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New year, new 'starting the journey' thread

(1000 Posts)
CloudSway Fri 22-Feb-19 21:08:11

I know there are a lot of threads about people starting out, but they were all started a while ago and everyone seems a lot further ahead these days.

So.... newbies unite?

DH and I have been ttc for 2yrs. Saw our gp who ordered blood tests and sperm tests. He gave us a boat load of info..... jokes, he was pants. Told me I was 'fine' and husband was 'not fine', only detail was that DH has 4mil out of a necessary 16mil sperm, mentioned ivf and referred us to a specialist. That's all the info we got. Today I had a transabdominal and transvaginal ultrasound. It was not the most fun 20 mins of my life but it was fine, now I'm trying to play Sherlock and figure out what the random numbers the radiologist was shouting about my ovaries meant. How about you?

Because I'm early stages, I avoided forums/Google etc because I'm prone to anxiety and didn't want to panic unnecessarily. Therefore apologies but I'm still trying to figure out all the abbreviations and lingo! Also sorry, I'm naturally sarcastic and a bit sweary, but that doesn't mean I'm insensitive - it would be great to share stories and support each other here smile

FinallytakingtheplungewithIVF Fri 22-Feb-19 21:36:14

Hi there,

I might be a bit further ahead of you but thought I’d reply! So I have a child previous relationship and have been trying on and off for a number of years! We have male dactor husband has no progressive sperm! I had an internal scan like you and have about 30 follicles so a lot more then the norm and was told I might have pcos had a day 21 scan and it suggested I ovulated so not sure I do anyway we are ICSI and starting in April! What did the doctor say about your scan?

Ps I am naturally sarcastic too 😊

Kelly199 Fri 22-Feb-19 21:51:20

Hi I have been ttc for a year. Had bloods at docs, hormone ratio over 3 and showed I haven't been ovulating. Sent for transvaginal scan and showed I have pcos with total of 38 follicles on ovaries. GP sent me for a referral to fertility specialist/gyn but up to 6 month wait so I have a private consultation on 1st then they will refer me back to nhs for treatment (whatever is needed), so still a waiting game trying to find out what lies ahead!

Bump2be Fri 22-Feb-19 22:50:45

Hi! We're almost due to start ICSI - we have male factor issues but with enough sperm in the freezer for ICSI. My ovary scans and my AMH level seem to be about right for my age, from what I've been told so far, but waiting to hear more at the next appointment. Just wish we'd started all this when I was a bit younger as then I'd have more eggs available. I'm wondering if I have enough for more than one ICSI attempt if it doesn't work first time and if we went private for the second and subsequent attempts. It's negative of me to think that, I know, but just trying to manage my own expectations. I cry a lot at the moment. A lot. And I'm not even taking any meds yet!!!

Kelly199 Fri 22-Feb-19 23:34:20

Forgot to mention earlier..partner has also had sa test which came back fine.
@Bump2be I know it's hard, try to be positive. Best of luck to you and everyone else! X

CloudSway Sat 23-Feb-19 08:29:02

Eurgh, the waiting game we have in store I think will be the hardest thing, it must be a weird mix of boredom and anxiety, everything is important but happens so slowly. Damn human fertility cycles. I heard possums have baby possoms 12 days after conception... confused

@finallytakingtheplungewithivf (hell of a username btw!) That sounds super confusing, like you say unsure of the pcos with those results... But bear in mind I know literally nothing, my method is wait for confirmation first before stressing about things, sounds like you can afford to be optimistic, how are you coping with it all?

No results from the scan yet, I have a gp aappointment in 2 weeks but to be honest he wasn't exactly useful last time so I'm going to take what he says with a pinch of salt until the specialist in a months time - I'm just realising how lucky we are to only wait a month, @kelly199 6 months is crazy! Def the right call to start of private. I know I'm a moron but I never knew about the postcode lottery until a few weeks ago, it's an absolute outrage!!

@bump2be it's okay to cry a lot, it's okay to do whatever you need to do, that's got to be healthier than bottling it all up. But you have enough to concentrate on without worrying about things like 'What if' I'd started earlier, you'll make yourself crazy if you keep thinking like that, I don't totally understand all your medical information but if they are moving forward and talking about attempts it has to be a positive thing, you are going in the right direction! Sorry you're going through all this shit though.

That last bit applies to everyone really x

Mrsmch123 Sat 23-Feb-19 12:36:19

Hey newbie checking in🙋🏻‍♀️We appear to have mfi. I have had 21 day bloods and transvaginal ultrasound all of which was fine. Awaiting hystoscopy. Oh has to take supplement for 3 months to see if it improves his count. Then it’s back to the assisted conception unit.

CloudSway Sat 23-Feb-19 14:04:15

Okay well that's good news then, got to grab those positives where we can! Are you nhs or private? Just learnt a new acronym- mfi! 🤓 Im same based on results so far, what supplements is your oh taking? Im wondering if we can shorten the wait by getting ahead on supplements... somehow I feel like it won't be that easy! For one thing we're both working on losing weight as I feel sure that's the first thing they'll identify as a barrier. Anyone else been restricted by their bmi?

Mrsmch123 Sat 23-Feb-19 15:37:19

He’s taking condensyl. £120 for four month supply🙈we are nhs. Was told that if his sperm count doesn’t go above 5 million then they will have to check to see if he is a carrier of cystic fribrosis🤷🏻‍♀️Have you been seen by the fertility team or is it your gp that has being doing the tests?i had my bmi checked the other day and we both had a carbon monoxide test. My bmi was just with in the accepted range🙈🙈

FinallytakingtheplungewithIVF Sat 23-Feb-19 16:46:11

@cloudSway i think because we have mfi I’m not to worried about if I do or not and as you have to have two out of the 3main symptoms which I don’t I think I’m ok! I think I am just happy now we have decided to go ahead and we are good to go I was only apprehensive about objecting myself not s big fan of needles and doing it my self made me very anxious, but after our meeting with the nurse the other day she let me try with a needle (obviously no motivation) as she said most people build it up in their heads which makes it worse and to be honest she was right it wasn’t that bad she said it might feel slightly different with the medication!

Re supplements we are just taking pregncare his and hers as well as trying to eat healthy and not drink as much not that we do in the week but weekends we like a few so cutting that back!

CloudSway Sat 23-Feb-19 17:55:30

@mrsmch123 Bloody hell, £140 for 4 months?! Makes you appreciate the nhs, imagine how much it would cost in USA! Glad you're on nhs, as far as I can tell my area doesn't offer anything, but the tests and scans so far have been nhs, requested by my doctor. Long may it continue... I expect when we get to the fertility team it might be a different matter. Carbon monoxide is a new one hmm but congratulations on being skinny enough to be allowed to procreate 🤣 even if we don't get told I know losing weight will give us better odds, but DH sticks at it better when he decides to, instead of told to..

Finallytakingplunge, great attitude, must be good to crack on with it already! Well done on facing the needles, glad its not as terrifying as you thought!! I'm feeling like pregnacare for twenty quid is more up my road than condensyl until I hear any different lol - cheapskate I know, but no point doing it if they end up recommending something different. DH has a cousin pushing homeopathic remedies in his direction, but that makes me very nervous, I'd rather he wait until our appointment, or is that just me? 😬

FinallytakingtheplungewithIVF Sat 23-Feb-19 18:18:47

@CloudSway thanks I am trying to keep positive I think it may change once we start and then I will probably be an anxious mess once we get to EC and then waiting and then transfer and waiting!
Also as I have so many follicles they are worried about OHSS so I’ll be worrying about that aswell!
In case you haven’t guessed I do like to worry but I also try and be positive that we have the opportunity to do this!
I agree I think as long as your doing what you can until you are told different that’s all we can do! At least that gives ya something to focus on and feel like we are at least doing the best we can!

My DH is the same been trying for months to make him eat better now all of a sudden it’s closer he on it!! Even though our first appointment was last Aug! Men hey lol!

Mrsmch123 Sat 23-Feb-19 18:26:16

Haha why thanks🤣Might make no difference to the numbers but at least we have tried. Yeh totally appreciate the nhs!My area does 3 rounds of ivf or icsi which is obviously really good. But shit for those who don’t get offered anything. To be accepted by the assisted conception unit we had to do the carbon monoxide test to prove we didn’t smoke. My gp only done the 21 day bloods and first sperm analysis the rest has been the acu at the local hospital.

GreyC Sat 23-Feb-19 21:11:21

Hi everyone! We are just starting our way. Had tests done o/h all ok apart from slightly hit & miss sperm (gps term..) waiting for my results now. Have been trying for a while now so impatient to find out results

Ells0204 Sat 23-Feb-19 23:06:23

Can I jump on please! @GreyC sounds like we are at a similar position in our journey!

About to start my 14th cycle TTC #1 (AF due tomorrow and she’ll most certainly rear her ugly head). This cycle last year I caught but had an early loss at 5+4 and not a sniff of a pregnancy since. Saw GP back in December and had Day 21 bloods in January, results came back fine no action required. GP won’t do any more until OH has SA which is booked for 2 weeks time.
GP being a bit blasé about it all and seems confident that “because I’ve conceived before” I’ll be pregnant before I need referring! I’m not so confident...

Feeling so deflated by it all. My closest friends won’t talk to me about it anymore and both mine and OH’s mothers sort of brush it off and say “oh don’t worry it’ll happen soon!”

I know some people have been TTC way more than 14 months so my heart really goes out to you flowers

CloudSway Sun 24-Feb-19 14:55:39

Hi greyC, when do you get your results? I think we're all going to have to take up knitting or something to kill all this hanging about time lol

@mrsmch123 ahhh suddenly the carbon monoxide makes sense (sort of) what happens if your boiler has packed up and you don't realise you're getting carbon monoxide poisoning?! (Silly question, I'm guessing you'd have bigger problems if that were the case lol. ) Honestly, I'm shocked about the postcode thing. For us it isn't a big issue as my parents conveniently died last year and left me some inheritance, but truly shit for those who don't have anything.
Obviously I'm joking it off, but it's nice to think that if we ever do have a baby, it will almost be a gift from my lovely parents even though they are gone!

Ells, how long did it take you to conceive first time round? The fact that you can is a pretty good sign, have you had any traumas or illnesses since then that might affect you? I'm sorry you had to go through the loss, must have been horrible for you

FinallytakingtheplungewithIVF Sun 24-Feb-19 19:52:42

Hi to @ells and @Greyc!!

How long have you been trying @GreyC? If you don’t mind me asking? What does the go mean by hit and miss? I think sometimes these people don’t realise this is our lives and saying something like that is not helpfull! If you want to share you DH results I can try and help based on what ours reveled?

@ells0204 sorry for your loss!! It’s is a lovely way to think of it though and you would be able to look at your baby and see your parents!!!

Hope everyone else has had a nice weekend it has been lovely here in the midlands!!

Xx

GreyC Sun 24-Feb-19 20:37:45

Hi everyone. I’m hopefully get the first lot back tomorrow and the day 21 blood test I’m having on Thursday morning.

Just over a year we have been trying without any sign of a positive test. My O/H is on SSRIs which apparently can have an effect but he seems ok. He’s had three SA done; 1st time just slightly below on morphology but everything else fantastic; 2nd slightly less amount but above the cut off for there to be a low count and third time everything was fine. So yeah ‘hit and miss’ and he said sometimes it’s a helping hand of having the good stuff taken out and used as even the poor shaped ones are good swimmers apparently.

I’m not sure what to think about mine; i use the strips and always get a positive the same time. Always have regular periods; etc etc but who knows hey!! I’ll trying to not fixated on anything untill we know for sure

Hello to everyone! And let’s hope we all have a relatively easy ride.

I’m also in the midlands ! Weathers been great. @finallytakingtheplunge

Ells0204 Mon 25-Feb-19 12:42:19

@CloudSway

Caught in March last year so our 3rd cycle TTC. I didn’t mention we had actually had a chemical before that but it was all over so quickly I think mentally I didn’t really have time to register it. But the 5+4 loss was very different, physically very difficult as well as emotionally. I cannot imagine the suffering of people who lose later on than that. Ended up with what I can only guess were contractions (or at least contraction-like pain, I was doubled over never been in that much pain!) on the toilet at home, and passed everything naturally. It is something I’ll never forget and the thought has crossed my mind that maybe I’m so mentally scarred by it, in some way or another it’s affected my ability to conceive again...psychological or not!

AF just turned up for me today so on to cycle 14 and this marks 1 year since my last pregnancy sad

Ells0204 Mon 25-Feb-19 12:44:04

Or actually, I think it’s cycle 15?! Even I’m beginning to lose count now...that’s not a good sign!

FinallytakingtheplungewithIVF Tue 26-Feb-19 17:52:39

Hello!

How is everyone?

I am loving the weather it really has been beautiful so me and the dog are enjoying our walks in the fields at the moment!

So I’m kind of just waiting to hear from the delivery company to see when I can get all the medication! I feel a sense of calm at the moment think this is the least stressed I’ve been about taking the next step! I am sure it will be short lived but am enjoying it will it lasts!

@GreyC did you get your results back? Hope all is well?

squirrelnutkins1 Tue 26-Feb-19 22:24:26

Can I jump on too please!

I won't bore you with all my past, I've posted on here quite a few times.

Where we're at now...

Had post laparoscopy appointment today and I've been prescribed some tablets to help me ovulate. If no joy after 3 months then we'll move onto IUI.
In my area you get 3 cycles of IUI and just one of IVF.
If you opt for IVF first you can't then have IUI.

We've been ttc for 18 months. Never had even a sniff of a BFP.

Sorry there are so many of us in this situation 💐

FinallytakingtheplungewithIVF Wed 27-Feb-19 11:01:21

Welcome @squirrel!

So I’ve just arranged relieved for all the medication!! It’s starting to feel a bit more real!! It’s come Friday shock
We are not starting till April but I think it being there in the fridge will keep me motivated on the healthy eating and exercise!

squirrelnutkins1 Wed 27-Feb-19 13:24:30

I'm trying to eat healthy too, I think if I feel better about myself I'll feel more positive about everything.... hopefully!!!

CloudSway Wed 27-Feb-19 17:17:53

Hi squirrel, welcome to the slightly crappy (but very supportive!) club 😆
Wow, that's crazy about what you can and can't have and in what order... Is there a reason? I'm guessing IUI is cheaper? Fingers crossed for some positive results for you from taking the medications 🙂

Hope you are still feeling relaxed finallytakingtheplungewithivf, sounds like you are all over it! 👍 good luck with the healthy eating too!

Lovely weather here in Essex too, glad we're all seeing some sunshine.lifts the spirits, esp as I'm having problems getting a gp appointment to actually get my ultrasound results. Very frustrating, looks like I'll have my fertility appointment at the hospital before I can get my test results - do you think it matters or will they be able to access my results from the hospital? Can I ask my gp surgery just to print out the results and then take them with me do you reckon?

I'm feeling a bit half hearted right now. I'm one of those people that just avoids anything scary (to the point where I avoid opening bills... drives DH crackers lol), and I've got this overwhelming feeling of 'What's the point?' And 'Is it even worth it?'. I've always always wanted kids so not sure where this is coming from, but the prospect of so much time to wait just makes me feel tired and fed up. Think I just need to eat a tub of Ben and jerrys, that will help right?! 😏

FinallytakingtheplungewithIVF Wed 27-Feb-19 19:28:53

@CloudSway they should be able to print you a copy off! As we are private I had my bloods done at the GP have to save where we can! I just asked at reception and theyprinted them for me! Same for DH!

Which part scares you the most? Maybe it will help to tell us on here?
Ben and Jerry’s always makes things better wink

squirrelnutkins1 Wed 27-Feb-19 19:59:56

Urgh I wrote a big reply then lost it 😡

Thanks for the welcomes and hello to you all too 👋🏻👋🏻👋🏻

Not sure on the IUI and IVF thing. Again lottery postcode. I'm sure in some areas you get 3 tries for IVF on nhs. I'm just glad to be helped really. We're so lucky to have the nhs and if these tablets work before then it'll only have cost me (money wise) £8.80! So here's hoping!

Did you have the scan done at the hospital? If so the results will be available at the hospital. No harm asking for a copy tho.

Ooh yes, a bit of Ben and Jerry's always helps 😬

How are everyone's OHs coping?

FinallytakingtheplungewithIVF Wed 27-Feb-19 20:26:43

Fingers crossed for you then squirrel!!

My DH is the most laid back person around about everything!! I was the one who wouldn’t agree to doing this sooner mainly because of the injections and just how I felt in general about the whole process!

What abour yours?

GreyC Wed 27-Feb-19 21:18:43

Results are back. Haven’t spoken to gp yet (3 weeks away!) have my 21 day one tomorrow.

He filed the results as ‘satisfactory- to be discussed in review) briefly looked at them. Can’t make much sense out of them. Seems to me; things are just not quite right. We will find out soon!
My o/h is ok; being positive bless him

CloudSway Wed 27-Feb-19 22:06:03

I did have the tests done at a different hospital but under the same trust so should be able to see then. Maybe I'll get a print out just in case...

I'm not 100% sure what I'm scared of. Maybe trying but failing? Also that once we put the pressure on, either myself or OH won't handle it and we'll fight and break up! We have supported each other through a lot of crap recently- well more him supporting me through my parents dying - and I'd hate to screw up how close we've become, especially if we're not even guaranteed a baby at the end of it!!

By the way, I found out my friend is pregnant today, not sure if you can tell I'm passed off and wallowing a bit, I'm very subtle about it 🤣
Lets just assume it's the Phish Food talking lol! x

GreyC Thu 28-Feb-19 08:03:59

@cloudSway.
I understand about having mixed emotions that’s for sure!
And also being happy but slightly sad it’s not me telling my friends I’m pregnant!

FinallytakingtheplungewithIVF Thu 28-Feb-19 17:43:16

Yes I agree with the mixed emotions we found out that a family member was pregnancy in jan and well it was a surprise as we didn’t think children pictured in their future!

FinallytakingtheplungewithIVF Fri 01-Mar-19 12:30:41

So I have just received all of my medication! Feeling a mixture of nerves and excitement still just over a month to go but it’s all there in the fridge waiting!! shock

squirrelnutkins1 Sat 02-Mar-19 01:28:05

@FinallytakingtheplungewithIVF it must feel nice seeing your next steps in the fridge every day😊

OH shuts down a lot and doesn't talk about it but I made him chat to me on a car journey today and it was nice.

FinallytakingtheplungewithIVF Sun 03-Mar-19 21:56:38

Happy Sunday!

How are we all?

GreyC Mon 04-Mar-19 19:40:44

Full of the flu ☹️
Which frustrating. Waiting to get my day 21 results back but period arrived earlier than normal so not sure it was any good anyway now

squirrelnutkins1 Mon 04-Mar-19 20:01:36

Booo hope you feel better soon.

I can't really figure the day 21 test out. Surely it's only accurate if your cycles are 28 days and regular?

The Gynae last week gave me two more blood forms so I'm having a day 20 and day 26 test to see if they can catch if I do ovulate.

Xx

Kelly199 Mon 04-Mar-19 21:27:35

@squirrelnutkins1 sounds the same as me!!
My gyn/fertility specialist did HyCoSy/hsg for me on Friday and have had bloods and transvaginal scan prior, but now she's given me 2 forms for day 21 and day 26!

FinallytakingtheplungewithIVF Mon 04-Mar-19 21:27:49

Oooh no hope you feel better soon!!

AF has arrived a couple of days early for me it happened last month as well! I’ve gone from 28days to 26/27 no idea why!!

Well day21 because it 7days after you ovulate so I guess if you had s longer cycle and ovulated on day 30 then you’d have it on day 37 that’s what I gather from other threads I’ve read smile

squirrelnutkins1 Mon 04-Mar-19 21:44:06

Makes sense. My cycles are irregular though, between 26-36 days, so that's why I've been given more blood forms. Hopefully it'll show up on one of them!
My skin has been horrendous this last week and I'm loosely midway through my cycle so maybe the lap/HSG has done a bit of something. We'll see eh!

@Kelly199 how'd you get on? Xx

Kelly199 Mon 04-Mar-19 22:06:28

Found it quite painful to be honest, they had to use a clamp because she said my uterus was small - typical! Never mind, over with now!
I'd already had day 21 bloods with gp and she said that I hadn't ovulated, but gyn wants to repeat day 21 and do 26 too to make sure because she said it may have been done too early? She's basically told me though that either clomid then ivf or ivf? I've read so many people have different options?
My day 21 is supposed to be 14/03, so not yet!
When is yours? Xx

Kelly199 Mon 04-Mar-19 22:06:43

@squirrelnutkins1 forgot to tag you xx

squirrelnutkins1 Mon 04-Mar-19 22:33:59

Sounds like we're at the same stage!
I can't imagine having it while you're awake! Hope you treated yourself to a nice coffee or something afterwards!
Tomorrow for my day 20 bloods.
I've been given letrozole to try from day 2-6 of my next cycle for three months then if no joy IUI then IVF.
Love the support on here 😊 @Kelly199

Kelly199 Tue 05-Mar-19 07:35:06

@squirrelnutkins1 yes!! Was glad it was over and done with haha.
Hope it all goes well today!
I'm hoping they will give me something to try first.
Does it all depend on your day 20 results for the meds, or are they giving it to you anyway?
Yeah, me too! Nice to talk to people in similar situations. Always feel like nobody else understands or I'm boring them trying to talk about it! Xx

FinallytakingtheplungewithIVF Tue 05-Mar-19 08:46:25

Have you all told people in real life! I have a couple who kind in know but it’s not something we really talk about! So it if nice to be abit to come on here and talk about it all!

Good luck today squirrel!

Kelly199 Tue 05-Mar-19 09:46:14

@FinallytakingtheplungewithIVF
Very close family - my mum, my sister and grandparents and my partners mum. Even then, I can't really talk to them much. They do like to know what's going on, but I feel I'm boring them keeping on about it because I just want someone to talk to about it all the time whilst we're in the suspense!!
Like minded people on here are the best to talk to because we all want to know the ins and outs of everything!
It's so nice to just ask where everyone is in their journey too! X

Claudie86 Tue 05-Mar-19 11:23:54

Newbie here!

Thanks for the invite @FinallytakingtheplungewithIVF 😊

DH and I have been ttc for almost 3 years now. No clear reason why it's not happening. In 2018 we've tried 3 times to do IUI, but apparently the medicine works very well on me, leaving me with way too many follicles and thus unable to do a safe IUI treatment.

After waiting almost 3 months, last week we finally had an appointment at the hospital, and the result is we're starting IVF treatment! Still have a few tests to do, so I'm expecting to start in April or May with the first round.

I haven't told my best friends or close family about these fertility issues. I've always just said 'we'd love to have kids' and 'we're working on it', but never did I tell them we're seeking medical treatment for it. I just don't like that we'll be known as 'the couple who's having difficulties'. But I've decided it's about time I informed my friends and close family. I've been feeling quite lonely so hoping they can offer some level of support.

CloudSway Tue 05-Mar-19 11:53:52

I'm loving this forum too, even if I don't have time to reply it's nice seeing what's happening with other people and being able to ask questions! When you hear about the process it sounds quite quick so it's a relief that everyone else is going at the same page... I still don't understand half of the hormone and medical lingo mind you lol!

We got warned against telling too many people in case they constantly ask, but we are finding that the more people we tell, the more sensitive people are, so not so many passing comments about when I have kids or whatever... Also I tend to bottle everything up, so I've made sure to talk about it more, so we've now told both our immediate families, plus close friends, our bosses and a couple of work colleagues. But same as you @finallytakingtheplungewithivf I feel like I'm boring people so I work my way round all the different people in a circuit lol! Then everyone gets a day off from me 😂

Kelly199 Tue 05-Mar-19 12:15:48

Welcome @Claudie86 !!
Yes @CloudSway, know exactly what you mean!
I find it easier to tell close family what's going on with what I'm going for (bloods, scans etc.), but anything other than that I think I'm boring them! This is why I'm on here all the time reading and writing lol!

Nataliejayne26 Tue 05-Mar-19 12:33:13

Hi all
Not sure if this is the right thread to post on
I'm a 26 year old female and me and my partner have been ttc for 5years+ after being told on numerous occasions that I was to young to have infertility issues, I was finally referred to gynae who did a laparoscopy and found both fallopeion tubes blocked due to scaring from a previous miscarriage/d&c. After being told the only way I would now get a bfp would be ivf. We have got the ball rolling I have been referred for scan/swabs and my partner for a sperm count hos sperm count is not for 4 months, we are calling almost everyday to see if there has been any cancellations .
I guess what I'm wondering is how long did you guys have to wait for referal to clinic as my dr wont refer until sperm count has been done

Please help

Kelly199 Tue 05-Mar-19 12:51:25

Hi @Nataliejayne26 I'm so sorry you've been fobbed off for so long!!
I actually went private to have my first fertility consultation with my gyn/specialist after gp referred as I had a letter to say waiting list on the NHS was up to 26 weeks, so I called around myself and booked privately with a referral from my gp. Also had HyCoSy/hsg done privately as I think that was a long wait too and it's got to be done on specific days in your cycle.
Had bloods and first transvaginal scan done with my gp. Bloods first which suspected pcos so was referred for transvaginal scan. Was told it would be 6-8 weeks for scan, but I think I managed to get an appointment on nhs after about 4 weeks!
Scan confirmed pcos, so that's when I needed to see gyn/fertility specialist. This was when I went private and if I need ivf, I will be referred back to the nhs. Have been sent for more bloods to see if I need clomid or straight to ivf.
My partner went to his gp for SA, I think it was a Thursday? And we managed to get an appointment in the hospital for the following Monday? Luckily they had an appointment and we were off work. They did have plenty within the next couple of days after that too? So not too sure why yours is such a long wait? Perhaps where he is being referred is really busy? Sorry no help there.
All I can say from my experience is that it's best to try and ask where you're being referred so you can phone yourself to get appointments, but it is an awfully long wait even though I've been lucky with some to get in quicker and paid privately! The suspense is horrible! Xx

Kelly199 Tue 05-Mar-19 12:53:34

@Nataliejayne26 try and call your gp to see if there's anywhere else he can have his SA done? I don't know what others have experienced, but that was the one thing that wasn't a wait for my partner and I?
We went to the gp and he gave us forms to take with us and we had a choice of 2 hospitals and we had to ring and book it ourselves (which I preferred anyway) xx

Nataliejayne26 Tue 05-Mar-19 12:58:24

We had to phone for our own appointment for SA but where we live it's a one day a week clinic sad I have been back to gp and she told me to ring to see if they have cancellelations and we are currently doing this daily.

squirrelnutkins1 Tue 05-Mar-19 13:00:48

I asked if I need to ring for my 20/26 day results before starting the letrozole but they said no. I was like what about hyperstimulation syndrome.
Doc said it's very rare so I don't need to worry myself about that. @Kelly199

@FinallytakingtheplungewithIVF
I've only told one friend and one colleague (her daughter has been thru similar). My family don't know anything about it.
I was so nervous telling my friend and I just cried and cried through telling her but Ive found it really good to have someone to talk to in real life about it.

Nataliejayne26 Tue 05-Mar-19 13:01:06

Your so right on the suspense I feel relieved that I'm finally getting somewhere. And I dont want this to sound horrible to the drs but after being made to feel like I was imagining my problem they made me wait nearly 6 years before taking me seriously sad I cant afford private ivf so will have to wait. Thank you so much for sharing your story with me

squirrelnutkins1 Tue 05-Mar-19 13:02:23

Welcome newbies 👋🏻👋🏻👋🏻 sorry you're going through this but we're all here for you 😊

squirrelnutkins1 Tue 05-Mar-19 13:04:57

@Nataliejayne26 you're right, unfortunately it can take a long time to be believed and get diagnosed.
I was 20 when I first went to the docs, not ttc, but horrendous periods and I was treated like a naughty winey child. When they finally sent me for a lap my gp ended up being a bit sheepish because they found endometriosis.

Nataliejayne26 Tue 05-Mar-19 13:12:42

@squirrelnutkins1 I'm sorry to hear about your endo. That's why my gynie ended up doing laparoscopy. Are you ttc now or have you already conceived?

squirrelnutkins1 Tue 05-Mar-19 13:21:55

@Nataliejayne26 18 months ttc with not even a sniff of a BFP ☹️

Kelly199 Tue 05-Mar-19 13:28:07

@squirrelnutkins1 I know, I'm going to ask my gp after bloods!
@Nataliejayne26 it's wrong they made you wait that long! No, I couldn't afford ivf privately either. I'd had the private tests so I could start digging further into what my treatment plan could be. Will hopefully know by the end of this month after my new bloods! If I need ivf, I will need to wait on nhs too. Horrible!

Nataliejayne26 Tue 05-Mar-19 13:32:36

@kelly199 I wish you all the best for your results.
Its lovely to know theres people out there willing to talk about it. I'm currently unable to tell my friends as they all have babys and wouldn't understand the heart ache.
Do you mind me asking how much the initial tests set you back?
Hopefully we will both get there soon x

Kelly199 Tue 05-Mar-19 13:54:47

@Nataliejayne26 thank you, wish you the best going forward too!
I know what you mean, sounds really selfish and horrible, but I don't like bothering with friends with babies after the struggle I've had ttc. I know it sounds awful, but I just really struggle to pretend I'm ok. What's more annoying is most had not even tried and was a surprise! Just makes it a harder pill to swallow!
Of course, I don't mind.
The consultation was £140. I wanted to pay for this as I know I have waited a long time anyway, but as it was a long wait before being seen, I just wanted to know what was wrong and what treatment plan is be given. I don't mind waiting for the actual treatment then if it comes to ivf because I can't afford that privately anyway.
The scan then was £310. My partner and I decided to have that privately as it can only be done on specific days in your cycle and it just so happened that on my consultation appt, it was the day I could have it done. She told me if I waited on nhs she only does 1 a week (hope she meant one day!) and that so many people are waiting and hard to get appt so would just have to ring again if they didn't have any appts left. I spoke to my partner and agreed to have private as could go on forever if you're trying to get through and their taken, then will have to wait another month to try them because of only being able to have it a few days in your cycle. Also if it fell ok wknd etc. And clinic closed.
Will have everything else done on nhs now though xx

veeboo Tue 05-Mar-19 13:56:46

Hi all. Please can I join? I think this might be a better board from me than the buses which are slowly draining my energy every time I get a BFN.

I am 32 ttc#1. I came off the pill Jan 18 but DP struggles with ED so I don't think we really got into our stride until Julyish and we only manage to DTD about twice a month.

Interesting to read about all the different experiences with NHS. We got referred to fertility clinic in Jan. DPs SA was fine. My bloods and ultrasound were good. I have my HSG next week then they said if that's clear they will refer to IUI. This hospital doesn't do IVF so think they refer elsewhere if you need that.

Nataliejayne26 Tue 05-Mar-19 14:06:34

@kelly199 I completely get that, my sister got bfp 3 months ago after being off the pill 4 weeks I resented her for this but wasnt her fault I have the problems I do.
It really is just a waiting game isn't it.sad
If you did ever need a rant or someone understanding I'm here hun smile we will get thos bfp we want so badly xx

Kelly199 Tue 05-Mar-19 14:15:50

@veeboo welcome. Good luck for your scan next week!
@Nataliejayne26 I know. Part of you is happy and like you said, they can't help it, but it's the other part of you that secretly dies inside. Makes it 10x worse.
Same to you too!! And everyone else. At least we have each other to vent to! Xx smile

squirrelnutkins1 Tue 05-Mar-19 14:27:08

Just had my blood test. Isn't the universe unfair.... out of the 4 people that could've done it I got the heavily pregnant one 🥺🙄🙄

Nataliejayne26 Tue 05-Mar-19 14:30:38

@squirrelnutkins1 I'm so sorry. Always seems like when you struggle theres something to slap you in the face sending hugs zx

@kelly199 you are so right. No matter how happy you try to be for other people theres always that niggle in the back of your brain. Xx

Kelly199 Tue 05-Mar-19 14:35:05

@squirrelnutkins1 it is just shit and typical!! Hope you're ok. Sending hugs too! Xx

@Nataliejayne26 think it will be there until we're lucky enough ourselves! Xx

Nataliejayne26 Tue 05-Mar-19 14:39:07

@kelly199 I have my fingers crossed so tightly that we all get what were hoping for xx

Kelly199 Tue 05-Mar-19 14:42:44

@Nataliejayne26 me too!! Xx

CloudSway Tue 05-Mar-19 16:17:01

@Nataliejayne26 hi and welcome!

We were incredibly lucky in that we waited under a week for a sperm test. We did however go to the doc's in the first week of January which is probably a quiet time, but also our area doesn't offer any fertility treatments under nhs so I suspect tests to investigate are nowhere near as busy. If you are in an area that offers treatments, is there anyway you can ask to be referred to another area? Or even bite the bullet and pay if you're able? Once the tests came back we got a choice of hospitals, one was 3 month wait, the other was one month, so you won't necessarily be waiting for ages again.

Hi to @Claudie86 too. I know what you mean, but don't feel too isolated. All this is a pain in the arse and terribly unfair, but theres loads of us in the same boat. Once i mentioned if to a few friends every single person knew someone who had struggled, so its more common than you think x

Claudie86 Tue 05-Mar-19 16:26:48

Thanks @CloudSway 😊 I'm going to tell a couple of friends in the next few weeks so at least they know what's up.

Got my period yesterday by the way, so tomorrow I'm going to the hospital for some blood work and to do an ultrasound to check what's the situation ahead of IVF! Fingers crossed it will all turn out good!

FinallytakingtheplungewithIVF Tue 05-Mar-19 18:03:33

Wow it got busy this afternoon!!

Hello to all the newbies and good luck for everyone having tests and scans done!!

I feel for those that have a long wait it’s so hard when you have to wait for tests and then be told after your in another waiting list! As I have a child already from previous relationship our only was private! So I’d agree we @kelly199 if you can afford to get any of the test required then do it at least it might help you feel more in control smile

veeboo Wed 06-Mar-19 07:46:41

Hi @CloudSway can I ask how it works if your area doesn't offer you treatment do you just get to have it in a different area or not at all?

@Claudie86 we've started telling people now. It feels like such a big part of our lives atm that not telling people creates a bit of a barrier to normal conversation. I've told work now too because of all the appointments and they've been fab. I found with friends that at first they got all excited which was tough but when I told them how that made me feel they adapted and it's definitely helpful but I've chosen who I tell carefully.

CloudSway Wed 06-Mar-19 10:23:41

@veeboo I had the same thing, told my boss because of all the appointments and she was really great except she was and continues to be excited for me. It's hard to explain that sometimes it's exciting, but mostly it's just a bit shit, something I have to put up with.

If I'm honest I don't know exactly how it works, but I'm pretty sure you can't go nhs in another area unless you move to that area. I get super anxious so I'm deliberately trying not to obsess over it, but I said to the others here I'm un/fortunately in a position where we wont struggle too badly to pay because my parents died a year back, so i have some inheritance. Awful and rubbish, but nice to think some positive may come out of it. Occasionally feel like I'm trading in parents for a baby, but I try not to think too much about it!!! 😳🙂

veeboo Wed 06-Mar-19 11:03:46

Oh gosh @CloudSway thats a lot to deal with. Maybe see it as them supporting you to grow the family. I lost my mum when I was younger So if you ever need to talk about that I'm here.

Really crappy that some people have to pay while others dont. I've tried not to ask too far ahead but I assume if we needed ivf we'd need to pay as they only offer IUI at our hospital.

CloudSway Wed 06-Mar-19 11:28:53

To be honest I was sure that's why we weren't conceiving, just the stress of the last few years. So bit of a surprise when gp said DH had low sperm and we'd prob need ivf!

I can't get over this postcode lottery thing, it's so wildly unfair I can't even understand how it's legal! But I'm pleased they offer you at least iui. All the best with it all, and I'm so sorry about your mum. It must be on your mind a bit as you work towards being a mum too, and I know it doesn't ever go away xx

FinallytakingtheplungewithIVF Wed 06-Mar-19 21:03:20

I’ve had a really crappy day! No idea why just hormonal and woke up with the most horrendous period pains took me back to when I was a teenager and struggled to get out of bed with them!! confused!

2fingers22018 Fri 08-Mar-19 09:03:16

Hi girls mind if i join? Had bloods done they think im ovulating my OHs SA came back normal just had a hycosy yesterday and they said no blockages ive got lots of eggs(no specific numbers given). We basically fall under unexplained infertility, we re on a 6mnth waiting list for ivf now. I luv a bit of sarcasm and sick humour you sound like my ppl need to laugh or we d scream suppose x

squirrelnutkins1 Fri 08-Mar-19 09:33:06

@2fingers22018
So we meet again! Glad your hycosy went well 👍🏻 sorry it's unexplained ☹️ glad you've got eggs.
The ladies on this thread are LOVELY x

Kelly199 Fri 08-Mar-19 09:36:31

Welcome @2fingers22018 !
Sorry it's unexplained!!
Glad everything else ok! Xx

2fingers22018 Fri 08-Mar-19 09:46:26

@squirrelnutkins1 thanks hun..i dnt know how to feel bout it to be honest it went well as in no blockages etc but i was kind of hoping it was a simple blockage that couldve been flushed out x @Kelly199 thanks for the welcome im trying to catch up with everything thats been posted on this thread its gd to have ppl in the same position to talk to💜 ive got a question for everyone thats had a hycosy did they give yous all four antibiotic pills to take together? They told me to take 4massive antibiotic pills before i left the hospital seems like a lot in the one go?!

Kelly199 Fri 08-Mar-19 10:02:49

@2fingers22018 I know what you mean! Just so there could be some explanation! I'm really sorry. I'll know by the end of the month whether they will give me clomid or if I need ivf. I have pcos and my gp said bloods showed I don't ovulate, but specialist wants to double check?! So annoying waiting and waiting! All my other tests were ok though (obviously apart from confirming pcos).
Yes, it's lovely to have people to talk to who understand!
I had my HyCoSy last Friday. She told me to take 2 tabs an hr before procedure. Didn't have anything afterwards. She just told me to ring/go to gp if I thought i had an infection as it can happen sometimes, but unlikely?
Perhaps that was why they asked you to take antibiotics ? Not sure though.. x

2fingers22018 Fri 08-Mar-19 10:12:56

@Kelly199 they didnt give you any antibiotics?! Thats terrible dnt mean to worry u but i thought they give everyone them as a precaution i mean everything in hospitals is sterilised so ud think the chance of infection would b low anyway. FX u need clomid and it kick starts ovulation i know its not ideal but might b the lesser of two evils x im just stressin now about wether i should tel work about my ivf i dnt know if i should ask for some leave another thing to worry bout eh? Lol

Mrsmch123 Fri 08-Mar-19 10:20:18

Hey just checking in again. Waiting for hycosy phoned today to check they had received my paperwork and was told it will be may some time. How did everyone find it?while it seams ages away it’s also the same month husband has his 2nd SA. So will work out ok. Also got an appointment to go over the results ect for July(which of course was slap bang in the middle of my holiday)but called and got it for the start of July. On a side note booked a holiday to Sri Lanka to cheer myself up😂flying business class!—trying to pretend im posh—

2fingers22018 Fri 08-Mar-19 10:38:39

@Mrsmch123 the hycosy wasnt as half as bad as i thought it would be tbh but then i didnt have any blockages. Ooh im soo jealous bout the holiday its gd to have things to look forward to and distract yourself x

Kelly199 Fri 08-Mar-19 11:32:56

@2fingers22018 oh really? She just told me it was low risk and if I did notice anything, to call the GP. I can completely understand why they'd give it though just in case. Thankfully, all is ok with me and no infections from it.
@Mrsmch123 hope you don't have to wait too long for your HyCoSy! X

2fingers22018 Fri 08-Mar-19 11:56:34

@Kelly199 u know what its like with nhs varies from area to area what they do but i do think the chance of infection is low. I felt ill after taking the bloody things upset stomach so theyv prob not had a chance to work anyway lol

Kelly199 Fri 08-Mar-19 12:34:25

@2fingers22018 I know, it is crazy how different it is with everything in diff areas. Shouldn't be, but it is!!
Aww no!! Mine prob would've been the same. Doesn't take much for my stomach to turn lol x

2fingers22018 Fri 08-Mar-19 12:40:40

@Kelly199 im just wondering if they were meant to give me the 4in the one go but oh well took them now lol

Kelly199 Fri 08-Mar-19 13:23:05

Lol, I hope they were meant to! They're out of your system now at least if they weren't! Lol xx

Kelly199 Fri 08-Mar-19 13:23:30

I'm sure they meant to anyway don't worry x

GreyC Fri 08-Mar-19 17:53:22

Had my results for day 21. It was 24. So not sure what that means but seeing the gp in a couple weeks to talk about referral

Mrsmch123 Fri 08-Mar-19 18:51:12

@grayc hey I was told anything above 30 indicated that I had ovulated.

veeboo Fri 08-Mar-19 20:03:52

@grey I was told the same as @mrsmch13 but the nurse also said that some units say anything above 16 suggests something has happened but they set at 30 to be sure. Maybe they will monitor for a few months. Fx for you. Keep us updated x

Trying81 Fri 08-Mar-19 21:22:09

Currently awaiting a referral to a gynaecologist

Oct 18 stopped taking pill. No withdrawal bleed, no period since

Past 2 weeks been getting intense pelvic pain, stomach ballooned out so much that I look pregnant. Had bloods done, and a X Ray which has shown nothing but A&E doctor suspected kidney stones.

Been on the pill pretty much permanently since I was 16 due to painful periods initially, which is making me suspect endometriosis

Has anyone experienced similar symptoms?

veeboo Sat 09-Mar-19 09:51:24

Hi @Trying81 I used to get terrible period pain and bloating. It seems to have calmed down now after a year off the pill. I also tried to cut out certain foods and that helped. I had an ultrasound which found no issues and I've got a hsg on Thursday and slightly worried there might be an issue.

FinallytakingtheplungewithIVF Sat 09-Mar-19 10:40:28

Hi to the newbies! I am currently In Morocco thought a bit of RnR would be good before I start my injections on next cycle well unless by some miracle we conceive naturally but it’s unlikely!!

Hope everyone else is ok? Will try and catch up and post something more useful shortly!!

@GrayC aren’t you having a day 21 and another day aswell because I’d tiur cycles? Or am I confusing you with one of the other ladies? Maybe wait till you have that one done? I can’t remeber what mine was but it was over 30 which seems the standard guideline maybe ask for it to be done again x

Trying81 Sat 09-Mar-19 12:34:43

Hi @Veebo

Thanks the response, hoping my pain will calm down soon, I am waiting for an ultrasound appt to see if they can figure out what is causing my lack of periods.

Good luck with the hsg

GreyC Sat 09-Mar-19 13:00:04

@finallytakingtheplunge

No that isn’t me. Somebody else; I had some blood taken around ovulation and Who knows what’s going on in my body!! Ha! I’m trying to go with the motions and not to be too upset and google crazy about the levels. I’m hoping when I go back to see the gp we will start a plan of action and move forwards with it all. It will happen at somepoint I hope; naturally or with intervention & im holding on to that.
Hopefullya good big update for you in a couple weeks. In limbo at the minute and it certinly makes me frustrated

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