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Anyone on or had carboplatin chemo?

(12 Posts)
triplets Thu 06-Oct-16 22:32:09

Just been diagnosed with stage 1c ovarian cancer, also just had a full hysterectomy.........all been a whirlwind of stress. I start 6 cycles of carboplatin next Tues to mop up anything that may be left lurking. I have had my pre chemo talk and read all the literature but always find the best advice is from someone who has already walked in my shoes! Really want advice as to how to look after myself to minimise the side effects if I can, any tips? Still cannot believe I am going through all this after my dh being diagnosed with stage 4 bowel cancer 8 years ago, he is amazing....now in his 5th year of remission. Thank you. x

chewingawasp Sat 08-Oct-16 00:36:01

flowers for you.
Are you having any other drugs or just Carboplatin? I am having chemo at the moment (Carboplatin and Etoposide) and luckily have had minimal side effects so far.

chewingawasp Sat 08-Oct-16 00:38:36

You might find the lacies thread on the general health board helpful as there are lots of us on there going through chemo and other treatments.

triplets Sat 08-Oct-16 21:48:44

Hi just carboplatin.........the oncologist was happy with that, said I could have taxol as well but little evidence to show much benefit, no secondaries and all lymph nodes other biopsies etc were all clear . Poor you too flowers xx

namechangedtoday15 Sat 08-Oct-16 21:55:01

DH had carboplatin in 2000 although only 1 cycle. He was okay, didn't really have any specific side effects (although he was only 23 at the time so young and fit apart from the cancer) just felt wiped out with it. He's now 41 smile

Best wishes

triplets Sat 08-Oct-16 22:54:52

That's very good to hear namechange...xx

Twodogsandahooch Sun 09-Oct-16 19:15:16

Carboplatin alone is relatively well tolerated (I.e doesn't cause too many side effects) compared to other types of chemo and so hopefully it won't be too awful for you. X

Stopyourhavering Mon 10-Oct-16 10:53:01

Just be aware that your hands and feet may be less tolerant of cold....eg wear gloves if going to get something from fridge!!

Also drinking very cold liquids may give you a strange ( transient) sensation at back of throat
Do tell your medical team if you have painful fingers/feet when you see them before each cycle of chemo as peripheral neuropathy can be unpleasant and your drug dose may need to be reduced (temporarily)
Hope it all goes well

motherinferior Mon 10-Oct-16 10:57:02

It is generally pretty well-tolerated afaik - my mum had it.

I'm really sorry about your diagnosis but at 1c the prognosis should be pretty good, I hope? Best of luck. I'll be thinking of you.

Sandralovesmilktray Sat 15-Oct-16 01:31:46

Hi
I was diagnosed with 1c ovarian cancer a year ago. I had also had a full hysterectomy.
I had 6 X 3 weeks cycles of carboplatin & paclitaxol which began in November and ended in March this year. I can honestly say that the worst thing for me about chemo is that it was a bit boring on treatment days.
The dosage is managed really well from a side effect/sickness perspective these days. I was given steroids on the day of chemo and for a couple of days afterwards which did disrupt my sleep pattern a bit for a few days. I did also get quite tired in the second half of treatment. I did occasionally have a day or two when things tasted weird.
I lost all my hair but that was the paclitaxol so I think you should be fine with just Carboplatin.
I am 6 months on now and feeling pretty much back to normal. I did gain some weight possibly due to the steroids giving me the appetite of a horse but probably more likely be just eating more and moving less for a few months.
I'm now just being monitored (CA125) every 3 months for the next 2 years. Not sure of the frequency after that.
I felt really lucky to have been picked up at such an early stage. Prognosis is really very good at Stage 1.
I guess you have started your chemo by now so hope it's all going well😊

triplets Mon 23-Jan-17 22:44:29

Hi sorry I seem to have lost all track of time! Tomorrow is my final chemo already, cannot believe how quickly the time has gone. The only side effect I have felt is extreme tiredness, exhaustion......that kicked in after the 3rd cycle. CT scan booked for the 6th Feb and result on the 27th. Still cannot believe at times I have been through all this as I don't feel or look unwell. My oncologist isn't doing blood test or further scans, just up to me to report any worries or symptoms which worries me! Hope you are continuing to do well Sandra, may I ask your age? I am 64. xx

triplets Fri 14-Apr-17 01:25:48

Forgive me for disappearing. the last few weeks have been crazy. I did get my ct scan result, well 50% of it on the 27th Feb, my oncologist came to see me in my HOSPITAL BED! I spent 5 days in there with pneumonia, on iv antibiotics, I have never felt so ill. Anyway he told me he had seen my scan pics and "everything looks alright although I am not the expert" he said! He then told me he couldn't confirm it until he got the radiologist report, there was a 6-8 week back log to type them up! I eventually got the result three weeks ago, no sign of disease, thank God. I actually didn't feel any emotion.....I just went blank and still have not really celebrated. 4 weeks ago I got a lot of fluid retention in my left foot and leg, went back to gp. She said I was ticking all the boxes for a dvt! So back to the hospital and had a scan, no blood clot...........that was 2 weeks ago, still swollen so now on diuretic to see if that makes any difference, not so far. The cancer specialist nurse phoned on Tues and I told her, she has really cheered me up telling me it sounds like lympodema a chronic long term condition, probably caused by the removal of lymph nodes in my left groin during the surgery last summer. So been feeling just a little fed up as its getting uncomfortable, so that's what I have been up to! xx

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