Anyones baby been born with epispadias?

[Mumwithaquestion]

Think this is the right area to put it.

[fryalot]

It probably is the right place to put it... sorry I can't help, but I'll bump it for you. Hopefully someone out there can give you some advice

[Mumwithaquestion]

Thankyou very much for the bump. Basically my son has to go for an operation early feb and a laparoscopy but hate the thought of him going under anesthetic *sp. He is only 7 months.

[frazzledazzle]

My DS1 who is 4 was born with this condition.

I think treatment differs depending on the severity of each individual case,but if you have any questions I'll try to answer them

[frazzledazzle]

My son had a repair op when he was 11 months old.

I know how you must be feeling at the thought of anaesthetic it's awful isn't it?

My son will be having a laparoscopy within the next year to see if they can do a bladder neck repair.

[Mumwithaquestion]

Well they think he can hold his wee ok, so we are going for a nappy test first so they can see whether they need to do one operation or another. once they know that they are going to do a laparoscopy to see what going on and then do the operation. Its all abit scary though, another thing is he will only sleep on his tummy and i assume he is going to be ever so tender on that side. I think he can hold his wee no problem so will just be a case of the repair op i think. I didnt realise how scarce it is really as the common one is hyperspadias. So fingers crossed all goes ok. We will be there for a couple of days. Thanks for your reply. Did your son go to London for his op? xxx

[frazzledazzle]

My son had his op at Pendlebury hospital in Manchester.
I hope it all goes well for your son,I'm sure it will!
It's a positive sign that they think he can hold urine isn't it!

[Mumwithaquestion]

yeah, i hope so too. he is having his at great ormand street hospital. Yeah i am pretty positive he can hold his bladder full so lets hope thats what the results of this nappy test show too. thanks for your help x

[Momwithaquery]

Appreciate these posts are old but I was just wondering how the surgeries for these boys went and how they are doing now.