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Pulmonary Hypertension

(10 Posts)
ggirl Sat 28-Jan-17 23:50:37

MY FIL was diagnosed with PAH -idiopathic 6 months ago.
He has not been offered any treatment as yet other than continuous O2 .He is now waiting to be seen at the Royal Brompton , he's hoping that he will be offered some treatment to alleviate his symptoms .

Has anyone got any experience of drug treatments used?

ggirl Sun 29-Jan-17 15:57:16

bumping for traffic

Welshgirl40 Sun 29-Jan-17 15:59:32

Can't really help, but bumping for you. flowers

PacificDogwod Sun 29-Jan-17 16:02:09

It all depends why he has PAH tbh.

Diuretics are often used, b-blockers, ACE-Inhibitors, but you really need to get accurate info from his treating ?cardiologist.

Is he in hospital or at home?

ggirl Sun 29-Jan-17 17:14:40

it's idiopathic , so they don't know why, he's had a multitude of tests ,is on diuretics but not massive dose as kidney function was affected.
He's at home , not able to mobilise without chest pain and his sats are shit when he mobilises even on O2 sad

cardiologists at local hospital have referred him to Brompton specialist centre , which we're waiting for appt .

ggirl Sun 29-Jan-17 17:16:14

wondered if anyone had experience of prostaglandins ?? I am hoping they will prescribe something and it will give him some semblance of life quality back.

PacificDogwod Sun 29-Jan-17 17:21:00

Here is some info on Prostaglandins

Sorry, I am no expert. I think you need to wait until he has been seen at the Royal.

He sounds quite ill - I am so very sorry thanks

ggirl Sun 29-Jan-17 17:55:31

thank you PacificDogwod

MabelFurball Sun 29-Jan-17 21:37:29

He will be in good hands at the Brompton. Their care is second to none. I hope he gets the appointment soon.

ggirl Sun 29-Jan-17 22:11:08

thank you that's very reassuring

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