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Multiple System Atrophy

(5 Posts)
BiscuitBeast Tue 27-Jun-17 18:31:00

Can anyone share their experiences of caring for someone with this?

I'm feeling helpless and completely out my depth.

Thank you.

Babyroobs Mon 03-Jul-17 23:11:44

Has your relative or yourself been newly diagnoses with this ? have you got a clinical Nurse specialist whom you can talk to?

cupidsabsolutepsyche Thu 12-Oct-17 10:39:35

Hi OP, I don't know if you're still here, but I have some experience of MSA, my FIL was diagnosed around 18 months ago.

I can try to answer any questions you have, and in the meantime, offer a handhold to you flowers

LeastOriginalUsername Wed 22-Nov-17 23:43:31

I'm sorry for stumbling on this so late ... I have experience of this with my DF; please let me know if I can help in any way

BiscuitBeast Thu 07-Dec-17 21:30:42

Sadly my beautiful mum passed away yesterday morning. It's been a very tough 6 months. She was actually diagnosed as having Progressive Supranuclear Palsy (PSP). Very similar to MSA.

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