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Furious with NHS - they should have told me I was at higher risk of cervical cancer

(9 Posts)
CountessDracula Sun 01-May-05 12:42:32

I am very annoyed.

I went for a smear test a few weeks ago and I have just had a letter saying that it failed and I need to go and have it repeated. They included a leaflet, and when I read it is said that you are at higher risk of cervical cancer if

first had sex at an early age

became pregnant as a teenager


use contraceptives that do not act as barriers

have had a large number of sexual partners or have a sexual partner who has had many other partners

you are infected with the AIDS virus (HIV)

take immunosuppresant drugs (eg after a kidney transplant)

have been infected with a sexually transmitted disease at any time

Now call me Mrs Picky, but as I have been on immunosuppressants for TEN YEARS or more, I would have thought that someone could have mentioned this to me. It is about 6 years since my last smear as I was pg when my last one was due - do you not think they should have chased me up sooner as I am at higher risk?

Am thinking of making a complaint - I have seen numerous gps, specialists etc and not one of them have mentioned this, it is not on any of the documentation with the drugs etc.

Am I being neurotic or should I complain?

Tinker Sun 01-May-05 12:46:11

Don't know if I'd complain, perhaps write an informal letter saying you're a tad pissed off with this. After all, many of us have had a large number of sexual partners, don't use barrier contraceptives etc. Know you case is different due to having to take the drugs but, hmm, don't know. Not a useful post really. Think I would write an informal letter and request an acknowledgement.

CountessDracula Sun 01-May-05 12:49:04

yes, but all the rest are things you know about aren't they?!

I don't know how long they have been advising this, think it is a recent development as have never seen it before on these leaflets.

Tinker Sun 01-May-05 12:52:45

I agree - told you it was useless post. Doubt you get called more regularly for the other condition though. However, I would wonder why it has been 6 years in the first place, thought tehy were meant to be every 3 regardless.

lockets Sun 01-May-05 14:20:23

Message withdrawn

mears Sun 01-May-05 15:23:52

Were you not chased up within that 6 years? Women in my area get lettered to go every 3 years.

mears Sun 01-May-05 15:24:32

I would actaully phone up and ask when they started giving this advice.

noddyholder Sun 01-May-05 19:43:22

Have been in this situation and was on cyclosporin and azathioprine Have had 2 successful cone biopsies but have smears twice a year now.Also a small vulval lump dismissed as a cyst was wrongly diagnosed and was discovered 11 yrs later to be malignant Thankfully it is a v slow growing cancer and it was excised fully(i hope)but the trauma of the surgery and the worry was a nightmare.I was never warned of the risk either There are also risks of other conditions too you should really complain it is shocking you weren't told

noddyholder Sun 01-May-05 19:46:33

have just re read these.It has actually been known for years about the link.My gynaecologist is australian and had several patients in oz with cin3 on immunosuppression.

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