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Will you sign a petition to help women with endometriosis?

(33 Posts)
hunkermunker Wed 27-Jul-05 22:03:33

Endometriosis is a horrible disease which affects about 2 million women in the UK. It is debilitating, incredibly painful and can impact upon fertility, as well as all other aspects of a woman's life.

I know. I have it. And I'd like there to be earlier diagnosis, better management of the symptoms and pain, and in the long run, a cure.

At the moment, the average length of time between onset of symptoms and diagnosis is eight years. When I was diagnosed eight years ago, the average length of time was seven years. Treatments range from nothing, to drug therapy (often with drugs with lasting side effects - one puts the body into menopause, no joke when you're 22), to surgery.

More people need to be aware of this disease and the effect it has on women (and their loved ones).

hunkermunker Wed 27-Jul-05 22:36:16

Anybody?

expatinscotland Wed 27-Jul-05 22:40:15

Done. Sent it to a pal as well.

vicdubya Wed 27-Jul-05 22:40:27

Oh, yes, I have it too. Diagnosis took 5 years.

Just going to take a look, HM.

hunkermunker Wed 27-Jul-05 22:40:57

Thanks, EPIS. Have no idea who started this petition, btw - wasn't me - but had to post it as it's an issue so close to my heart

hunkermunker Wed 27-Jul-05 22:41:29

Incredible how long it takes to diagnose, given how common it is, isn't it?!

vicdubya Wed 27-Jul-05 22:46:12

Yes, I was (mis)diagnosed with everything from urinary tract infections to having "too small a cervix".

I saw 5 GP's over the 5 years and it was only the 5th one who even suggested it.

Christie Wed 27-Jul-05 23:23:55

Message withdrawn at poster's request.

hunkermunker Thu 28-Jul-05 09:30:13

Bump...

hunkermunker Thu 28-Jul-05 09:44:25

Anyone else?

ebbie22 Thu 28-Jul-05 10:29:02

done...

WigWamBam Thu 28-Jul-05 10:31:41

Done, sent to my sister, and bumping.

hunkermunker Thu 28-Jul-05 10:49:23

Thank you

hunkermunker Thu 28-Jul-05 12:13:19

Lunchtime bump x

sorrel Thu 28-Jul-05 12:25:53

signed there now HM.

purpleturtle Thu 28-Jul-05 12:34:21

signed it and sent it to the friend I've been with this morning who's ttc at the moment but battling endometriosis

SaintGeorge Thu 28-Jul-05 13:03:46

Done

LittleStarsweeper Thu 28-Jul-05 13:11:34

done and forwarded

MeerkatsUnite Thu 28-Jul-05 13:13:43

HM,

I was eventually diagnosed with endo at 31; I have had this since I was 14 years of age (I know this now). My periods were extremely painful from the get-go.

Have you seen the National Endometriosis Society's website?. They have actively campaigned to Parliament re getting help for women with endo. You may want to contact them as well.

Their website address is www.endo.org.uk. Would recommend that any woman who suffers from this get in touch with them.

SaintGeorge Thu 28-Jul-05 14:18:48

bump

hunkermunker Thu 28-Jul-05 15:35:06

Half past three(ish) bump.

LittleStarsweeper Thu 28-Jul-05 15:45:43

dont worry HM, loads are probably signing but not coming back to the thread to let you know. I nearly did that.

jayzmummy Thu 28-Jul-05 15:48:47

Have done it and forwarded it to my friends.

I was dx with Endometriosis at the age of 19. Enduced menopause at 20 and hysterectomy at 21.Its a horrible disease.

SaintGeorge Thu 28-Jul-05 15:49:54

Am I missing something then, because I can only see 10 names on that petition?

Come on ladies - surely someone else must want to sign this.

hunkermunker Thu 28-Jul-05 16:29:25

Yes, am a member of the Endometriosis Society - lots of good work being done there too, on not much money.

Come on ladies! This is something that will either affect you or somebody you know and care about.

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