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Can anyone help please [sad]

(8 Posts)
kail Fri 11-Mar-05 12:38:23

My daughter is now 17 weeks and only weighs 10lb 14 oz eventhough her birth weight was 9lb 4oz! I started off breast feeding for 6 weeks but there was no weight gain so i swithched to bottle feeding, things just got worse we found out at her 8 weeks check that she was very floppy for her age and her weight gain was extremely poor. (maybe due to her being sick alot?) She never really took more than 2ozs of feed at a time. She was admitted to hospital in January and after spending a week there with hardly no weight gain. She now has a nasal gastric tube in and is fed high protein milk with thick n easy in it and she is on anti sickness and anti acid drugs.(she can no longer feed from a bottle).She has has all sorts of test including MRI scans, ultrasounds of brain, digestive system plus many more test all results have been negative!!
I am in such a state and nobody can seem to offer me any help or support. Is there anyone out there was has been through anything like this? I just need to know that i am not the only one!!
Thanks Kail

yoyo Fri 11-Mar-05 12:58:45

Have no experience but didn't want you to feel ignored. Apart from the weight problem is she developing as you would expect? Hope you find some answers soon.

Reethi Fri 11-Mar-05 12:59:04

Hi, I do not have any personal experience, but a cousin of my dh had very similar problems with her dd. She too was admitted to hospital and similar tests were carried out including tests for cystic fibrosis as apparantly that can cause feeding and weight problems, they could not find anything wrong, she did have a small hole in her heart (they knew this at birth) but it was not serious enough to warrant surgery and would close by itself. She is now 4 years old, she is very small for her age but there are no health problems.

I am sorry that I cannot help you. Doctors are not always the most understanding of people, try and push for support as they should be providing something for.

Sending you and your daughter lots of love and I hope you both feel better soon.

serenity Fri 11-Mar-05 13:25:06

just bumping this up for you..

piffle Fri 11-Mar-05 13:34:22

I've posted on the other thread too, as have many others

chipmonkey Fri 11-Mar-05 13:52:09

Kail, is she still in hospital or at home?

kail Fri 11-Mar-05 22:03:46

she is back home now, but she usually spends one week out of the month in hospital while they investigate.
It's not easy as i have two other children and trying to juggle them can be a knightmare.
I am so happy i found this site though i have had lots of lovely people showing us there concern, and just knowing i am not alone is such a releif.

kail Fri 11-Mar-05 22:08:04

Unfortunetly no, she seems to be ok mentally but she is struggling physically she can only just hold her head up without support this could be due to poor weight gain but nobody knows yet!
Waiting to see geneticist see if they can find anything doesnt look hopeful that thet will!but i am hanging in there

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