Hi
My 6 month old beauty is terminally ill with SMA type 1. Anyone else out there trying to cope with this at the moment?
I posted a thread about SMA but no replies, but wondering if anyone out there facing losing their child?
We are trying and mostly succeeding to focus on the joy and beauty of our gorgeous baby. It's obviously devastating and terrifying at the same time.
Our baby boy was diagnosed at 3 months and is now tube fed. His care is extremely intensive. Luckily my husband is off work as its a 2 man job really.
I have noticed threads for bereaved parents but can't find any for parents with terminally ill children, unless I'm looking in wrong bit?
Thanks in advance
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Life-limiting illness
Anyone else's child terminally ill?
28 replies
1980mamma · 23/08/2015 08:32
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