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Dad just been diagnosed with kidney failure....(3 Posts)
MY mum had renal failure about 6 years ago, but this this MAY have been due to a virus (she does have lupus too!)She was on dialysis 3 times a week for only a few months then,slowly but surely her kidney functioning improved and she had been on medication only...until a few months ago!
She had her last renal check in September but by Xmas was feeling really poorly. Her Doctor carried out blood tests which revealled that her thyroid was not functioning properly either!
With further tests, she ended up in hospital for almost a month, encountering loads of complications with renal lines and blood clotting (she has thrombosis!) but eventually a line was put in sucessfully and she has been on dialysis again as an outpatient for nearly 2 months.
I don't want to be negative, but ATM it is still having such an impact on her life, but it is still in the early days for her.
I feel the worst impact for my mum is that the renal unit is so far away, we are in mid Kent and she has to travel up to King's in S/E London. She is collected by St Johns Ambulance at about 10-10.30 and doesn't get home until 7-8pm!
There is another unit more local, but because she has so many other complications, I think they want her at King's where all the "specialists" are.
One of her main problem ATM is fluid retention, they have been draining 3 litres of fluid off every session and she has a fluid restriction of 750mls a day. On Monday there drained 4ltrs off of her!
The doctors now think that this is not another infection, like last time,as she has not made sufficient progress. It seems that this will be a permenant thing for her. That means that the line she has in will need to be removed for a more permenant "fiscular"(sp?) to be put in.
It is early days for us all, I am sure that things will settle down and improve as it is putting a lot of strain of both my mum and dad.
I am sorry to hear your news- let's hope that things will get organised quickly for your dads sake and for the rest of the family's!
Firstly, I'm so sorry to hear about your father and my thoughts are with you.
My father-in-law has had two kidney transplants - which worked for 20 odd years but they have now failed so he's on long term dialysis. He has this 3 times a week for 4 hours a time. It's complicated in that he's also had two anneurisms (?spelling), his leg amutated and has just been diagnosed with lung cancer.
That said though, his quality of life is still ok. It does have its restrictions in that you can only go away for limited amounts of time unless you transfer your dialysis to a local hospital. Going abroad is more difficult but again is ok if you can transfer. My father-in-law gets incredibly tired after some of his sessions and has to sleep for the majority of the afternoon. He's 68 and not in great health generally though which may add to this.
However, he remains happy and positive (for the majority of the time) - and actually us having children has really helped as they're a real tonic for him so I'm sure this will be the same for your rather too.
What I should have said was that in the early days before he had his first kidney transplant he actually had his dialysis at home and a separate room was set up for thisw. I think this put a lot of pressure on the family and due to all his other health issues he now has to have it in hospital which I think is better - he gets to chat to the other patients, reads a lot, sleeps a little etc.
Hope it all goes well and please shout if you want to talk.
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