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Calling QUEENOFQUOTES .........

(13 Posts)
Mosschops30 Fri 05-Aug-05 10:21:50

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PeachyClair Fri 05-Aug-05 10:30:20

If QofQ doesn't appear, I used to care for Parkinsons patient? Can I help?

Mosschops30 Fri 05-Aug-05 10:34:20

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QueenOfQuotes Fri 05-Aug-05 10:35:07

Here I am

Mosschops30 Fri 05-Aug-05 10:37:19

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QueenOfQuotes Fri 05-Aug-05 10:42:36

Re your father's attitude. I think it's pretty common. Until about 3/4yrs ago my dad did practically NOTHING to help my mum, got annoyed when she fell asleep uncontrolably, did things 'too slowly' for his liking, irritated when her hands started shaking while holding her cup and saucer, and still expected her to do everything around the house. (this was before she got her homehelps/great parkinsons nurser, physio etc etc sorted). He would 'reluctantly' take her to appointments and other places but generally carried onlife as normal.

Then he 'suddenly' realised that lots of mum's "annoying" qualities were because of the Parkinson's - not because she was trying to be awkward and went into 'over protective' stage. He tried to do EVERYTHING for her, not letting her at least try to do stuff (started off partly because she was 'too slow'). When she started to get a stoop, and her new Parkinson's nurser started to arrange 'aids' to help her with stuff at home (a bar for the toilet so she could get up on her own, a little gadget for doing buttons up etc), it slowly dawned on him that she DID need help, but that she could also have some 'independence' to go with it.

Now he does all the cooking (the home helps prepare the meals - but don't cook them), and is (reasonably) happy to push her in the wheelchair (again provided after seeing the Parkinson's Nurse) places, he's not 'entirely' happy with her going out for a walk on her own on the 'good' days but does now let her.

I think for my dad is was a mixture of 'denial' and 'annoyance' at the inconviniences that PD brings.

Mosschops30 Fri 05-Aug-05 10:46:52

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QueenOfQuotes Fri 05-Aug-05 10:47:04

I have to get some stuff done (DH is at home today so can't be seen to be on here ALL day )

but if you want to CAT me (incase I 'lose' the thread) feel free to.

QueenOfQuotes Fri 05-Aug-05 10:47:32

duh - sorry - misread it

QueenOfQuotes Fri 05-Aug-05 10:49:01

I think it was a combination of Social Services/GP/Parkinson's Nurse that enabled her to get the help.

How long has you father (got it right this time ) be diagnosed with PD?

Mosschops30 Fri 05-Aug-05 11:32:31

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QueenOfQuotes Fri 05-Aug-05 13:08:52

My mum had been diagnosed for about 6/7yrs before my dad slowly started to 'accept' that she had it - and that it was an disabling illness.


And my mum also very it hard to 'adjust' when she was first diagnosed (this was a women who used to take her 2 children hill walking without her DH, did ALL the DIY - including having a bay window knocked out and replaced, with 2 unders 5's and her DH away at sea , loved cooking etc etc).

I remember watching her spend almost 2hrs trying to fit one of those halogen(?) kitchen lights in the kitchen - Dad was working away from home (we were trying to move dad had a new job elseshwere and she was trying to sell the house). I couldn't do it as I was too short, and she spent 2hrs trying before she finally had to admit that she could no longer do 'simple' tasks like that.

Mosschops30 Fri 05-Aug-05 15:05:01

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