I was diagnosed with epilepsy when I was 16. For 7 years my life involved living with seizures and the restrictions that came with it, drug dose increases with some horrible side effects but finally, on that 7th year, I found myself on a dose that stopped my seizures.
Four years later I met my now DH and we now have two children aged 2(next week) and 5. During my pregnancies I had lots of issues with my drug doses and blood levels but under close management I managed to get through both pregnancies with no seizures.
The other day I went to work and completely out the blue, after 13 years of being controlled, I had a seizure.
I am bereft. I am so, so upset and can’t stop crying. I’ve got to send my driving licence back and my life as I know it is going to have to completely change. My Managers have now got to risk assess me because of the nature of my job and everything is going to have to change. I can’t take it in and I think I’m in some kind of shock.
Me and my husband are bickering. He’s been thrown into this, he’s never had to deal with my epilepsy before because my seizures were controlled before he even met me. I think he’s in some kind of shock too. He’s trying to fix everything but it can’t be fixed.
So many things are going round and round in my head, over and over again and I can’t make any sense of it.
I don’t even know why I’m posting.
I’m just struggling and I don’t know what to do.
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General health
Epilepsy - I had a seizure and I’m devastated.
31 replies
QueenofmyPrinces · 08/08/2019 12:29
OP posts:
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