I was referred for a scan due to heavy periods. They found a suspected cyst on one ovary, and rescanned this week (a couple of months after the first scan) to see if it had gone. It hadn't. I'd already made a GP appointment to follow up the scan next week, but they just called back saying they wanted to see me ASAP, but aren't pushing for me to come in any sooner.
I'm utterly terrified. I'm 40 years old and I have three very small children. I'm now fearing the worst. I've stopped myself from googling, but I do know that ovarian cancer is not a great one to have. I know there's other things it could be, but getting a phone call from the doctor has really put me in a spin. I have some of the symptoms of cancer, but not all, and some of those symptoms could be attributed to something else, like endometriosis, which the sonographer suggested as a possibility.
I just don't know what to think. There's no cancer in my immediate family, but I have experienced others having it (not ovarian though) and the outcomes haven't been good. I'd kept it from my husband until the doctor's phone call, when I broke down a bit. He's being sympathetic, but is trying to convince me I don't have the symptoms, when I know I sort of have some of them. But surely everybody gets things like bloating, abdominal pain and tiredness sometimes?
I don't even know why I'm writing here. None of you can tell me that it'll all be ok. I just felt like writing it down.
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"Something" on ovary - handhold please
Slinkenconken · 31/07/2019 18:17
I know the worry you're feeling because I've been there. In similar circumstances I was given an appointment with the consultant at hospital within 48 hours, and family members have had same day appointments for things which are equally serious. The fact your appointment is being kept as next week and with your GP is reassuring to my mind. The NHS works really quickly when they strongly suspect cancer.
I know it's easy to jump to the worst possible scenario but hopefully this might help you to put it into perspective a little. It is so hard at the time though 
for you OP
I have endometriosis, and my mum had ovarian cancer. I can tell you that your symptoms were incredibly similar. It’s also very difficult to differentiate clinically because the CA-125 blood test that’s raised when ovarian cancer is present can also be raised due to endometriosis, and other things.
Have you had a CT scan? They sent my mum for one very quickly after her CA-125 levels came back extremely high.
I can tell you that, in my 15 years in endo support groups / boards, I’ve spoken to countless women who got to your age, had multiple children and had no idea anything was wrong until they got a cyst or needed surgery for something else. Endometriosis symptoms vary greatly from person to person - I have pain every day, some women only have pain during periods of ovulation, some women have no pain at all. Some have extremely long periods, others very short. The huge variation in symptoms and the fact it can’t be diagnosed without surgery is why it takes so long to diagnose. A chocolate cyst seen on a scan is one of the few ways it’s picked up without surgery.
It’s overwhelmingly more likely to be endometriosis than anything else and I’ll cross my fingers for you that it is. When are things happening?
I’ve been where you are now and it’s scary. But as in a majority of cases mine was just a cyst and was easily removed and my symptoms disappeared overnight.
I really think doctors are so used to running these blood tests that they breezily say oh yes we’ll test for tumour markers bla bla bla like it’s an everyday thing and forget that it’s like a punch in the chest to patients sometimes. I had a letter from the gynae a few days before xmas saying she’d reviewed my scans and wanted to run the tumour markers again as she disagreed with the initial diagnosis of the location of the cyst. This totally ruined xmas for me 
as my mind went into panic mode.
Sounds like you’re being dealt with swiftly so at least there’s not too long to wait.
Handhold
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