I ahve got a really weird feeling on my hands, like insects crawling over them

[Saltire]

It is especially bad in the right hand

[Saltire]

and I can feel it on my tongue as well! When I move my hands and sort of leave them dangling by my side it eases - not much but a bit

[mcfee]

How long have you had it? I get something similar at the beginning of a migraine? Is your vision OK

[Saltire]

It's been in the past hour or so. I usually get visual disturbances before a migraine. I do have a health problem that sometimes causes me to get tingling, but not as bad as this. it's now in both hands, my tongue and my legs. but if I take pressure off my hands it eases a bit, and, oddly, its only the part of the elg that has weight on it that seems to be affected - ie now I am sitting down so it is my thighs, when I lie down its the backs of my legs

[Saltire]

It' still there, that's been about 3 hours now. It sgot really bad on my right ahnd, the whole ahnd - palm fingers, front all have this feeling of insects crawling over it

[Saltire]

and I am very very hot - sweat pouring off me,a nd my eyes seem to be twitching!

[bodgejob]

Hi I have read some of your previous posts and Would like to say that I have just been diagnosed with the same medical condition as yourself.
I also get the tingling sensation you are describing.If I cross my legs it's as though the blood is unable to reach my lower legs . It is also in my hands and I am most aware of it when i'm resting in bed.
Please try not to worry as it is a common symptom of the condition.How are you feeling today has it eased at all ?

[Saltire]

bodgejob - sorry to hear you ahve been diagnosed with this!

Have felt truly awful since Wednesday, got progessively worse actually. I still ahve the "insect" feeling on my right hand, have got pins and needles in teh palm, and have got no feeling whatsoever in the last 2 fingers of my left hand. Have got a small worm shaped black thing in my right eye and blurred vision in my left which comes and goes! And my feet and legsare sore today as well, so bad that I ahve been using my walking stick. And to think there are some who belive the condition doesn't exsist.

[bodgejob]

No one knows how awful this thing is . My main symptom is fatigue at the moment and I feel very spaced out and slightly drunk . Also I feels weird neuralgic like pain in all my muscles especially my back, hips and knees.It is truely awful.
Have you found anything that helps to improve symptoms ? I have been prescribed amitriptyline and naproxen but I dare not take them coz I have 3 small children and dont want to feel any more wiped out than i do already.
I hope you are feeling a bit better soon x

[Saltire]

I never used to get the fatigue really bad, until maybe 6 months ago, when it kicked in with a vengeance.
I actually feel quite ill, I was saying to DH today - I've had flares up before, but this time it seems to be lots of little things, all of which are quite pronounced (IYSWIM) The eye thing for example - bad pain in it and a wiggly thing in my vision, blurred vision, tingling in both hands now and complete loss of feeling in 2 fingers and pain. It's just so bad.

WRT the meds, I take co-codamol and voltarol and amitriyptiline. What does of the Amit are you prescribed? I take 20mg every night, occasionally I will up it to 40. I find that the 20mg doesn't make me spaced out.

[bodgejob]

Only 10mg of amitriptyline. Pain killers do nothing for me.
I had first bad flare up 3 months ago after period of chronic stress. Awful back and neck pain like someone was squeezing the life out of me. Then it moved around my body into hips, knees, feet everywhere really.
I also have pain in my eyes and weird vision in left eye.
These symptoms range in severity day to day but to have them all at once must be awful for you.
Have you tried changing your diet in any way .I am trying to eat lots of healthy salads and fruit fresh fish etc also take a liquid iron formula . It defo helps with the fatigue. Also I try to do a little exercise every day and am building it up gradually. I wont let this thing beat me.
Try to stay postive xxx