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Am on my break from my pill and really not coping with the pain at all. I normally don't have a break because I am scared of how much pain I end up in, but I have run out, so can't start taking it again until probably thursday.
Anyway, my stomach cramps are just awful, my very lower stomach is so sore and last night as I was locking up, I had to suddenly sit on the floor becvause it hurts so much, and again this morning whilst making breakfast.
I take Ponstan, but A) it takes too long to work and b) it never takes the pain away enough.
Is there anything else I can do to make me feel even a tiny bit better ??
I am wondering if the root cause of the pain you are having is due to endometriosis. Being given ponstan is another clue to my mind. Some GPs as well are next to useless when it comes to dealing with such problems.
I would visit your GP, explain that the ponstan is not working (its certainly not addressing the underlying cause) and ask for a referral to a gynaecologist. Something is causing this and it needs further investigation.
I found that a hot water bottle and painkillers took the edge off the pains but more often than not I just had to ride it out.
I would say though that if this is endometriosis it is often only diagnosed through a keyhole surgery operation called a laparoscopy. Other methods like swabs, ultrasounds and blood tests won't detect it.
Seek answers, it is certainly in your interests to do so.
Have you ever tried the magnet you wear over your tummy? You need to start wearing it a week before your period to get the best effect but it did help my daughter. You have my sympathy - I sufferred terribly before I had DS, I took Ponstan for years, but had to start it a day or two ahead to get the effect. I found that always keeping my blood sugar even (thoughout the month) helped to balance the hormones and reduce the pain - it's recommended for PMT but it does seem to help with the pain as well. Hope you can find something to help.
Attila, my gp refuses to refer me unless I try having a coil first.
Am I correct in thinking though, that you have to have the coil fitted whilst on you are on your period ?? That would be a problem, because despite all of the pain, I actually only get very mild spotting, not a proper period. As the pain as got worse, the bleeding has got less and less, and sometimes I don't come on at all, but still get the pain.
I have always had bad period pain, but since having ds nearly 5 years ago it's just got so much worse.
I will have a look out for the magnet thing Flamingtoaster.
I cannot survive without it. My cramps get so bad I throw up and shake from the adrenalin. They are just awful. Takes about 30 mins to kick in - the key is to try and take the pills before the cramps start but I find it impossible to predict when they are coming. Now I just take them at the EARLIEST sign of a cramp.
You can get it over the counter. It's called Buscopan IBS as it's sold for the cramps people get for IBS but it used to just be called Buscopan and it works brilliantly on awful period cramps.
but I agree with the gynae referral (I did try the coil first and it did nothing for me - in fact, the side effects were awful. And no, I didn't have to have it fitted when I was bleeding - I think I had to not be bleeding).