Talk

Advanced search

Mumsnet has not checked the qualifications of anyone posting here. If you have any medical concerns do consult your GP.

Spinal muscular atrophy

(3 Posts)
SarahKM1980 Wed 19-Aug-15 17:28:28

Hello,
I'm new to mumsnet but my baby who is 6 months old has spinal muscular atrophy type 1. He was diagnosed at 3 months.
We are trying incredibly hard to focus on all the joyful aspects of our situation, our baby is a smiley beautiful wonder smile
It's obviously incredibly difficult too.
I wondered if there were any other mums out there experiencing the same?
Thanks
Sarah

amarmai Thu 03-Sep-15 15:27:30

hi sara, your choice to focus on the +ve will help you every day . Hope you find a support group.

YellowDinosaur Wed 09-Sep-15 17:19:09

So very sorry to hear this. There is another mum here who is going through the same. I wondered if you might like to be in touch?

www.mumsnet.com/Talk/life_limiting_illness/2454376-Anyone-elses-child-terminally-ill

Join the discussion

Join the discussion

Registering is free, easy, and means you can join in the discussion, get discounts, win prizes and lots more.

Register now