Hi, I've posted recently on another thread that my 19 week old has been diagnosed with a rare neurological problem called polymicrogyria. He started to fit and we went to A&E who admitted us, lumber puncture showed excess white cells and protein so viral encepthalitis suspected - however baby continued to fit and we were transferred to a larger teaching hospital with a specialist paediatric neurologist. After numerous EEGs & MRI he has, as I said, been diagnosed with PMG (as we now so blithly refer to it as). We now know that he will probably have seizures throughout his life which can hopefully be controlled with drugs (not yet tho' - other than that we have no idea, other children with PMG vary between being very severely disabled/retarded to just being a bit "slow". I think that maybe this not knowing is the hardest as I am watching his every move for retardation/advancement. I think I am also still recovering from the 4 weeks in hospital with him, as are my dear dp and two other boys. I am swinging from despair to hope by the minute and wondered if anyone else has been in a similar situation and if so how you came to terms with it.
Many thanks - Adelaide
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General health
Coming to terms with baby having probable "special needs"
8 replies
Adelaide · 18/11/2002 20:42
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29/10/2012 09:22
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