Hi. I was diagnosed with early, very small BC in February 2020. I had surgery, followed by radiotherapy then just placed on Tamoxifen 20mg for 5 years. Since taking Tamoxifen I have gained 10lbs, struggled with excessive bloating and digestive problems, suffered with vaginal dryness and UTIs and painful joints.
6 weeks ago I stopped taking it on advice from my surgeon, prior to my tummy tuck operation. I quickly noticed that my joint pain disappeared and I've lost the 10lbs (without trying at all) and that my vaginal atrophy issues have gone. My digestion has improved and basically I just feel much brighter and better in myself.
Consequently, I am very reluctant to restart Tamoxifen. I contacted my oncologist and he (grudgingly) admitted that my overall protection benefit from taking Tamoxifen is only 0.7% as opposed to not taking it! I'm so shocked! Originally, I was told that taking Tamoxifen increased my protection from reoccurance by 50%!
I'm really interested to hear from anyone who has made the decision to stop taking Tamoxifen because the unpleasant side effects vastly outweighed the benefits.
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Anyone else chosen to stop Tamoxifen?
13 replies
peaceanddove · 15/06/2021 16:18
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