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Services any good for high functioning autism?

7 replies

kylebella · 15/10/2017 16:02

My son is 12 years old and has a diagnosis of aspergers-the area we live in at the moment is terrible at supporting children who are high functioning we have survived without any support from our local LA or his local secondary catholic school am thinking of moving to Sheffield or Derby/shire to be near my brother, does anyone have any knowledge of secondary schools in this area that are good at supporting asd without an ehcp plan, any social groups, sports clubs so my son and I can meet like minded people any groups for children with challenging behaviour? Hopefully it can't be as bad as where we live now thanks

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PolarBearGoingSomewhere · 16/10/2017 02:10

Hi

I have no idea about schools I'm afraid but the Derby Autistic Fundraising Group is a good place to start. They run a monthly meeting called Billy No Mates for children aged 12+ with autism to go and meet new friends. There is quite an active community and I know a friend of mine is helping to set up a parent forum for Derby. www.facebook.com/Derbys-Autistic-Fundraising-Group-442423312572866/

Also have a look at www.facebook.com/AutismAwarenessDerbyUK/

Hope this helps a little. Good luck with everything!

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kylebella · 16/10/2017 08:13

Hi polar bear thanks for this!!!!

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Schroedingerscatagain · 16/10/2017 09:00

In a nut shell, no!

I live on the Derby / Derbyshire cusp so have schooled in both and know a number of mums in the area with similar dc

Funding services and support are next to nothing even with EHCPs access to camhs impossible unless your dc is at risk of suicide

As we have a catchment area system here you would need to find the right school and move into the close area surrounding it

With so few actual attatched units for hfa you would need an EHCP to access a place and even then there would be no garauntee as there simply are not enough places available

There is a social group for teens run by the umbrella charity which dd loves but very little else

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kateandme · 20/10/2017 10:34

derby funding is shit.your right at the bottom of the rung for anything mental health,emotional.asd.its shocking.

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Ellie56 · 19/11/2017 01:35

You could look at:

The Ecclesbourne School -Derbyshire
(highly oversubscribed - you would have to be in catchment to get in unless you have an EHCP)

Allestree Woodlands School - had a new SENCO in recent years and has reportedly improved since. (Derby City)

Bemrose School Derby - has enhanced resources for students with autism (Derby City)

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Schroedingerscatagain · 20/11/2017 22:17

Wouldn’t recommend Ecclesbourne for ASD, had to remove my D.C. as there was no support

I have friends with asd dc at Woodlands who say senco is very supportive but realistically in Derby without an EHCP you’re generally stuck in your catchment school

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NicciRobinson7 · 03/05/2018 10:16

Hi,

I am in mum in Derby that have been trying to get a Safe and Sound Protocol (SSP) provider in my area. While on the SSP Facebook forum a service provider from Seattle said that she would be visiting family for 2 weeks (end of July, beginning of August) and that she would help us while she is over. I have the flyer with the information which I can email to who-ever is interested. If you don't know what it is - here is some information:

The SSP was develop by Dr. Stephen Porges at University of North Carolina at Chapel Hill School of Medicine in his research lab. It has been tested and refined for over 15 years.

The Safe Sound Protocol (SSP) is a non- invasive intervention that involves listening to filtered music. The music has been ï‚· processed specifically to exercise the tiny stapedius muscle in the middle ear that ï‚· plays a role in how we process speech, facial expressions, and other social cues. By exercising this muscle, if it is weak, children and adults who struggle to regulate their response to stress, emotions, or auditory information begin to feel a sense of safety and the ability to socially engage, instead of withdrawl. The SSP is a research-based therapy that has shown significant results
from immediately after treatment, for up to 8 weeks, in the following areas:
 Social and emotional difficulties
 Auditory sensitivities
 Anxiety and trauma-related challenges  Inattention
 Stressors that impact social engagement
Clients and parents are reporting the ability to better interpret not only human speech, but, importantly, the emotional meaning of language. Once interpersonal interactions improve, spontaneous social behaviors and an enhanced ability to learn, self-regulate, and engage are often seen and more successful learning.

What are some of the features beyond sound sensitivity and social engagement issues that I might consider in choosing the SSP?

Associates have had good results with clients who have learning and language challenges, inattention, hyperarousal, auditory processing
difficulties, vestibular and tactile sensory over- responsivity, anxiety
and poor state regulation. These features are seen in many conditions such as autism, ADD/ADHD, Down Syndrome, mild traumatic brain injury, Misophonia and experience with trauma or anxiety.

For more information: integratedlistening.com/ssp-safe-sound-protocol

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