I've been diagnosed with polycycstic kidney disease- stage 2-3- although my kidney function is good.
Riddled with cysts and they are growing- I now have some on my liver too.
They want to rule out an aneurysm (family history) so doing a brain scan in 3 months and have checked liver function today too.
They are talking about a drug called Tolvaptan (a prophylactic) , but have searched contraindications (liver disease- hence today's check) and there are plenty of side effects I do not fancy- chronic constipation, loss of strength and energy, brain fog etc etc.
I want to try to do something naturally - there are lots of accounts of people curing this disease naturally online.
I guess I am looking for someone else in my position who has opted against the drug route, which at best shrinks the cysts and stops new ones forming and at worst prolongs the need for dialysis by 3/4 years, but with much reduced quality of life.
Thoughts ladies?
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Life-limiting illness
Just had diagnosis of PKD
6 replies
cyprin · 11/05/2016 14:28
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