Has anyone got experience of Central Retinal Vein Occlusion?

(3 Posts)
AForest Fri 13-Mar-20 18:36:33

I've had visual disturbance in my right eye for quite a while. They go quite quickly and I was diagnosed with retinal migraine. In the last couple of months I have been getting them daily and now the visual disturbance is constant. It is like cloudy spots in my central vision. It's worse when I wake up and I can hardly see at all.

I saw the optician today and have been referred urgently to an eye specialist on Monday, but I am now worried the vision problems may be permanent or get worse. The referral said I have CRVO with macular involvement and disc oedema. Slightly scared by that.

Any experiences?

OP’s posts: |
Donteatthekidssweets Fri 13-Mar-20 18:42:38

My husband has macular occlusion. We waited for an nhs appointment which took weeks so had to see a private specialist. By then he couldn’t read any of the letters on the chart. He’s now had one injection and it’s much better. Needs 2 more. Not sure if this is exactly what you have, it was described to us a a small bleed about 1mm wide in the centre of the eye and the lack of vision was due to the body surrounding this with liquid like a bruise.

AForest Fri 13-Mar-20 20:04:43

Thanks for the reply. It sounds similar. For me the vein is blocked so I have haemorrhages at the back of my eye as the blood has nowhere to go. A bit scary but I will try not to worry. Hopefully I will get some improvement once they know the cause.

OP’s posts: |

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