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Underactive thryoid questions

(4 Posts)
Pigwig Wed 12-Sep-07 13:57:02

I was diagnosed with an underactive thryoid a couple of years ago and despite treatment I still do not feel entirely well yet. I have been reading alot about the treatment and management of this condition and frankly I am dismayed. I would like to ask any of you who suffer from this condition several questions - 1. Do you feel that your condition is managed well (by GP or specialist)? 2. Do you feel well on your current treatment? 3. If you know what your TSH and T4 levels are, do you think they are representative of how you feel?

I am not convinced that measuring TSH and T4 are the best ways to determine treatment. I would love to know what you all think. Thanks so much.

serenity Wed 12-Sep-07 14:08:45

1. No idea really - go and have my levels measured every 6 months but that's about it. Do feel that my crap levels (at the time) caused or contributed to my m/c and was pretty pissed off that no one thought of warning me not to try and concieve until after they got my dose right.

2. Compared to how I felt before I was treated, I feel great smile, but it's taken a while to get here (was diagonsed in 2000)

3. Don't know blush I keep meaning to find out my actual results, but it's such a hassle to get an actual appointment at my GPs that I tend to just go along with the receptionist telling me that my results were 'fine' and not bother with getting more info.

TimeForMe Wed 12-Sep-07 16:55:03

I was dx with underactive thyroid 13 years ago and NEVER felt well. My life seemed to have changed forever. My levels fluctuated from blood test to blood test and the doctor simply increased or decreased my dosage of thyroxine, he never looked into the reasons why it was so unstable.

Then a couple of years ago I became quie seriously ill. To cut a long story short one of the tests I had revealed that I was non coeliac gluten intolerant. The intolerance to gluten has a damning effect on the thyroid.

To shorten the story even further, since cutting out gluten from my diet I feel like a new woman, better than I have felt in years! And my thyroid levels are at last stable.
In fact, in cases where too much damage has not been caused by the gluten, removing it from the diet can enable the thyroid to work normally again.

I would say its well worth a try, keep taking the thyroxine, remove gluten from your diet, give it at least 2 weeks to a month and see how you feel then.

Good luck!

TimeForMe Wed 12-Sep-07 16:56:15

PS coeliac disease or gluten intolerance can cause m/c too.

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