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Seton Stitch Support

(35 Posts)
ChristmasBadAss Thu 15-Dec-16 15:33:11

NC'd as it's a personal subject. Does anyone else out there have a seton stitch for an anal fistula? I've had mine 6 months today and I've felt so alone as it's not the kind of thing you want to talk about in RL, I don't know of anyone else who has one, wondered if anyone would appreciate a support thread?

Bmc26 Wed 15-Feb-17 02:35:02

Hi. I just had a seton put in on Friday (2/10/17). I don't have anyone to talked about anything since my absess in August.

ChristmasBadAss Fri 17-Feb-17 08:16:00

Hi BMC, I nearly missed your reply as it had moved so far down my timeline, so glad to have spotted it! Good to hear from you, how is your seton doing and how are you feeling? I'm so sorry you don't have anyone to talk to but I hope I can be a understanding ear for you. What was the story with your seton? My story kind of started when I fell pregnant with DS in 2015. I'm in my early 30s and had always been really healthy, but during my pregnancy I had a sore backside on and off, but every time I thought about going to the Drs it got better and I assumed it was just normal pregnancy piles and would go away after pregnancy. However, when my waters broke at 33 weeks (PPROM) the Drs checked my blood for infection (a leading cause of PPROM), tests showed a low level of infection. As my backside wasn't hurting at that time I didn't really connect that this might be the source of the infection but I remember the Dr saying that as they couldn't find the source of the infection to be aware that something may appear in the near future and I had a real sense of foreboding that this would be the start of a long journey. After a few weeks in hospital due to his prematurity my amazing DS was able to come home in time for Christmas, but sitting feeding him all the time seemed to bring back the ass pain. By February 2016 it got really bad and after a couple of Drs visits and an MRI scan it was found I had a big abscess (5cm by 2cm) on my sitting bone that had been difficult to feel by Drs due to its situation

. I had immediate incision and drainage followed by 4 months of daily visits to the nurse for packing. The cavity kept healing to a point then breaking down again which I found really distressing. In June 2016 my CRS did an EUA and found a low lying fistula had formed so my seton was placed at the end of June 2016. I was so upset about having the seton at first, but after a few weeks I got used to it and was so happy and relieved that the abscess cavity then rapidly healed and the daily packing visits finished at the beginning of August 2016. In October 2016 my CRS replaced my seton to make it smaller and easier for my body to push out through the small bit of muscle that the fistula had crossed through, and then just last week I finally had my seton removed and the fistula laid open to heal. The last week has been stressful going back to having an open wound next to my ass, but I've been sitz bathing and showering it 3 times a day and, touch wood, it does seem to be healing. I'm hoping and praying this healing continues and I can see the end of this horrid episode!! The last year has been a pretty stressful but it has made me realise I'm braver than I thought, and also it's made me much more humble about other people with conditions and how lucky I've been to have access to health care. I really hope your seton settles down quickly and starts to do it's job, if you have any questions or want to talk I'm here flowers

Bmc26 Fri 17-Feb-17 13:56:02

I'm still adjusting to it. I'm finally starting to not hurt as much thankfully as I go back to work on Tuesday.
In August, 2016, I started getting alotof pain in my backside; I went to 3 different Dr in one week, all seemed to just brush it off as my sciatia. After trying to self treat the pain with no avail I finally had my husband drive me to the hospital as I felt like I was dying and had a fever of 104.3, just listening to my symptoms and seeing my pain, the triage nurse took me right back to a bed. They ended up sedating me and draining the absess from my left lower side, about an inch away from my anus. From what the ER doctor had said it was about the size of his fist.
Luckily, I was able to do self care myself as it didn't require daily packing; just a bandage covering and sitz bath multiple times.

After months of seeing the general surgeon I was referred to by the hospital multiple times; he finally booked a surgery to lay it flat. I came out of the surgery to find out that he wasn't able to lay it flat, and that he put in a Seton. If it's a draining or a cutting, and I don't go back for another 5 weeks to see him in the office.

Aww how old is your DS now? How has it been with your recovery? I have a DS who will be 3 in April, he's quite busy but luckily my mom has been super helpful this week with him.

ChristmasBadAss Fri 17-Feb-17 20:49:42

You poor thing, sounds like you've had a horrid time of it, especially getting so ill before it was detected. The week that my abscess was confirmed and drained was the most painful week of my life, I was on multiple painkillers but I couldn't do anything to escape from that pain. I didn't have a temperature, which I think is why my scan took a week to organise, but looking back I was ill from DS's birth onwards; I was constantly shivering and would sit with my thick dressing gown over my clothes with the heating on full and the hairdryer blowing onto me as I just couldn't t get warm, DH would get home from work and ask why the house was like a sauna but I thought it was due to newborn sleep deprivation! confused

Weirdly my abscess was also on my left about an inch from my a hole. blush The CRS described it as being at the 2 o clock position. It's such a nasty condition to deal with and made worse that it's hard to explain what you're going through to other people as it's such a complicated and undignified thing. It's really nice to hear from someone who understands the reality of living with the condition! My DH and DM have been amazing and have a good understanding as they've taken it in turns to come to my appointments with the CRS. The rest of my family and close friends have been supportive but the amount they know varies as I've tried to preserve some dignity! My boss knows that I'm having treatment to fix the damage done by an abscess on my 'pelvis' that occurred in pregnancy, they haven't pushed for details and have been really flexible about time off for appointments/surgery and me working at home a lot to avoid discomfort sitting at a desk. I hope your return to work goes ok. When I had my first seton in June I was still on maternity leave. When I started back at work in August with my seton I was quite nervous being in the office, I found it helped to have an emergency kit in my bag with flushable wipes, a small magnifying mirror, hand sanitiser, cotton pads, dressings and sanitary pads. I never had need to use them as by then my seton was draining very little by then but it just gave me confidence being away from the safety of my own bathroom! What does your work know of your condition? I hope they're being understanding for you.

My DS is now 15 months. He's an absolute joy and the light of my life. grin It's definitely been hard work getting grips with motherhood and dealing with these health issues at the same time. I've tried to time changing dressings and sitz baths with his naps, but there have been some especially stressful moments when he's woken screaming wanting to be held and doesn't understand 'mummy will be two minutes, she's just changing her bandage')! But generally he's a very calm little boy which has made things easier, he's given me a reason to get up on days when I've been fed up with a lack of healing progress and has been a great distraction from dwelling on things! I hope you're looking forward to your DS's birthday! It must have been difficult juggling health issues with a toddler?

My recovery from the laying open is going ok, it was quite painful and bled quite a bit for a few days but the pain and bleeding have died down a lot over the last few days. I went to see my local nurse on Wednesday (1 week post op) as I just wanted her to check it looked healthy, she was really reassuring. I know her very well after 6 months of daily packing last year, she said she was happy to check it anytime as she understands how much I worry after all I've gone through with it, so I might go back next week since I don't see the CRS again until 8 weeks post op.

I really hope you're doing ok, how long did your surgeon say your seton would need to be in for? Know that I'm thinking of you and wishing you lots of healing! flowers

Bmc26 Fri 17-Feb-17 21:29:00

Fingers crossed for you... I'm sure you're rocking the bum issues and baby and sounds like our have a great support. God I miss Naptime lol. My DS is pretty good with self entertainment at this point, I tell him mommy has a booboo on her bum and that I have To go have my special potty time. He's jealous of my sitz bath lol.

My DH and DM are quite helpful, especially this week with my son, that I am lucky for.
Yea I'm kinda nervous about not being as quick as before plus the desk sitting. Lucky for me it's just my office manager and the doctor so it's a small atmosphere and they understand. They've been so accommodating to everything and I even get him to order the tape I use to make the bandages cause band-aids are so expensive lol.
Lucky for me, two of my aunt's are nurses so if have any urgent questions I can just message them.
I was a little concerned about the pain and soreness so I saw my GP today. He actually had no idea what I was talking about and ended up googling it Infront of me🤔.... Not impressed lol. But I did speak to the surgeon office. Apparently it's okay and normal.... It sucks.. not sure how long it's going to be in for, I haven't spoken to him since before the surgery and don't go back to see him until. 3/24.

I'm glad you're healing well.. the end is near.

ChristmasBadAss Wed 22-Feb-17 19:11:53

Hi BMC, how did your return to work go and how is your stitch doing? I'm feeling pretty down tonight, I spoke to my surgeon as my wound doesn't seem to have changed much this week and is producing discharge. I'd hoped he'd just say that's fine and to be expected but he said he's concerned something is stopping it healing and wants me to visit on Friday. He said the most likely thing is an infection but there is the possibility the fistula has reoccurredsad I'm glad he's onto it quickly but am just so fed up with the whole thing. On top of that DS is teething and woke up every 30 mins last night, it's not been a good day for the bum or baby! confused

Bmc26 Wed 22-Feb-17 19:54:32

Aww I'm so sorry. It will be okay. Here if you wanna vent. Fingers crossed for you that it's not coming back.
Sadly I didn't end up going back to work yet. Idk why but it's affecting my sciatica and at times I'm completely out of it.
I definitely get the over it feeling. I'm in such a funk with this.
Yuck teething is not fun. Hopefully his tooth comes through quickly. Frozen watermelon really helped my DS.
Staying positive for you.

ChristmasBadAss Wed 22-Feb-17 22:11:17

Thanks for letting me vent BMC, it means a lot to have someone who gets how grim and emotionally draining this thing is! I'm sorry your sciatica is bad, I hope your stitch settles quickly and the sciatica follows suit. I'm trying not to panic about what's going on with my wound but I'm sure you'll understand this horrible thing has been such a process of two steps back that I've got in the habit of assuming the worst, sad praying it's just an infection and easily sorted with antibiotics. Tomorrow is my first day back in the office as I've been working from home since my op two weeks ago. I asked the surgeon when I spoke to him today if I'd be ok sitting down all day with possible infection but he was adamant it would be ok, I just worry so much about making things worse! On the good news front DS has been sleeping soundly so far tonight so hoping the latest teething round is over, going to try to catch up on my sleep too and hope that tomorrow my wound will miraculously have started healing! Hoping for your healing and staying positive for you too, we won't be defeated! flowers

Bmc26 Wed 22-Feb-17 22:27:23

Glad you got so antibiotics. Fingers crossed they work.
I hope tomorrow goes well for you. I think I'm gonna try on Monday. Tomorrow is the last day in the office for the week and the Dr had his wife coming in to help today.

Hoping your DS sleeps all night for you... Our night will be fun. with all the up and down in our weather here my DS has a cold. I kept him home from daycare today and probably tomorrow too.

It's a little better now but it seems to be swollen at the opening and the tie is a little unnerving. Lol I've been using a peri wash bottle between sitz baths.

Trying to stay positive on this end too.
We've got this. star

DontStopMovin Fri 24-Feb-17 19:56:17

Hope you're doing ok BMC, and that your swelling is improving and your poor DS's cold is getting better? I saw the specialist today, good news is the fistula is not recurring, bad news is some stitches he'd put in to close the side of the wound nearest the a hole to help healing have burst so the wound is now more open to infection which is slowing the healing down, so he's given me more antibiotics and some antiseptic liquid to put in my sitz baths to help, I'm going back to see him in a week and a half to see if it's any better. Feeling relieved he doesn't think the fistula has come back and glad he's optimistic that with this extra care it should start healing, but still a bit worried about what if it doesn't work confused Reassured to be seeing him so soon though to keep a check on progress cause I'm such a worrier left to my own devices! DS is back to his usual good sleeping self which has also made me feel a bit more human, although I didn't sleep much last night worrying what the specialist would find!

Bmc26 Fri 24-Feb-17 20:27:03

Omg that is such great news. Glad that it's not coming back.

It's not swollen now, there was a popping sensation yesterday in my sitz., I looked and the knot had shifted. It now looks like the elastic is cutting the opening bigger. I have to go on Monday to have the surgeon check it. It feels like it's cutting 😞

Bmc26 Fri 24-Feb-17 20:33:09

So glad your DS is doing better.Teething sucks.
I ended up taking him to the clinic as his fever kept jumping up and down.. he has an ear infection. He went to daycare today cause he missed his friends lol.

Mrsmorton Fri 24-Feb-17 20:40:17

You all sound amazing and so resilient. I clicked on this thread as bizarrely I had a dream about Setons last night (I think that's becyof a work project to do with them). Can I ask, did any of you ever find out why you got abscesses? Do they just "happen"?

flowers and healing vibes to you all.

DontStopMovin Fri 24-Feb-17 20:54:01

Oh no BMC, I hope you're ok. Glad you're going to get it seen on Monday. I know it's wayyyyy more easily said than done but try not to worry too much till you've seen the consultant and know what's going on (says me who just spent a week worrying about all kinds of outcomes that didn't happen in the end!). If there is an issue it's good you're getting it addressed quickly. Don't hold back in asking questions, I found it helped me today to have written down all the questions I've thought of this last week so that I could get them answered without forgetting anything. Sending lots of positive vibes your way flowers

Bmc26 Fri 24-Feb-17 21:08:13

Dontstopmovin
I'm definitely going to make a list to ask.
It's sucks cause I feel like I'm tensing and it's affecting my sciatica. The meds they gave me make me so anxious.
I'm pretty sore and it feels sharp when I move too much or a certain way. Needless to say if this keeps up I'm going to have to take sick leave from work, just have to get another Dr note and an ROE 😖 thanks for the vibes. Lucky for me my hub is off all weekend and super good with DS.
❤️ Staying positive

Mrsmorton, it just kinda happened.

Dontstopmovin Fri 24-Feb-17 22:17:32

I really hope you get some answers BMC, and glad your DH is about to help with your DS this weekend. Will be thinking of you on Monday!

Mrsmorton, thank you for the vibes and your kind words, it's not a condition I would wish on anyone. I don't know for sure how my abscess happened but I have a suspicion that it might have been started after I bought a bike a couple of years ago and immediately went for a really long bike ride having not ridden a bike in a long time. I remember having extremely bad saddle sore for a long while after specifically in the exact place my abscess was. It was soon after that I started to get occasional pain in that area, but the pain got much worse once I fell pregnant (although it was still on and off), so I wonder if the strain of pregnancy on my immune system meant a small infection got out of hand. I guess I'll never know and could be totally wrong, however some of the nurses I've seen have said that they do see a lot of pregnant women and new mums with these types of abscesses. Needless to say I'll never dare ride a bike again! Do you work with setons?

milkjetmum Fri 24-Feb-17 22:23:23

Just wanted to chip in as dh has had a seton in for 2 years now, had his 6th surgery yesterday (and another booked for 3 months time). Feels such a long road. I thought he had man flu

Bmc26 Fri 24-Feb-17 22:40:51

Thanks I'll keep you posted ❤️❤️❤️

Dontstopmovin Fri 24-Feb-17 22:52:18

Send our healing vibes to your DH milkjetmum, sounds like he's had a horrible time of it. We're here if you or he want someone to talk to flowers BMC, not sure if you worked it out but I'm ChristmasBadAss, had a name change as its not Christmas anymore!

Bmc26 Fri 24-Feb-17 23:25:10

Milkjetmom, hope your husband surgery goes well. Keep us posted.

Lol I figured dontstopmovin 😉

Bmc26 Tue 28-Feb-17 01:20:54

Well saw the general surgeon that out my Seton in, 2 ½ weeks go, today. He explained that my fistula goes quite deep and that there was too much chance of damaging the muscle if he had done deconstruction. He's sending in a referral to Hamilton, which is about an hour away in a different region, to see a CRS. Thankfully he's giving me different meds, I still have quite a bit of painful swelling, and am excited to try returning to work tomorrow. Fingers crossed that I can handle it.

Dontstopmovin Tue 28-Feb-17 21:24:41

Really glad you got some answers and are getting referred to a CRS, my CRS has been great, much better at explaining things than the general surgeon, and much better at giving practical advice/reassurance. My fistula also crossed the muscle which is why I got the seton, but over the 8 months I had it, it did its job as a deliberate foreign body and my body 'pushed' it out of the muscle towards the surface so they could lay open the fistula with damaging the muscle. I hope your new meds kick in and your seton can settle and get busy with doing its job too. Hope your return to work goes ok, I've been in the office for one day last week and today, it's gone ok and not been too painful sitting which has been a relief. Touch would my wound feels and looks like it's getting a little better, it's very slow progress but at least it's progress!

Dontstopmovin Tue 28-Feb-17 21:26:07

I meant without damaging the muscle!!grin

Bmc26 Tue 28-Feb-17 22:39:17

So glad that you're doing well

Yes work was great. The new meds were an automatic 180 difference. I was able to actually get down. And play with my son last night. I feel great. Fingers crossed I can hear from the CRS soon.

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