My dad has had Parkinson's Disease for 10 years. In the last 6 months his condition has worsened, my mum looks after him at home. However just before Christmas he went into hospital after several falls at home and a urine infection. He is now very poorly with lung infection as well, on drip, feeding tube and not very responsive. We are taking things day by day.
My mum is heartbroken and just wants him home. However, she could hardly cope before and has always dismissed the idea of carers. If he makes it through this, what can we expect? Will he come home and have a care package set up or will he go into a home? I have no experience of this.
I have recently made contact with social services as I had to do something to help mum. But they have not called me back, I've called a few times, I feel this will be an uphill battle. Now that he is in hospital and will be harder to care for when he comes out (according to consultant), does he get bumped up the list? My mum says she will care for him 24/7 if he comes home, but I cannot see how she can do this.
Does anybody have any experience of this? What can I do NOW to help them? I feel useless. I don't live locally but we (dh and 2 ds's) have been between home and mum's all over Christmas/New Year visiting dad and we are going back tomorrow.
Also - as a footnote, the consultant also said he has a risk of aspiration from feeding tube, how does this happen?
I'm terrified of every possible ending to this situation, as nothing seems hopeful.
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Life-limiting illness
What happens after hospital for my dear Dad who has Parkinson's Disease?
12 replies
knightynight · 03/01/2014 15:38
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