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severe gum disease

(86 Posts)
skymonkey Sat 04-Apr-09 13:49:12

hi all, i've lurked but not posted before, but i'd really like to know if there is anyone in a similar situation to me?
i've got severe gum disease which has got rapidly worse over the past few years while i've been pregnant and breastfeeding and generally neglecting myself.
i'm now being treated at a dental hospital and am sure i'll get good professional care and advice there but would really love to chat with fellow sufferers as i don't know anyone else with this condition and i suspect there aren't many since the consultant did say i was a very severe case especially for my age.
so anyone else desperately clinging on to their lovely teeth set in dreadful gums?

BornStroppy Wed 03-May-17 18:11:27

I HAVE SOME GOOD NEWS on the depressing dental front....

Pockets all 4 and 5 last year - I was devastated. It was my first diagnosis of gum disease.

quit fags
Raised my teepee action
bought waterpik
took vitamins c and d
started oil pulling
reduced my sugar intake.

i went to my hygenist today and my teeth were all 2-5, with a idea how this has got so much worse, but im confident i can sort that amazed at the overall improvement.

one thing hygeniest told me today: Apparently, you must also teepee vertically!!

peaceout Sat 29-Apr-17 01:00:41

not sure if it's been mentioned but I have found the waterpik very helpful for gum health

Luncharmstrong Sat 29-Apr-17 00:46:08

Can someone please explain what is so good about Philips Sonicare ?

Luncharmstrong Sat 29-Apr-17 00:44:58

Excellent idea for a thread revival !
Come on you original posters, come and talk teeth and gums !

biginjapan Fri 28-Apr-17 23:40:43

Hello, I wasn't on the original thread but have all kinds of problems - pockets of 10 at the back and a tooth at the front removed after the probe couldn't even measure the pocket. Luckily it's mostly my molars now and other pockets generally not over 3.

I have constant phased root planing and it does seem to have stabilised a bit but takes a long time. I don't think you will be in imminent danger of things getting worse in 4 weeks tbh - probably psychological (totally understandable).

Was seeing an oral health consultant today as I now seem to have lichens planus or disquamative gingivitis confused. I feel really unlucky - no fillings and oral hygiene now exemplary (for the past 10 years) with every interdental brush/single tufted toothbrush etc going...

BornStroppy Fri 28-Apr-17 22:03:37

id like to know this too, a year of rigorous dental care and three monthly checkups and my gums are actually worse, nearly every tooth is pocketed, readings broadly at 5.5mm.

i havent missed a dentist or hygenist appointment in ten years, so feel pretty upset. but i was a major fagger, so no sympathy deserved.

i am desperate for some hope.

clairelee17 Fri 28-Apr-17 11:40:58

Hi all. I'm just wondering if any of you could provide an update on your loose teeth situation after all these years?? I went to the dentist for the first time in years a month ago as I could feel the start of a loose tooth and I was in a terrible state. She said I had gum disease and bone loss, and subsequently booked me in for an advanced clean, however, I've had to wait 4 weeks for this and my mind has been racing ever since. Within the last few days, two more teeth have started to become loose from the gum and again, I'm in an awful state. They're all on the top, and it's my hen do this weekend sad I'm really struggling to eat comfortably and afraid of any more becoming loose. I have my deep clean treatment in 5 days - I have been advised that a few sessions of deep cleans and excellent oral hygiene that the gum disease can be stabilised, but I'm so impatient. Plus, I get married in 3 months, I don't want loose teeth then and afraid by then that the looseness will be worse sad

I just want to know if anyone who had loose teeth and has had deep cleans has found that this has helped to keep the teeth stable at all?

Mrsmorton Thu 13-Nov-14 19:55:41

Betty have you seen your dentist about it? Your GP would tell you to see the dentist (who can then refer you if necessary). IME, 99% of GPs won't take any responsibility for dental problems quite rightly IMO.

pinkfrocks Thu 13-Nov-14 15:59:22

Betty- can your GP refer you to a dental hospital? It might be worth asking because they can sometimes treat hard cases that normal dentists aren't managing.

As far as I know the treatment should be deep cleans of the sockets using a local anaesthetic if needed, antibiotics to kill bacteria, mouthwashes like Corsidol, tee pee brushes for cleaning between the teeth and of course avoiding food and drink that are sugary.

Woozlebear Thu 13-Nov-14 14:36:59

I've just found this thread. Haven't been to dentist for years- huge huge phobia. And after sticking my head in the sand for a long time I have finally booked an appt for next week. My gums are badly receded in several places and I'm absolutely shit scared.

Bettyla123 Wed 12-Nov-14 19:06:51

Hi, I'm Betty i also suffer from this embarrassing depressing gum disease for years too. I been going to my hygienist every three months and it has seems that my gums along with my teeth getting worse and worse. I floss twice a day brush my teeth twice or more and recently started chewing xytol gum after meals but nothing seems to be working. My lower gums have shurnk dramaticall to the point that they have shifted and now loose not to say my front teeth are also bad n gums had shurnk. I don't know what to do i don't have insurance i am basically out of pocket. I've lost all hope and resignated to use dentures. Anyone knows where i can go to save whatever teeth i can save? sad

Alexia123 Thu 09-Oct-14 12:53:07

Lightasthebreeze thank you so much for taking the time out to chat to me ! It's really helped me ! I'm sorry that you too aren't blessed with good gums !! My husband sounds like yours brushes his teeth once a day and no issues and he's not lead a healthy lifestyle by any means ! I'm trying to get him to floss and clean more but he's not interested !! Which is amazing considering hes seen me in a bit of a state over the last few weeks ! He says I've never had good looking teeth nor any of my family which I do agree on. however this is to do with the gums ! If anything we can teach better oral health to our kids !! IBig hugs lightasthebreeze !! Thx so much again xxxsmile

LightastheBreeze Thu 09-Oct-14 08:04:17

I have had gum disease since I was about 25-30, After I had DS age 34 it got worse, all my teeth are quite ropey anyway and heavily filled from the drill and fill culture in the 60s and 70s.

It just gradually got worse, I have deep cleaning under the gums every 3 or 6 months to keep it at bay, probably for about the last 15 - 20 years, I can't remember, it seems like forever and have also had the antibiotic treatment when I was about 50. All of this does help and the dental hygienist said it was not all my fault some people just have the sort of saliva that is bad for teeth and gums. My DH just give a quick brush to his and they are fine.

My pocket sizes are about 4-7 mm and have been like that for years, Now I just have them out if they get bad, I'm 56 and I guess by the time I'm 65 or perhaps before I will have a full set of dentures sad, I have had about 13 teeth out so far but 4 of these are my old ropey wisdom teeth and just have partial denture at the bottom. I'm resigned to it now as when you get older you see that other people have much worse health issues and I can even joke about my poor teeth and gums. At least having them out gradually and having a new false one put on my denture, I'm not having the horror of them all removed at once like my dad did when he was 40.

Alexia123 Wed 08-Oct-14 23:04:50

Hi lightasthebreeze smile! Thx for posting ! Yes a few are loose .... Have you been told you will loose them all at some point? Do you mind me asking what age you were when you were told
that you had advanced gum disease and what were your pocket sizes ? I know there are many many worse things that could happen up me .. But I've just got myself into a terrible mindset about it all ! I'm going to have to get a grip !
Also can I ask did you ever get referred to a periodontist and have any deep treatments carried out ? confused

LightastheBreeze Wed 08-Oct-14 20:24:43

I've got bad gum disease and have had for years, started losing my teeth in my early 50's and now have a partial denture, will probably lose more in the next few years but hey ho there could be worse health issues than a few missing teeth. Alexia, are any of your teeth loose, because some of mine were loose for years before I had them removed and were sticking right out of the gum and were quite uncomfortable, if they're not really loose they could go on for years

Alexia123 Wed 08-Oct-14 12:40:27

No it's not due to that I don't think ! I've had trouble with bleeding gums when I was 20 and then stopped .It reappeared when I had my son about 7 years ago for a short while and then since then no bleeding ! I've had three dentists in that time at the same practice and recently I went to get a filling done and a week later I noticed my gums were receeding quite badly ! I went back to the practice and they were surprised to see me . I told them about my gum fears and they probed me up and sent me to the hygentist for deep cleaning and to come back after a few months to see if that improves the pockets ! It didn't and now I have been referred to a periodontist in the nhs but the waiting list is 12 weeks! My dentist took more X-rays to send with my referral and at that stage I asked her if I was going to loose my teeth ? To which she replyed yes you are going to be wearing dentures ! As you have chronic gum disease !!! Well I started to get upset and she told me to came down as they wouldn't all fall out on my pillow !! I asked her how long they would last and she said I don't know how long is a piece of string !! That was three weeks ago and i havnt stopped crying and I have such a fear everyday ! I have multiple 6 mm pockets. I have been very stressed In the last three years and I Probablly have eaten more junk than normal but I associated that with tooth decay which I don't have alot off! I have been going to my dentist religiously ... I got a second opinion who said I do have gum disease but he thinks there's no reason why I shouldn't have the majority of my teeth when I am 60 . However i just can't believe him based on what my dentist has told me and how much my gums have receeded and the fact that I have multiple 6mm pockets and bone loss I'm feeling so anxious in case you can't tell ! I'm at work and feel so emotional . I've lost a stone in a half in three weeks due to the worry !


Madamecastafiore Wed 08-Oct-14 10:48:40

My pockets were due to grinding and so moving my teeth in the night. I now wear a retainer each night to stop me doing so and it has made a huge difference so check that you are not doing this.

Alexia123 Wed 08-Oct-14 10:45:13

Hi I'm just wondering if anyone on this thread could give me an update as yo how they have got on with this terrible disease! I've just been td I have advanced periodontal disease and that I will loose all my teeth . I am not coping at well with this ... I have such a fear and it's taking over my life!! I'm just wondering how you all are and if there is any ray of hope ...

Officiallyamazing Sat 17-Aug-13 23:25:19

Just thought I'd add my experience. I've also got advanced periodontal disease and have been having treatment for the last year. I have 80% bone loss in my 2 top teeth and 50% on 4 of my molars. I did have deep pockets, but these have all gone following deep cleaning/antibiotics. I've found that using a water jet has made a massive difference to my oral health, and for now my teeth are stable. I also have horrendous looking teeth following deep cleaning as my gums have shrunk back so much. However I have a gum shield/veneer which is basically a gum coloured bit of silicone (I think that's what it is, anyway!) that slots into the gaps in my gums (made to measure using moulds). It wasn't cheap (£750), but was worth every penny, as it means I can smile without worrying. I still hate my teeth though & spend a lot of time worrying about them...

mam29 Tue 06-Aug-13 23:31:05

Can I please join the bad gum club?

Had the worst week teeth wise.

gums been hurting for weeks

think lost a old filling about month ago.

been takng painkillers all week.

cath is have not been dentist in 10years have dental phobia since bad tooth extraction.

I also had horrid dentist a a kid.

I gave up smoking 8years ago
was just a casual smoker anyway
had 3kids in 8years.

since having kids noticed gums bled more.

they do look bit red and inflamed.

tried extra flossing, interdental brushes and brushing 10times a day.

but i can see visible gre plaque cant get off?

can I buy a tooth scraper as floss not working.

anyway booked appontment with nearest local njs dentist who had space.

I explained I had dental phobia

i was really nervouse.

They were not english just 1 lady dentst and her nurse plus rceptionst who seemed the nicest of the lot.

whilst waiting i heard rceoption ring loads people reminding the when their appoitments were which seemed bt odd as she must have rang least 5people.

The lady before me 3pm looked really upset when she came out.
hubby had kids iutside as was told they too noisy.

when i went in their engish was fine interpersonal skills not great.

she said i had advanced perondtas and could lose all my teeth by time im 40.

I was bit upset.

i had lost filling which she said she try refill or extraction.

as for treatment about gums she said needed 3cleans but would not expain how they clean and told me yes it be painful and she could seate me but if i couldent cope and acted like im being silly then dental hispital could put me under.

im really scared

she was really off and said take antibiotics/cordosol
keey brushing, flossing

the book in for more treatment if i want to keep my teeth.

she looked at me it total horror and sgust and made me feel quite crap.

I asked about pregancy and shes says that common excuse.

I admit not always flossed but always brushed
dont eat lots sugary stuff.

she dient even say goodbye i realy dident like them

is it too late to change?

i did search locally and all the ones who deal with dental ohobia are private.

today cost me £18 for 15min check up then any subsequent treatment be £49 as band 2.

if i need lots of treatment i think i need to go someone who puts my midn at ease.

i found current one through nhs find a dentist and had good 3star rating.

found another few miles away has 5stars looks much better modern bright practce says they good with dental phobias missedit before as was page 10.I ont mind travel find the right dentist.

horrifie how they can call it nhs no wonder uk has teeth problems.

im really scared and upset was she trying to scare me?

I dont disbelive i have gum disease but no teeth are loose apart from red inflamed gums and some visible plaque my teeth are fine.

Told my mum who said my fault as dont brush properly and not been for years.To which I say hows your dentist ad she says she hasent been in years and hates going same time as lecturing me for being slack.

will the antibiotics help?

i taking loads painkillers for the pain.

I hate chewing gum would chewing starburst have same effect?
whats a sonar brush?
any specific toothpaste I should be using?
apart from interntal brushes can i try get rd of plaque at home in any other way some bits has loosen over last few weeks and scraped away with nail knife.

im devestated and scared. I know I need treatment.

I guess next step is try reregister with someone more sypathetic,

woderng if i might be bettr off having 1 big clean at dental hosptal under general?

wish I had money to go private.

mys ssters training to be dentist bt has another 4years to go ad helping poor people in inda for next 2weeks.

shes in it for money and wants to get into high end cosmetic dentistry so maybe she be help further down the line.

my husband has awful teeth loads chipped, missing and fllings but he says his gums are fine..

Littleorangetree Tue 09-Jul-13 21:00:27

I am in the same boat as everyone here - severe case of peridontitis with alot of bone loss and I'm in my mid thirties. I was also told it was very rare to see in someone at my age and whose teeth were in good condition. When i was first diagnosed I was in complete shock and freaked out! I was referred to the dental hospital and I had treatment that involved a very deep clean around all my teeth (debridlement?), antibacterial gel around all my teeth and a course of heavy duty antibiotics.

I was told to clean thoroughly with interdental brushes and use mouthwash. I have to go for regular checks.

I feel so relieved that I'm not the only one going through this!

I'm trying not to think too hard about losing my teeth, but it may happen. My dentist has been very good about it and even though the treatment was pretty horrible, I'm feeling more positive now. Can't believe how different my teeth look compared to even a few years ago. They're all gappy now and my gums have receded alot.

Renpc Tue 02-Jul-13 10:53:39

Hello everyone.
I have been diagnosed with a pretty severe level of Periodontitis just last week, and I don't have to tell you how scared I have been since. I had my teeth cleaned and I have started a proper oral hygiene with Sonic and interdental brushes, chewing xylitol gums after every meal. My teeth don't wobble or anything visible and that's what worried me the most..that I had no idea and no I am 15 weeks pregnant and read a lot about the interrelation of severe gum disease and preterm birth. It increase the risk of PB by 30% . I am really healthy and have been taking care of myself so well..except my mouth I's never too late though.I am really stressed out about the baby. that what matters the most to me. Has anyone had this experience or has consulted the doctor regarding this issue which is still subject of debate in the medical world? thanks a lot

OrangeMabel Thu 09-May-13 16:36:52

Leanne - when I was about 32 I went to a new hygienist who scared the hell out of me by telling me my gums were so bad that they would be loose in 10 years time. 18 years later they are all (knock on wood) firmly in my mouth.

I never returned to that hygienist and suggest you find yourself another dentist, have an assessment and take it from there. There's lots that can be done and you need a supportive dentist not one that scares you.

In my case I just got a sonic care toothbrush, alcohol free mouthwash and learned how to floss properly.

And, worse case scenario, if you were to lose teeth they can do bone transplants so that you can have implants. However, it probably won't come to that - just find a sympathetic dentist.

LeanneAndBump2013 Wed 08-May-13 20:32:39


I’m hoping people still check this discussion as I found it very relieving to read that other people are going thought what I am!

I am 24 years old and have just been diagnosed by my Dentists with advanced Periodontitis and I am completely devastated.

At first I was advised it was gum disease and I had my gum pockets measured, the measurements didn’t mean much to me as this was the first time I had these taken however following my appointment I realised how severe the disease was and how deep the pockets were so booked another appointment with my Dentist to discuss again. She confirmed with me that I have advanced Periodontitis and that my teeth would start coming loose in around 15 years (39 years old!). This was a massive shock to me and I have been devastated thinking about it since. My teeth are perfect and I don’t have a single filling but some of my pockets were 7/8mm deep.

I can’t believe I didn’t notice how severe it was sooner, my gums are visibly receding, much worse on the bottom set. I am pregnant so have been told the change in my hormones don’t seem to have helped the matter.

I was just wondering if anyone else suffered with this disease and how bad it can be? Would the Dentist just be giving me the worst case scenario by her saying my teeth would become loose in around 15 years? If the worst case scenario was to happen, are they still able to fit replacement teeth? It has also been confirmed that my bone has already been affected so I’m worried that if my bone and gums continue to deteriorate I will be left with gaps in my teeth and not be able to be fitted with implants / bridges / crowns to replace the teeth.

Any advice would be appreciated as I have got myself in a total state about it and convinced I am going to be totally toothless by the time I’m 40 blush help please!

christinechristine Tue 17-May-11 23:53:16

hi skymoney and everyone else on this forum
I have had the same problem as many of u av,concerns about my gums,neva had gum disease or bleedin apart from in pregnancy in 2004, however think it was aggressive brushin that caused it initially,however last 2 years the gums on bottom 6 teeth are still receeding!av been so worried and dentists are so annoying dont care a bit!
since last 8 months av receeded badly dont know wether cos sonic toothbrush stopped working and av got a rotating braun brush dis tym,but gums seem to av recedded wid dat,
i have since last year taken high strength vit c 1000mg,co enzyme,even bought alkaline water filter lately as read that drinking alkaline water causes the blood to become alkaline so bacteria in mouth dont like alkaline conditions,

Am really worried been dont know where to see a dentist and which ones to trust,current dentist doesnt care and i asked for gum specialist referal but that was nothig important also been to see sumne private but got ripped off as paid 200 for consultation and nothing else.

please someone let me know more about your advice and help as was thinking of getting pregnant dis year but know dreading after reading all this forum and effects o pregnancy


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