Do they know and is it the sort of environment where they would help?

MrsConfusion Sat 23-May-15 23:10:34

Thanks for the new thread, wow what a chatty crew!

My stats:
Me 35, DH 36
DD born October 2012
TTC since Jan 2014
MC1 August 2014 (13 weeks, cystic hygroma picked up at 12wk scan then died 2 days later. ERPC. Genetic testing clear)
MC2 Nov 2014, 7 weeks, natural
MC3 March 2015, ectopic, estimated 6-7 weeks.
RMC is doing blood tests (no results yet) and uterus scan but consultant not expecting to find anything.

I really like the mantra to love ourselves more. MC shakes the utter core of who you are and how you relate to the world, and it's hard to find the strength to rebuild it. But we must, and we will. A lovely friend got me a necklace with this AA Milne quote which I wear when I'm struggling "you are braver than you believe, stronger than you seem, smarter than you think."

Hugs to all x

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