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Any advice please?

(6 Posts)
friends123 Fri 15-Jul-16 11:45:11

Yesterday I picked up my results from the DRs, at the request of my fertility clinic. I really have been tested for a lot of things, I've had STI checks, Vitamin deficiency test, full blood counts etc. My progesterone level was so high this month it was off the scale. In fact without Clomid it's apparently at the higher range.
Two things were flagged up on the reports, which is news to me because I was told everything was normal at the time.
Firstly, I have a very high androgen level. The report says in no uncertain terms that the diagnosis is that I have Pcos. I've had an ultrasound and also a tranvaginal scan. Apparently no Pcos.
The second thing that was flagged up was the fact that although my whitebloodcells are all in normal range, I have a certain type of wbc that is double the count ( can't remember the name but when googling, it's normally high if you suffer from hayfever, asthma ( which I don't ) the only other thing that is suggested is that i could have a autoimmune disorder.
Seriously my head is mashed, I googled the symptoms and gosh I probably have 3/4 of them. ( which could also explain my hormone inbalance)
My Dr never asked for me to do the test again even though it was so high. I just got all is fine. I'm seriously wondering if I should of had a lap and dye to rule out endo and also wondering if I should have immunological testing before IVF.
I never actually seen the consultant last time,I'm not sure who she was but she wasn't as highly qualified. (not saying that makes any difference.) However it seems that people get told to have Lap and dyes in between IVF sometimes. ?
I really don't know if I'm just looking for things, but the evidence seems to be right in front of my face but not the Drs. Sorry for the rant i just feel like I'm so confused and I really don't want to go through IVF as a trial and error basis.

I have all the symptoms of endometriosis. AF as just started and I'm in a lot of pain and discomfort, this is normal for me but since I started the Clomid it seems unbearable and I just feel that it can't be right.
Any help or advice would be much appreciated, even if it's just to give my head a wobble.
Huge thanks.

Fuzzywuzzywasabear Fri 15-Jul-16 12:00:34

My advice is to not proceed with IVF until you're completely happy that it's the right option for you and you are happy with all the test results etc.

It's very intrusive, stressful and emotionally draining you don't want to be undergoing additional tests between cycles unless it's because a failed cycle indicates the need for it.

Unfortunately IVF is a trial and error process in itself, no one knows how your body will react until you go through a cycle.

HopperBusTicket Fri 15-Jul-16 12:07:52

I am sorry you feel so confused. Infertility is a horrible experience.

I agree with the pp that you shouldn't proceed with IVF without ruling out other options first.

You would need a laparoscopy to diagnose (and if necessary treat) endometriosis. I got pregnant with my eldest son naturally 2 cycles after a laparoscopy, having TTC for 2 years before that. Having said that I did need IVF (and eventually donor eggs) to conceive our second child.

I don't have experience of PCOS I'm afraid.

Ask the doctor about the white blood cell count but it's my understanding that when they test so many things it's fairly common for one to be raised. I queried a high count of something and was told it was nothing to worry about and it's a pattern they're looking for.

Good luck.

friends123 Fri 15-Jul-16 12:49:07

Sorry if my post seems that I'm not in the right frame of mind to start IVF, that's really isn't the case in fact quite the opposite. I'm asking all this because I think I should of ruled out things first but not because i'm not ready for IVF. I feel like my doctors have been incredibly incompetent by not giving me a lap & dye first and they have not done this because In their words "it probably won't change the outcome" so I've not had one. My HSG was fine, but will the IVF clinic suggest I have one when I get there?
They've also stuck me on Clomid even with progesterone level of 68 on cycle day 21 without the stuff. No scans either.
Me asking for advice on the things I've found out, is honestly just because I would like to have peoples opinions before my first consultation.
I've asked about the wbc and get told you probably suffer from hayfever or something like that . First I've heard of it.
I appreciate IVF is a trial and error , but what I'm getting at Is it worth testing for an Immune issue before hand, seeing as knowledge is power and all that. I appreciate that IVF is all those things but so is 3 years without conceiving. When all looks well on paper.
Thanks for your advice ladies.

HopperBusTicket Fri 15-Jul-16 13:02:33

I had some of the 'less intensive' immune treatments as part of IVF without having been tested for immune issues - intralipid infusion, aspirin and clexane injections. My doctor's view was that testing was expensive and would likely show issues anyway so they might as well try those things as being low risk and (relatively) low cost. You could ask about that?

friends123 Fri 15-Jul-16 13:56:13

Thanks Hopper that's very helpful, I just want to be prepared when I get there. I have horrendous clotting on AF and im in so much pain that i need to know equally what the hell is going on. I'm gonna stop taking the Clomid until I get there too.
We've been referred due to MFI in the end, not before they spent nearly two years saying there's nothing wrong with DH and repeatedly spouting that it only takes one! Ha .
The results I mentioned have been flagged up by the hospital, there's a big exclamation mark next to them but I was still told all was okay. So this is definitely why I'm gonna take charge of the situation from now on, even If the results mean nothing. I might also see if I can go and get a second opinion and help getting a lap & dye.
Huge thanks again.

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