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Fluid back in Dh's abdomen, this means the drug ttreatments have stopped working

(202 Posts)
Blandmum Tue 02-Oct-07 14:11:49

Dh has been in increasing pain. the last CT scan showed no-regrowth of the tumours but the pain has been increasing so the consultant sent him for an ultrasound.

there is fluid back in the abdomen, not a lot, but this is a strong indication that the drugs have stopped working. There are no other treatments available, other than something in clinical trials which might buy us a month.

The consultant has sent us away for a months holiday from the drugs and will review the case them. But in reality I feel that she is just doing this to break us in gently.

We knew it would happen at some point. Still so hard to deal with.

codswallop Tue 02-Oct-07 14:12:19

Oh mb me ol mucker. i am sorry.

hoxtonchick Tue 02-Oct-07 14:12:22

oh mb .

Kathyis6incheshigh Tue 02-Oct-07 14:13:19

sad

WendyWeber Tue 02-Oct-07 14:13:30

Sorry, mb sad

LadyTophamHatt Tue 02-Oct-07 14:14:13

Ohh MB.

I'm soooo sorry.

TellusMater Tue 02-Oct-07 14:15:15

Bollocks sad

ahundredtimes Tue 02-Oct-07 14:16:05

Oh MB, I am sorry.

What are your and dh's thoughts on the clinical trial drugs?

singersgirl Tue 02-Oct-07 14:16:23

sad

Tutter Tue 02-Oct-07 14:16:30

sad so sorry mb

TheMadHouse Tue 02-Oct-07 14:17:10

I am so sorry sad

KTeePee Tue 02-Oct-07 14:17:48

sad

tortoiseSHELL Tue 02-Oct-07 14:18:28

oh I'm sorry to read that mb. sad

Twiglett Tue 02-Oct-07 14:18:29

oh arse bollocks

love to you all

Issy Tue 02-Oct-07 14:19:40

sad

I don't like emoticons, but there is really nothing else to say. I'm sorry MB.

MaureenMLove Tue 02-Oct-07 14:22:00

Sorry to read this sad

pooka Tue 02-Oct-07 14:22:41

Oh MB
Hard to know what to say.
But what a lovely time you've had in the last few months. Such small comfort though...
Was thinking of your dh only the other night when stumbled on RAF videos in youtube and remembered you telling about his trip in the spitfire. If you search SPitfire low pass, you can see a fab one.

margoandjerry Tue 02-Oct-07 14:23:39

Oh MB. So sorry to hear that. Is there any chance the CT scan is a truer picture than the ultrasound?

lionheart Tue 02-Oct-07 14:23:43

Sorry to hear this, MB. Is the pain being managed properly?

Anchovy Tue 02-Oct-07 14:23:48

I'm sorry MB. I'm sending strength and love to all your family.

GooseyLoosey Tue 02-Oct-07 14:23:52

Very, very sorry!

RubyRioja Tue 02-Oct-07 14:24:36

Oh dear. Is it possible to drain fluid to releive symptoms, or does it not work like that?

belgo Tue 02-Oct-07 14:25:14

I'm so sorry MB.

saggarmakersbottomknocker Tue 02-Oct-07 14:25:44

oh dear MB sad

Blandmum Tue 02-Oct-07 14:25:47

RE the new drug, there is no way that he would get it on the NHS, as it hasn't gone through NICE, and costs £30,000 a year. Dh may contact the RAF to see if they will pay. I have told him that we could cash in savings etc, but he doesn't really want to do that.

It will have to be his call. It is used more in lung cancers, but there is some clinical trial work in pancreatic tumours in the states (not the UK).

It has to be his call, he has already gone throughso much drug treatment. He has to be sure that the extra time, if any, is actually worth having IYSWIM. depends on what his quality of life would be. Sorry if I sound clinical about it, it is the only way I can deal with things ATM

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