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Pulmonary fibrosis

(4 Posts)
Jinxed2 Wed 20-Nov-19 18:45:58

Has anyone dealt with this in a fairly young person? My husband is 42 and the thoracic consultant thinks this may be what he has. I have terrified myself googling the prognosis.

OP’s posts: |
MotherForkinShirtBalls Wed 20-Nov-19 19:03:22

Is it idiopathic? The British lung foundation had an IPF support officer a couple of years back (haven't had contact in a few years so not sure if she's still there) so it might be worth contacting them.

Jinxed2 Wed 20-Nov-19 19:13:55

We are presuming so yes, thank you

OP’s posts: |
MotherForkinShirtBalls Wed 20-Nov-19 19:43:49

If you haven't yet, you should ask about seeing the physiotherapy team and you'll hopefully have access to a nurse specialist who will be able to answer questions you might have. The Irish support group has some excellent resources - www.ilfa.ie when you're ready to get more information (and you have a clear diagnosis).

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