Four Youths die in one week while engaged in sport...(78 Posts)
Often there are no symptoms leading to sudden death when its associated with heart arrythmias. A quick and simple test can easily detect such a condition. I just do not understand why these simple tests are not automatically available for all children to help prevent sudden death.
It's happens here regularly enough.
Always has, though. I remember seeing about it in the US as well, where it's known as Sudden Adult Death Syndrome, although it usually strikes young men.
Thing is, it's hard to diagnose, unfortunately.
It's not entirely known, such as in Sudden Infant Death Syndrome.
Arrythmias are abnormal rates or rythmns of the heart, sometimes the rate can go incredibly fast, like 200bpm, so that the heart just can't function. An ECG or ECHO can detect such conditions associated with arrythmias.
Many children have innocent heart murmurs that cause no problems, it isn't necessarily an indicator of a heart condition.
heart murmurs arent an issue with this. as some say its to do with undiagnosed heart coditions like cardiomyopathys, arrythmias, long QT syndrome (think i have that right).
dd1 has a leaky valve, plus a murmur. the murmur isnt an issue, but i do worry more about the valve. but try not to as its so slight that she doesnt need to be seen agai ntill she is 10 (she is 7.5 now)
kerrymum, i mean this is the nicest possible way, but do you think you get overly concerened with things like this? i have noticed you do worry an awful lot.
Yes, deeply tragic. Invariably a previously undiagnosed heart complaint will be found to blame. The son of my boss's friend, didn't wake up one morning. He was 35, fit as a fiddle, had 3 young kids. His wife couldn't wake him - he died in his sleep, due to his heart stopping . I also had a friend die earlier this year similar kind of circumstances, she was only 25 . Her two brothers have had loads of test to see if they have the same heart condition as their sister as the docs believe it to be genetic but they were given the all clear.
I don't think there is a lot of knowledge about why these deaths happen and how they can be prevented, much more research is needed. Doctors these days are still nto 100% certain they can say what causes cot deaths and how to prevent them they can only give advice which has ben shown to reduce the risk.
kerrymum i heard being discussed on marion finucane on sunday nad pat kenny with cardiologists last week also the irish times had a piece on it and the research required plus UTV news had a piece as the four main hospitals north and south are collaborating on research too.
kerrymum so DO my girls.
maryz, if a child is dx with a heart condition then medication in most cases wil allow them to have a normal life including sports.
I would certainly want to know. The children that have been identified are considered to be the lucky ones, as treatment can usually prevent sudden death.
Sadly I have discovered that SADS is much more common than I ever knew My dh died on 28th August, perfectly fit and healthy, happy with his life and then nothing He wasn't even over exhurting himself, just gone fishing for the evening - There needs to be more reasearch done and maybe a routine ECG at a certian age? Something! There has to be something! Our lives have been turned upside down and for what? ASomething that may have been detected had dh been offered a routine ECG? I am not sire if this would have picked anything up but surely it has to be worth a go?
My DH was born with a congenital heart defect for which he had to have major surgery at age 7. He still has an annual check-up and will probably have to have his aortic valve replaced at some point in the future.
The whole issue of how to handle a child even with a known heart condition is very difficult - over the years different doctors told him different things about how much exercise he was allowed through - he went through a period where he was wrapped in cotton wool and not even allowed to play cricket and another period where his prep school (he was sent away to boarding school age 8!) insisted he join in with the cross country runs.
The most recent advice he has had is that all activity is fine except for extreme competitive sport, but on the other hand there is a small chance he could drop dead at any point for no particular reason.
Not quite sure what the point of this is, except to say that DH feels that trying to live as normal a life as possible and not second-guess what activities might cause him to drop dead is the best way to deal with his condition.
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