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PLease come and talk to me about Glue ear and treatments

(10 Posts)
philmassive Wed 12-Aug-09 22:50:42

DS1 (6) has been diagnosed with glue ear. Off to specialist next week to discuss gromets. Anyone got any info that might help or pertinent questions I should ask?

FluffyBunnyGoneBad Wed 12-Aug-09 22:57:30

Gromits are great but they only last about 6 months then fall out. You should ask what level his hearing is at now so you can tell for yourself how much he can hear, it can also be causing a problem at school as he may not be able to hear the teacher. smile
Ask about swimming aswell, he may need ear plugs whilst he has these.

surreylady Wed 12-Aug-09 23:08:34

My DS also got Glue Ear at this age - never had any ear problems previously - we went for Grommits and have had no problems since -we did this because he was struggling to hear at school and we had hospital hearing tests that showed he was really struggling.

used2bthin Wed 12-Aug-09 23:11:39

My DD has been tested for the third time today and as stil got glue ear so is being referred for gromits. Her speech and language has been affected so I think for her it makes sense to do it but I am very worried. Does it affect your son or does he have lots of ear infections?

surreylady Wed 12-Aug-09 23:20:57

No since the grommits no ear infections - he is a swimmer and very occassionally he has leaking ears but only after quite a few swimming hours and not often - worked well for us to be honest. The change was immediate - i.e he could ear again - he did find the world a little loud for the first few hours.

used2bthin Wed 12-Aug-09 23:33:39

Oh bless him. Was he ok quite quickly after?

tw1nkley Thu 13-Aug-09 00:37:00

Hi, my dd was diagnosed with glue ear aged 3 1/2 ish. She was apparantly lip reading almost all the time and it had consequently taken us a while to realise there was a problem. She was tested at the hospital and we were told that her hearing level was at 60 - 80 decibels and that she needed grommets asap.

So... I came home and spent a LOT of time on the internet. I researched everything I could think of including possible causes of glue ear, alternative treatments, what do they do in other countries, what would happen if she didn't receive grommets, what could the outcome be if she did have grommets. We discovered that the uk had (at the time) the highest rate of grommets being given to children.

We made a descision based on all the info we could find.

We did not take our daughter to have grommets.

The 1st things on a list of possible causes that I came across on (i think) an aussie site were, smoking around the child causing congestion in the eusation tube (sp?) or an inner ear infection which has not been properly cleared causing the blockage, or an allergic reaction causing excessive mucus in the sinuses also causing blockage to the eustation tube, there were more things on the list including enlarged adenoids blocking the opening to the tube but I do not remember the whole list.

For this reason the reccomended course of action was to keep the child away from smoke at all times, give the child a course of antibiotics, try the child with antihistamines and or childrens sudofed to see if there was an improvement, remove adenoids( obviously one at a time )
All of these things were reccomended before grommets because although grommets can be a perfect solution there can be lasting effects.

With my dd, none of us smoke, she was given a course of antibiotics which had no effect, so we tried the antihistamines, no effect. We were reccomended to put her on childrens echinacea to decrease her chances of getting colds etc as any cold would make it much worse, there was a definate improvement in her hearing .

Then the gp gave her a 7 day course of childrens sudafed. Within 48hrs there was a massive difference and her voice had changed - it was not anywhere so nasal. By the end of the 7 days she could hear the clicking noise the indicators in the car made and bird song outside the window.

It was amazing!

Within 24hrs of being back off the sudafed she had lost it. She was deaf again and the nasal voice was back. We decided there must be something in her environment / diet or something that was causing her to block up. GP tenuously agreed.

I spoke to the staff in the shop where I had bought the echinacea. It transpired the echinacea also contained plantain which has a decongesting effect, they reccomended that the most likely allergens would be in her diet and would be milk and gluten.

So with some worries over messing with her diet we cut out all milk and put her onto soya. It took about 2 weeks and there was gradual improvement from about day 4, we had her hearing tested after the 2 weeks and she had gone from 80 decibels to 20. She was off the list for needing grommets. We reintroduced a very small amount of milk once a week just to be sure that her gut would continue to produce the bacteria that enables it to break down milk in the hope that one day she will be able to have milk as a normal part of her diet.

She is now 5 1/2 she has had 1 ear infection in all that time and it has only happened because we were reccomended to increase her milk quantities to see if she was still reacting.

She can get away with cheese and small amounts of cooked milk, milk contained within things sausage rolls etc is not too bad, but yoghurt / yogurt drinks are a major no no and its definately accumulative. If she has too much in the course of a week her sinuses block solid.

I realise that this is not going to be the problem that all children who are reccomended grommets have, but I do think its worth knowing what was causing her problem, as it might help someone elses dc.

philmassive Thu 13-Aug-09 12:16:07

Wow, thanks everyone!

Really interested to read your post tw1nkley. My ds had a severe milk allergy as a baby and only had soya milk, yoghurt, spread and so on until he was about 2.5. I then gradually have allowed milk products, yoghurts, butter etc until we get to where we are today and I am just in the process of letting him have small amounts of cow's milk to drink rather than soya milk.

I now am wondering if I am doing the right thing - ie that the severe reaction has passed but there is a hidden effect of the milk allergy - the build up of gunge in his sinuses.

His speech and language development is very good, to the point that when we did attend a SALT for a stammer when he was 4 they said his language was that of a 7 year old. Obviously he cannot have been having trouble hearing at that stage for him to have picked up language so successfully.

I will think some more about this and cut down his dairy intake before next week and get hold of some echinacea - there is no harm in trying after all. It may improve him enough to be taken off the list, and it's a small price to pay for not having a yoghurt now and then! If it doesn't work I won't have done any harm.

And thanks, I've now got some good questions to ask the specialist. smile

used2bthin Thu 13-Aug-09 14:39:40

I too am very interested in the milk connection as I had a milk intolerance as a baby and my DD has had several smaller problems that could be caused by food intolerances such as excema, psoriasis and acide reflux.

I agree, worth a go and would be very interested in looking at that site. I am also feeling desperate though with my DDs speech problems as she has quite a big delay so for us I think gromits may be the way forward but I will certainly do more research before going ahead with anything. Thanks for a very informative post!

ZZZenAgain Thu 13-Aug-09 14:44:26

dd had the grommets and the adenoids removed and that was the end (thankfully) of the constant ear infections and tonsilitis (!yah!)

However she often has blocked sinuses/nasality. I am very interested in that post twI and I am going to have a google about milk tolerance, she drinks A LOT of milk and has yoghurt, yoghurt drinks etc. Will have a go leaving it for 2 weeks and see if any improvement is visible. She had a lot excema when she was small too and I think shei s generally one of those dc who seem prone to allergies but we never found the cause.

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