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Diagnosed with PCSO at 16, vanished at 30... apparently

(5 Posts)
Mycrazylife85 Fri 29-Mar-19 21:37:44

Hello all. At 16 I was diagnosed with PCOS after blood tests and ultrasounds (internal and external). I had horrific skin and can’t remember my periods, but was put on the pill. At 30 I had 5 weeks of bleeding and was sent to the hospital for another ultrasound. As if a miracle had been performed the sonography announced there was no sign of polyscystic ovaries! Hurrah! Perhaps she didn’t take any notice of my hairs under my jawline and my balding hair (particularly at the front)

I am now off the pill and am on day 65. Happen to think that the lady was lying.

Not a sniff of anything stiring in my ovaries and I’ve had to start watching my weight properly as that’s creeping up. Half a stone on and eating less already. On the other hand I feel so much better being off it. Low GI and the gym for me though now.

I’m absolutely gutted that I hid in blissful ignorance and didn’t come off the pill earlier; sure, the shoulda, woulda, couldas and all that. My husband and I decided to come off contraception to ‘see what happens’. All I can see is a huge battle in front of me that I’d avoided for years, that I suspect will be my reality and that I wish would go away. I dread it all already. I’m not sure my husband wants it enough and I didn’t, until I suspected that it’s not going to be that easy.

I have seen conflicting information on how long to wait before seeing the doctor after not getting periods. 3 months/ 6 months. What should I do? I’m very much appreciate reading all of your views and stories. Thank you

Awittyusernameishardtofind Sat 30-Mar-19 04:11:05

Have you had any hormone tests? Ask your gp and see if they will do them for you and/ or refer you to an endocrinologist.
The sonogropher can’t make that decision purely on the fact that you don’t currently have cysts. It’s possible to have PCOS without cysts.

MooseBeTimeForSnow Sat 30-Mar-19 04:24:03

I was on the pill for a similar length of time. I did not have PCOS though. At 6 months with no period I went to see my Dr. He said wait another 3 months then we’ll look into it. My first period started the day before I was due to go back.

They were then really irregular. So irregular in fact, that I was 17 weeks pregnant before I realised.

AttilaTheMeerkat Sat 30-Mar-19 08:51:09

I was going to ask what a wittyusernameishardtofind wrote.

The cystic follicles associated with Polycystic ovaries can disappear, only to be replaced by further cystic follicles. PCOS does not go away of its own accord.

I went to the gp after having no periods for six months when trying to conceive.

Mycrazylife85 Sun 31-Mar-19 17:06:55

Thank you to all of you for your comments. It's good to read what you've put because I thought it was a bit of a nonsense when I had my last scan, but equally you do tend to accept what is said. I think I'll find the experience and suggestions from others invaluable and will no doubt enable me to ask questions at the doctors I probably wouldn't otherwise think about.

I'll give it a few more months and go when I hit 6 months. I'm not too sure how long it takes from the hormones from the pill to get out of my body and my own hormones to kick in. This could be a crazy ride.

I am encouraged by you all, thank you smile

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