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Lots of MN handholding please - relapse

(181 Posts)
DashingRedhead Sun 28-Sep-14 22:14:16

Hi everyone, some will have seen my posts in biscuits' threads and I know lots of you have very kindly passed on the word about my stem cell donor search. But now I need a miracle: the leukaemia is back but this time in my central nervous system.

This is not only very rare, it's also really difficult to treat: chemo intravenously but also to the central nervous system via the ventricles of the brain. It's really unpleasant, though I shan't care if it manages to cure it.

My husband and parents last week were told to start preparing for the worst. However, one of the consultants wasn't happy and I've been referred for a second opinion to the Marsden in the hope they may be able to treat me.

I'm so scared but at the same time feeling hopeful that at least they haven't given up yet. Any prayers, candles, support, good vibes you can spare, please please please think of me tomorrow. I have two DC who need their mummy and so much to live for.

beachyhead Sun 28-Sep-14 22:15:39

Prayers and thoughts for you.....

MakeTeaNotWar Sun 28-Sep-14 22:17:42

Sending you strength and love

Onedropoflove Sun 28-Sep-14 22:18:51

Praying for you xx

sunshinemeg Sun 28-Sep-14 22:21:16

Sending love and positive thoughts.

NewEraNewMindset Sun 28-Sep-14 22:28:03

I am so sorry to hear this. I can't imagine how you must be feeling sad. Sending much love to you and your family xxx

Muddlewitch Sun 28-Sep-14 22:33:01

Oh my goodness OP, sending lots of love and positive thoughts. Remember we are all here for hand holding whenever you need us.

Canshopwillshop Sun 28-Sep-14 22:37:39

Praying for you. Really hope that the Marsden can help you. X

DashingRedhead Sun 28-Sep-14 22:44:37

Thank you. I should be trying to sleep but just don't know if I can. It's great to know you're all there.

Wolfiefan Sun 28-Sep-14 22:47:14

Thinking of you and hoping the Marsden can help. xx

Petal7 Sun 28-Sep-14 22:52:45

You are in my thoughts and prayers x

Petal7 Sun 28-Sep-14 22:54:51

You are in my thoughts and prayers x

SquirrelSwarm Sun 28-Sep-14 22:55:07

Hand holding from me you dashing redhead

meerschweinchen Sun 28-Sep-14 22:55:59

I'm so so sorry to hear this. Will certainly be thinking of you tomorrow. Really hope the Marsdon can offer you some treatment x

RitzyTurnip Sun 28-Sep-14 22:56:07

Thinking of you and sending good vibes your way xx

ArtyBat Sun 28-Sep-14 23:01:53

Sending you the strongest of hopes for a positive outcome with Love and light to you.x.

MyPandaisasecretmonster Sun 28-Sep-14 23:03:21

Thinking of you & Praying for you thanks.

Beckamaw Sun 28-Sep-14 23:05:29

Lots of MN vibes from me too. You sound fabulously strong, you fantastic lady! X

bicky Sun 28-Sep-14 23:10:41

Thinking of you xx

SantasLittleMonkeyButler Sun 28-Sep-14 23:16:46

Prayers, thoughts and love to you from me. I hope there is some positive news tomorrow flowers.

CiderwithBuda Sun 28-Sep-14 23:33:46

Hi Dashing. I am sorry you are facing this.

I'm on the Poncetastic thread and I saw you on Biscuits thread too. I shared your Perfect10Match site on Facebook yesterday (I'm Irish although not nearly as exotic a mix as you!) and I signed up to be a donor.

I really hope the Marsden can help you.

vinoandbrie Sun 28-Sep-14 23:40:11

With love, thoughts and prayers, to you and to your little ones x

LinesThatICouldntChange Sun 28-Sep-14 23:40:47

I'm so sorry to hear this DashingRedhead. Sending masses of positive thoughts your way. The treatment sounds pretty incredible really... It's truly amazing what can be done nowadays. The doctors know what they need to do, and although it will be a tough regime, hold onto the fact that they are doing it because it can work!

And while I'm here, a plea to everyone eligible to sign up for the universal donor register. Stem cell donation is pretty similar to blood donation nowadays, it just takes a little longer. I'm donating next month and its the single most important and amazing thing I'm ever likely to do in my life.

Solo Sun 28-Sep-14 23:52:07

I'm really sorry DR that you are facing this battle. I have never seen you on MN before and have never interacted with you, but your post has made me cry. You are in my thoughts and prayers and I wish you well... thanks

Anyone got a link for the donor thing please?

catsrus Sun 28-Sep-14 23:53:53

lots of positive energy being beamed over from here too DR

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