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Reoccurring miscarriage

(9 Posts)
Penguinepenguins Sat 02-Apr-16 21:08:40

Sorry in advance I've posted this in a couple of places, trying to the find right one am just really looking for some help and advise but so far nobody has commented... Am just at a very low point and could really do with some help.

Hello everyone,

Looking for some guidance please smile

DP and I have been trying to have a baby since October, I have so far had no issues in getting pregnant - they just don't seem to want to stay which is so very heartbreaking.

My last MC happened at the weekend so it's all still very raw, I saw my GP and I'm being referred to a gynaecologist - but have heard this may take months and at 38 I really don't have time to be waiting around! I do have two wonderful tiny humans in my life (officially my step-children. DP is RP) but I want to have the pleasure of bringing one into the world.

DP and I have decided to go private for tests so we get answers more
quickly - I am just looking for some advise from people who have done this before!

Apparently they will check both of us out, DP bit is relatively easy (deposit load in cup! Men get all the fun! Although DP is not convinced it's that fun) but I wonder what will they actually do to me? The MC I had before Christmas was very traumatic as it was so painful and I had to endure an internal scan the dildo scanner was HUGE and the woman was very rough it left me feeling quite bruised then had a doctor check my cervix and it took her four attempts to get the machine in deep enough - all in all rather awful so am a bit nervous as to what to expect when we go hopefully next week! I know they will explain before but I'm a planner/obsessed with working out all the scenarios smile

It really is so upsetting, to go through this I feel so inadequate this evening because I can't even look after my babies it just seems so unfair I am just so very very sad and need to do something to feel proactive with it!

Thank you in advance X

Penguinepenguins Sat 02-Apr-16 23:27:42

Help please

Oooblimey Mon 04-Apr-16 22:23:21

Hi Penguin Didn't want to read and run, it may take a few months for the tests - blood hormone tests through GP. If it comes to needing IVF or fertility treatment, as your DP already has biological children I don't think you'd be eligible for treatment on NHS so why don't you jump straight in and book an initial consultation at a private fertility clinic? Most do a free initial consultation so it can't hurt? Good luck to you X

kirinm Mon 04-Apr-16 22:26:05

Which hospital are you being seen at? I had a lot of blood tests and an internal scan - separate appointments but all quite quick.

scoobyloobyloo Tue 05-Apr-16 08:46:24

Hi penguin - how many mc have you had? After 2 mc chances are very high that next pregnancy will be fine. After 3 these chances start to drop and is usually when you need further investigation

Many of the NHS tests will show unexplained infertility, particularly if you have no problem conceiving in the first place.

If money is no object I would suggest seeing Dr Gorgy (give him a Google) re your immunes and getting them tested. They go into much more depth than the NHS tests will.

Please don't feel like this is hopeless - there is lots of hope still for you guys and is more than likely that you will go on to have your own baby.

After 2 IUI miscarriages I had ivf with drugs to support the pregnancy and am currently 27 wks pregnant.

Lots of luck

bananafish81 Tue 05-Apr-16 12:14:41

I replied on your other thread but reposting here for completeness XX

I'm so sorry for your losses

Unfortunately the NHS doesn't have much to offer unless you have a clotting disorder or thyroid - they don't 'believe' in immunological causes of miscarriage. Two friends both had 3 miscarriages in the space of a year. Both went to the RMC at St Marys and were told the mc were just bad luck because all their thrombophilia tests were normal

They miscarried again

Both went private, got tested for NK cells, got treated with steroids, intralipids, and blood thinners and both are now 11 and 12 weeks pregnant respectively.

It's worth getting all the thrombophilia tests done as it may be that a 15p baby aspirin will prevent a future miscarriage, if you're found to have antiphospholipid syndrome (sticky blood). But if not, I would strongly recommend going to investigate immunes. Mr Shehata can't treat with intralipids etc on NHS but does privately. Dr Gorgy is excellent. Dr Ndukwe at Zita West also. And CARE in Manchester and Nottingham I believe will treat RPL with immunes even if you're TTC naturally and not having fertility treatment

I had a MMC 3 weeks ago and am getting all the immunes tests done, it's only my first, but I don't want to wait for 3 to find out I might not have miscarried if I'd had some steroids and Clexane.

Good luck 

kirinm Tue 05-Apr-16 12:34:57

My consultant (at St George's) has given me a list of things he'll prescribe me when I next get pregnant.

Does anyone know (roughly) the cost of going to a private clinic for NK killer cells testing?

bananafish81 Tue 05-Apr-16 12:42:54

The Chicago tests that Dr Gorgy will run will cost in excess of £1500

I am getting them done for £300 with a lab in Athens called Locus Medicus. Dr Gorgy apparently accepts these tests, so they're valid.

The immunes faq on Fertility Friends has pretty comprehensive information about NK cells testing and other tests for recurrent miscarriage

http://www.fertilityfriends.co.uk/forum/index.php?topic=242395.0

bananafish81 Tue 05-Apr-16 12:45:02

However many private clinics will prescribe empirically for immunes, without testing - so worth asking about :

-prednisolone
-intravenous intralipids infusion
-clexane
-progesterone
-baby aspirin (you can buy this OTC)

My Dr will prescribe without testing, however I want to understand if and where there may be specific problems

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