This is weird please bear with me.
Brief history:
POTS symptoms started around 11 (dismissed by doctors at the time)
Got very unwell after flu in mid twenties, got diagnosed with CFS/ME and they also confirmed mild POTS then.
Diagnosed with fibromyalgia a few years later as the pain was always a bigger problem than the fatigue.
Recently diagnosed with PCOS, not sure if that’s relevant.
Anyway lots of people have said I probably have EDS because of the fibro/POTS, they’ve even mentioned that IBS and even ASD (I have both) can be related?! I’ve always dismissed it because I’ve never had hypermobility issues. I’m not flexible at all other than my hips. I’ve never dislocated anything.
But I do have what I now realise are weird joint issues sometimes. The way I can tell I’m getting a pain flare is my elbows, they really hurt before anything else. I get pain in my upper arms when they feel like they need to crack right down the bone .
I also seem to hurt my joints easily. Joint pain has always been a problem generally such that I was checked for arthritis etc. The other day, I managed to strain my thumb just by putting in my mooncup it hurt for hours after just because I moved my hand at a slightly odd angle.
I’m not really sure why I’m posting as I don’t think there’s any point in following this up, there’s no medication or anything, I’m not able to work regardless, I’m just curious now as I’ve started to realise that actually a lot of my pain is joint related.
Any thoughts please? Particularly any issues/symptoms that aren’t the obvious?
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General health
EDS without the obvious hypermobility/flexibility?
28 replies
ProfessorBranestawm · 09/05/2019 11:08
OP posts:
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