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Waiting for post mortem results... after 18wk loss.. want to pass the time with me?

(5 Posts)
cupoftea123 Wed 01-Jun-11 22:01:04

I'm not in a really bad state as I have been on the other occasions I've posted on here, but as the title says I'm waiting, for what feels like a loooong time to get results as to why our baby died. To be honest it's not what happened that is what I'm needing to know but what will happen in the future. Our baby had a cystic hygroma( and an overly anxious mother of mine has told me (from what she found on the internet) that there's a chance it's a genetic problem which would mean there could be a 50/50 chance of a similar thing happening again. Joy.
What I've read about this - an excess of fluid on the baby's head and neck - is that it's linked to downs and turners syndrome, or sometimes not at all, some babies are born with a lump of extra fluid on their neck and the procedure is to remove it surgically when they reach toddler age. There are other cases of baby's growing these things in the womb but then they disappear later on in the pregnancy.
Anyway... I have three weeks to wait to see if the results have come back so I have a bit of time to kill, if there are any of you who are recovering from a late loss or who have experienced something similar and would like to pass the time with me I would be very pleased to meet you.

Henrythehappyhelicopter Wed 01-Jun-11 23:18:34

I am so sorry for your loss.

I lost my baby at 24 weeks, 11 years ago. The results showed that my baby had no abnormality.

I am sorry I know nothing of cystic hygroma, but I know how awful it is waiting. I hope someone more knowledgeable comes along soon.

I wish you all the luck in the world with your future pregnancies. I had a DS 10 yeara ago.

cupoftea123 Thu 02-Jun-11 10:27:01

Hi Henry,
Thanks for your positive message - I do just want to get on with trying to have a healthy baby, it's frustrating being 'on hold'... my friends have told me to give my body a rest, but my body feels fine and wants to get busy!!!
I'm hoping that the results just confirm our suspisions that it was a one off mutation of cells at somepoint at the beginning of the pregnancy. I have been able to let go of our baby girl but I really really need to have hope for our future that I will be able to give birth to a healthy baby.

graciousenid Thu 02-Jun-11 11:49:51

Hi cupoftea, I'm so sorry for your loss sad

We lost a little boy at 17 weeks in July 2008, which seems like a very long time ago but also like yesterday. In our case the baby was 'normal' but growth restricted due to a very abnormal placenta - it was bigger than a full term placenta but not really functioning. I have APLS & immune issues & they believe that was the underlying cause. The APLS has led to 5 other losses too sad but I do have three living children & am now nearly 36 weeks pg with number 4. I conceived very quickly after we lost our son; the pregnancy was a nightmare emotionally but I felt so bereft I couldn't wait.

cupoftea123 Fri 03-Jun-11 12:20:22

Hi Graciousenid,
Thanks for your message, I'm sorry to hear of your losses, but heartened to hear that you have healthy children. You're really near your due date with your pregnancy - I'm excited for you and wish you all the best, I'd love to hear how you get on...
I just tried to google APLS but am not really any wiser... I'm pretty eager to move on and get pregnant again, and I know I'll be nervous, but the drive to get going again is really strong. I feel surprisingly well in myself, i've taken a good amount of time off work, I have emotional support and it's summertime, I can't go anywhere without seeing little lambs, or calfs or yesterday evening I saw a gorgeous little foal. I don't think I'm in deniel over the loss of our baby girl but I really really really want to have a child of my own. I'm 33 without children so far. I guess if we're not able to have children that will be another kettle of fish, I'll be devastated and will need to grieve but I know in time I would be able to accept it, as there are other ways of having families like adoption or fostering. I just want to know where I stand I suppose...

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