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Blood tests have come back as "strongly allergic to peanuts" HELP!!!
i think there's a helpgroup called anaphylaxis or something like that - they should help. a friend's dd has a severe reaction to peanuts in so far as she cant even touch the packets of cereals which have contained traces. She lives a pretty normal life but obviously it took a bit of getting used to.
The first thing is to relax - the death rate is extremely low for those that have a reaction - 0.62% in one study.
He also said that plenty of people who have 1 reaction (and therefore have the antibodies) never have another reaction again. The bloodtest can only show the antibodies - not predict what could happen in a reaction.
Obviously you still have to avoid nuts and traces of nuts. You need to think about the places your dd goes and how you will handle this. I am in a massive dissagreement with ds's preschool about this at the moment.
But the main point is that she is very unlikely to die.
a friend of mine was allergic to peanuts and she had to carry an epi pen with her.
Ask what you would need to do in an emergancy....get that sorted first of all. With my friend it was just a case of jab her with the pen and ring an ambulance but could be different now, i am talking years ago.
Obvioulsy you need to read labels properly most have it wriiten undeneath the ingredients now if they contain nuts BUT when u order a take away, ask them what they cook their food in. some places use ground nut oil which my friend was also allergic to.
You can lead a normal life with nut allergies, you just have to be cautious about what foods you eat. i had mild nut allergies when i was younger (nothing more than a migraine and blotches) but i outgrew them....i hope thats the case for you.
What you want from the dietician is a list of alternative names for peanut oil (she should have a list) and if you are not used to reading labels then ask her to show you how to do it and what to look for (I know it sounds obvious but until you have an allergic child, you don't really know what to look for!). She will also tell you exactly what to avoid.
Was it a consultant or GP that did the tests? Either way, they are the ones to give you the epipen and advice as to what to do if she comes into contact with peanut. Also, make sure you carry around Piriton in the mean time.
It was a consultant at the hospital that did the blood tests. I give her Piriten at the moment as she is always itching her eyes and sneezing, I am sure she must be allergic to something else as well, may ask for more tests.
yes, when you see the consultant again, ask about EVERYTHING!! In fact, make a list before you go because there are always so many things to ask and I find myself remembering one thing and forgetting the rest. They may want to do some other tests (like skin tests etc.) so read up before you go and try and make a list of other things you think may be setting off her sneezing/itching.
we found the dietician really useful - she was the only person we saw who could actually spend quite a bit of time with us (as the consultant was always v pressed for time it seemed - understandably so!) but I don't think she will be able to give you an epipen or any medical advice - I think that all comes from the consultant/GP.
As bobbybob said, that test measures the antibodies. With dd, they did a skin test as well (which showed an even worse reaction - her whole arm swelled up and went red to a pinprick of egg) however, I know she has had things with egg in and not had a severe reaction. Allergies are a difficult thing because it's hard to predict what will happen the next time.
In the mean time, it's better to be safe than sorry and be extra vigilant. Get 2 bottles of Piriton so you can give one to nursery and make sure they know to give it to her straight away.