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Noddyholder, iliketomoveitmoveit, and others interested in Peters blip last week, his tacrolimus levels have come back...

(24 Posts)
misdee Mon 11-Aug-08 17:41:11

High!

he is reducing his dose now on harefields advice, and repeat blood tests on thursday.

local surgery nurse has written him up for every blood test going in preparation for next weeks big one year check.

FabioFridgeFluffFrenzy Mon 11-Aug-08 17:42:34

So it definitely wasn't a heart attack?

<paws crossed>

<topples over>

Saggarmakersbottomknocker Mon 11-Aug-08 17:48:11

Oh good - well not good, but good you have a reason for his blip.

<Oh you know what I mean smile>

BoysAreLikeDogs Mon 11-Aug-08 17:49:31

Surely it's not a year, misdee??

shock

Amazing

LackaDAISYcal Mon 11-Aug-08 17:49:52

phew misdee; at least they can now deal with it.

Can't believe it's a year already...are you celebrating with something nice?

misdee Mon 11-Aug-08 17:51:10

not a heart attack. grin

but it's highly likely its the reason for his strange turn, and the ongoing unwell-ness he is feeling.

am still angry that it took some people from an online community to twig what was wrong with him, and not the medical staff (thank you NH and ILTMIMI), and it still took them half a day to get the right bloods drawn for it.

those levels came back high even with him missing a dose.

FabioFridgeFluffFrenzy Mon 11-Aug-08 17:54:10

grin grin grin grin grin grin

PHEW!

God bless mumsnet.

misdee Mon 11-Aug-08 17:56:13

mumsnet is bloody fab!

mwah mwah

[hands out free chocolate]

NormaStanleyBelcher Mon 11-Aug-08 17:57:01

Oh GOOD

MN is fucking fab

(shouldn't have needed MN for that though - agree with your angry

Saggarmakersbottomknocker Mon 11-Aug-08 17:59:17

Ooo chocolate.....yum grin

misdee Mon 11-Aug-08 19:16:28

...

noddyholder Mon 11-Aug-08 19:23:23

hurray I know how he feels I had several what were suspected 'strokes' lost control of a pen and speech once v scary and had constant tingling So glad he is ok mouth ulcers will go now too!So glad you have had good news xxxxxxxx

misdee Mon 11-Aug-08 21:48:48

oh he'll be happy if it clears up his mouth ulcers as well.

next time we will by-pass lcoal hospital if possible and take him straight to harefield.

MerlinsBeard Mon 11-Aug-08 21:55:04

thats fantastic news misdee. well you know what i mean. I am so so angry that some words ona screen "diagnosed" Peter when your local hospital couldn't.

VeniVidiVickiQV Mon 11-Aug-08 21:58:14

Fucking ace grin

Well done NH and ILTMITMI grin

Lio Mon 11-Aug-08 21:58:54

I love MN and I am so glad Peter's un-wellness is not as unwell as it might have seemed, if you see what I mean!

LilRedWG Tue 12-Aug-08 11:01:38

Well done ladies!

I'm so glad it wasn't a heart attack

hippipotami Tue 12-Aug-08 11:05:27

Oh, I am sooo glad it was not a heart attack.
Is there any way you can write to the local hospital or get harefield to do it, and effectively get them to improve their service to transplant patients? After all, they did not appear to have a clue did they?

But happy for you and Peter and the girls that all is well smile

misdee Tue 12-Aug-08 17:31:50

i spy iliketomoveit

ILikeToMoveItMoveIt Tue 12-Aug-08 17:37:32

You did indeed smile

Great (sort of hmm) news, am so glad you've got some answers.

I hope all goes well for the anniversary check, although I guess that may involve a biopsy?

I hope you are also taking time to look after yourself during all of this (stern finger-wagging emoticon)

wannaBe Tue 12-Aug-08 17:40:05

can I ask..

what is the tacrolimus for?

Am so glad it was nothing too serious. but bloody hell has it been a year already?

misdee Tue 12-Aug-08 17:56:01

tacrolimus, along with MMF is an immunosuppressant.

he is due at harefield later this month, overnight stay, having biopsy and angiogram.

Slouchy Tue 12-Aug-08 18:00:43

PLeased to see the good news misdee.

Happy 1st anniversary to peter's heart!!!

Twiglett Tue 12-Aug-08 19:13:13

oh that's great grin

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