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Anyone with any experience or knowledge of "germ cell" ovarian cancer?
Oh maybebaby - that's really kind of you. That does sound more positive - and therefore, just the kind of thing I need to hear! I know that hers was found pretty quickly, and that because she hasn't had time to get ill from it, they are able to treat her very agressively.
I echo what Shineon says. My DW had ovarian cancer about 11 years ago and she is in remission after having one ovary removed and two sets of chemo.
The label 'stage 2' sounds so simple but me and DW are biochemists and we did a lot of Googling of original medical papers and complex clinical data on US websites. It was clear to us that there are a vast range of ovarian cancer types and survival rates. It is not just as simple as Stage 1, , 3, or 4. It all depends on how aggressive the cancer is and how well the cancer cells take up the chemo. It is an extremley complex science and your cousin should ask a lot of questions and ask for second opinions. Our specialist oncologists encoraged that as they acknowledged diagnosis is very imprecise.
The doctors will be fighting to save your cousins fertility too as she is such a young woman but she must prepare herself that she may never have children if she has to have a hysterectomy. She will need huge support if that happens but she is a good way away from that yet. My DW got down to 24 hours away from having the operation but the specialists took one last look at the samples and decided to hold back and give DW one more round of chemo. She survived and we have two lovely DSs now aged 9 and 7.
On the hair loss issue, my DW had the cold cap but she was prepared to buy a wig from a really good wig maker in London. Your cousin may wish to do the same.
The cancer was very agressive - and we are waiting to see how well the chemo goes.
She is being treated by a top oncologist in London whose credentials were well researched by her father.
That's interesting about the fertility issue. I mentioned it to my cousin's dad, but he quite rightly said that their main concern was saving her life at present. It's great to hear that your DW went on to have 2 children. Congratulations!
Re. the hair loss - my cousin's family are in the fortunate position of being able to afford really good wigs etc. when necessary, so I might come back to you and ask for your recommendation.
Littlefish...i am approaching the 12th anniversary of my own diagnosis of an ovarian germ cell tumour. Each November I attend an appintment at Charing Cross hospital where the top man apparantly was based at the time of my diagnosis. Each November so far I have come away with a big smiley relieved fce.
I am well. Of course everybody has a diferent experience, but didn't want to pass your post over without saying all can be well...I'm told there is very lttle chance of me facing that particular brand of nastiness again.
Really shit, and really really shocking. dh's nephew had bone cancer at that age, I don't think any of us could quite believe it, hard as we tried to get past that. Thinking of you and your family, Littlefish, take good care of yourself.
Hello, So sorry to read about your cousin. My family are also going through a similar nightmare. Doug Kaufmann on knowthecause.com has a book called The Germ That Causes Cancer, click on STORE to see his books. His site is very informative as are his videos/tv. x
Littlefish I am so sorry to hear about your cousin. I am sending all good wishes - but I'd advise you to be more than a bit cautious about some of these erm... unusual websites and books that teatotal mentions. She's come up with a few over on the breast cancer threads and they haven't been helpful or well-received.
I don't want to cause a row or divert the thread so I'll be off, but I did think it was important to advise caution.
Littlefish - just want to send you my best wishes at a difficult time. I was so sorry to read about your cousin's cancer having spread. I've just come through chemo myslef and it must be so frightening to have this news. Wishing you strength.