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Thoracic outlet syndrome

(7 Posts)
doyoueverfeellikea Mon 16-Sep-19 19:03:08

Does anyone have this and want to chat about not sleeping and what to do about it?

OP’s posts: |
Aquamarine1029 Mon 16-Sep-19 19:06:59

I have this, caused by a traumatic injury. I had to have major reconstructive surgery, but obviously, once severely injured you never go back to complete normality. It's very painful and I'm sorry you're suffering with this.

Aquamarine1029 Mon 16-Sep-19 19:07:48

I have to sleep on my left side with my right arm elevated on a pillow beside me.

doyoueverfeellikea Mon 16-Sep-19 19:18:46

I am still waiting to be diagnosed by the dr but I'm seeing a private physio in the mean time who tells me to exercise. Sometimes hard at 3 in the morning. When were you both diagnosed and how long did it take for you to see someone who knew what they were talking about. So far I keep being referred for bloods and the nhs physio have washed their hands of me as I have started with a tremor

OP’s posts: |
Aquamarine1029 Mon 16-Sep-19 19:23:07

I was diagnosed 25 years ago and I went to a private doctor.

doyoueverfeellikea Mon 16-Sep-19 19:29:22

Do you still work if you don't mind me asking? 25 years on with any surgery?

OP’s posts: |
Aquamarine1029 Mon 16-Sep-19 19:32:30

I've always worked. I had my surgery over 20 years ago.

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